Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

My nightshade allergy may be celiac.. :-(

Fasteddy
 Share

Recommended Posts

Fasteddy Rookie
Fasteddy
Posted
  • Author

Just a quickie, have been very busy this weekend and could not get online.. Will respond in a day or 2 when I am free, and thank you Scott, will put the soap recipe on too.. DHC has added C for Condition, saw it written that way somewhere on the net, will kick that habit..!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted
(edited)
7 hours ago, Fasteddy said:

Just a quickie, have been very busy this weekend and could not get online.. Will respond in a day or 2 when I am free, and thank you Scott, will put the soap recipe on too.. DHC has added C for Condition, saw it written that way somewhere on the net, will kick that habit..!

Thanks for the explanation Fasteddy.  DH testing involves taking a small skin sample from near a DH lesion, not on it.  They check the skin sample for IgA antibodies.  People with DH may not have positive blood antibodies though.  Maybe because the antibodies are concentrated in the skin instead of the blood?  Anyhow, if you do have a DH diagnosis then you are celiac confirmed, regardless of what blood antibody tests show.

Oh, and I misspelled that word.  It is apoptosis.

https://en.wikipedia.org/wiki/Apoptosis

 

Edited by GFinDC
  • 1 month later...
Fasteddy Rookie
Fasteddy
Posted
  • Author

Hi All..

My last post in this forum.. I am not a celiac.. and do not have a gluten intolerance either.. Have now gone 6 weeks without gluten and no difference felt or observed. All of my problems were down to my nightshade allergy which is very severe. Baked a loaf of gluteny bread yesterday, lots of toast later and no reaction.

Think my biggest problem has been impatience, having gone without nightshades for a month, I really thought I would have recovered from all the physical symptoms, but after nearly 60 years of continually ingesting nightshades I guess I have some much longer lasting damage, especially to my digestive system, that is not going to go away overnight. My best guess (and it is a guess) is that my leaky gut is going to take many more months to heal, I have read about some folk taking up to 18 months. I am ok with that as it is the not knowing that has caused me so much stress.

So, improved diet, some more structured excercise and I will take each day as it comes.

Really want to thank you guys for the advice and support, has been a difficult time, especially as there is so little info here in the UK. Nightshade allergies are ranked 14th here, and only the top ten allergies have any labelling requirements for food so it is almost impossible to eat processed foods, but that just points me to healthier living, which aint so bad.

Reading the many posts on this forum was a sharp and severe education for me, broke my heart to see so many suffering from such distressing effects and although my probs were from a different source, I did feel in good company while on this forum. Hope it continues long into the future and that you are able to help others get through their difficulties with the compassion and support that I felt while here.

Although you may not hear it from across the Atlantic, much applause to you folk..

 

Oh, and I was going to post my soap recipe, which I still very much recommend as a big help for DH. Much kinder to your skin than the harsh chemicals found in todays 'soap'. Instead of that, here is a link to a US site that is where I started to learn about soap making, a third of the way down the page is a recipe that I still use under the heading 'How to Make Soap for Hand & Body'.  https://www.diynatural.com/how-to-make-soap/

Just be careful adding essential oils, they can be quite potent and you should always conduct a skin test to make sure there is no reaction, can recommend lavender oil if it is ok to use as it is good at healing skin.

 

Thats all folks, be happy, be well, stay safe..

 

 

 

 

 

Scott Adams Grand Master
Scott Adams
Posted

Good luck with everything and I hope you've found a solution! Keep in mind that most celiacs and those with gluten-sensitivity don't have obvious symptoms, and many have zero symptoms, so just eating some gluten and having no reaction won't rule them out...but I do hope that you don't have either issue!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Scott Adams's article in Summer 2026 Issue
      1

      New Study Finds 1 in 10 Celiac Patients May Have Additional Autoimmune Disorders (+Video)

      Kinda glad I read this and some related materials. My celiac symptoms seem mild and I sometimes question if the hassle of the gluten-free diet/lifestyle is worth it for mild symptoms. This is one of the answers to that. gluten-free diet can delay onset/progression of autoimmune polyglandular syndrome, but cannot reverse it.
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      1 Year Elimination Diet journey

      makes sense. sometimes you learn one path and never question it until you see someone take a different path
    3. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      1 Year Elimination Diet journey

      Interesting I read that toasted kasha groats have nutty flavor which I thought like oatmeal with banana and yogurt. Yes quinoa I have for dinner looking to switch oatmeal to buckwheat for breakfast. I have to look into amaranth
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      1 Year Elimination Diet journey

      I've never tried bananas or yogurt with kasha. It would probably work but in my mind I think of kasha as being on the savory side so I always add butter, peanut butter, or shredded cheddar cheese. Next time I make it I will try yogurt and banana to see for myself. Amaranth has a touch of sweet and I like to pair it with fruit. Quinoa is more neutral. I eat...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      1 Year Elimination Diet journey

      The basic seems more like oatmeal. You can also add yogurt banana to it like oatmeal right. I see rinsing as first step in basic recipes like this one https://busycooks.com/how-to-cook-toasted-buckwheat-groats-kasha/ I don't understand why since kasha is toasted and not raw. What about buckwheat flake cereal or is this better to go with.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,058
    • Most Online (within 30 mins)
      10,442
    Sandi Barnes
    Newest Member
    Sandi Barnes
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      1 Year Elimination Diet journey

      By Aretaeus Cappadocia · Posted

      makes sense. sometimes you learn one path and never question it until you see someone take a different path
    • xxnonamexx
      1 Year Elimination Diet journey

      By xxnonamexx · Posted

      Interesting I read that toasted kasha groats have nutty flavor which I thought like oatmeal with banana and yogurt. Yes quinoa I have for dinner looking to switch oatmeal to buckwheat for breakfast. I have to look into amaranth 
    • Aretaeus Cappadocia
      1 Year Elimination Diet journey

      By Aretaeus Cappadocia · Posted

      I've never tried bananas or yogurt with kasha. It would probably work but in my mind I think of kasha as being on the savory side so I always add butter, peanut butter, or shredded cheddar cheese. Next time I make it I will try yogurt and banana to see for myself. Amaranth has a touch of sweet and I like to pair it with fruit. Quinoa is more neutral. I eat it plain, like rice, with chicken stock or other savory things, or with coconut milk. Since coconut milk works, I would think yogurt would work (with the quinoa). I went to the link you posted. I really don't know why they rinse the kasha. I've eaten it for decades and never rinsed it. Other than that, her recipe seems fine (that is, add the buckwheat with the water, rather than wait until the water is boiling). She does say something that I forgot: you want to get roasted/toasted buckwheat or you will need to toast it yourself. I've never tried buckwheat flakes. One potential issue with flakes is that there are more processing steps and as a rule of thumb, every processing step is another opportunity for cross-contamination. I have tried something that was a finer grind of the buckwheat than the whole/coarse and I didn't like it as much. But, maybe that was simply because it wasn't "normal" to me, I don't know.
    • xxnonamexx
      1 Year Elimination Diet journey

      By xxnonamexx · Posted

      The basic seems more like oatmeal. You can also add yogurt banana to it like oatmeal right. I see rinsing as first step in basic recipes like this one https://busycooks.com/how-to-cook-toasted-buckwheat-groats-kasha/ I don't understand why since kasha is toasted and not raw. What about buckwheat flake cereal or is this better to go with. 
    • Scott Adams
      Pain in the right side of abdomen

      By Scott Adams · Posted

      Celiac disease can have neurological associations, but the better-described ones include gluten ataxia, peripheral neuropathy, headaches or migraine, seizures, cognitive symptoms, and, rarely, cerebral calcifications or white-matter changes. Some studies and case reports describe brain white-matter lesions in people with celiac disease, but these are not specific to celiac disease and can have many other explanations. A frontal lobe lesion could mean many different things depending on the exact wording of the report: a white-matter spot, inflammation, demyelination, a small old stroke, migraine-related change, infection, trauma, vascular change, seizure-related change, tumor-like lesion, artifact, or something that resolved on repeat imaging. The word “transient” usually means it changed or disappeared, which can happen with some inflammatory, seizure-related, migraine-related, vascular, or imaging-artifact situations.  Hopefully they will find nothing serious.
×
×
  • Create New...