Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

*D* for over a month - normal colonoscopy

Fit4Life410
 Share

Recommended Posts

Fit4Life410 Newbie
Fit4Life410
Posted

Hi there. New here. I’ve had diarrhea every single day, multiple times a day, since Oct. 9. At first, dr dx me w gastritis. When it persisted, I did a stool sample, and it came back normal. Pain in my lower left quadrant got really bad and I ended up going to the ER. I was dx w colitis and put on 2 abx. I got REALLY sick after that. Referred to GI. Did a colonoscopy. It was normal. Another stool test. Normal. I’m so uncomfortable. My stomach hurts so bad. I still have pain on my left side. I get bad cramping, almost like menstrual cramps daily. And still the diarrhea. I have an endoscopy on the 30th. She mentioned ruling out Celiac. At this point, I’m HOPING for it bc I can’t live like this much longer. I also have a hx of migraines and seizures. 
 

Can anyone relate? I’m a healthy, active 42yo mother of 2 teens. I can not live the life I usually lead right now. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

Have you had a blood screening for celiac disease yet? This would be the normal first step, before an endoscopy. If so, please share your results, if not, you may want to ask your doctor why this hasn't been done yet.

Certainly diarrhea is a symptom, as well as well headaches and seizures...here are articles on this:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/epilepsy-and-celiac-disease/ 

 

Fit4Life410 Newbie
Fit4Life410
Posted
  • Author

Thanks for the reply. I asked if she would do a blood test, and she said “I’m not against it. We can do that next after I see what this shows.” I think she was convinced I had something called microscopic ulcerative colitis and when the colonoscopy didn’t show that, she was definitely surprised. I am a bit frustrated, but will follow whatever steps I need to. 
 

Look forward to reading those articles. Thx so much. 

Scott Adams Grand Master
Scott Adams
Posted

Be sure to continue eating gluten daily until all tests are completed. I would request the blood test before the biopsy, as they are more accurate for diagnosis.

DJFL77I Experienced
DJFL77I
Posted

what kind of seizures?

Fit4Life410 Newbie
Fit4Life410
Posted
  • Author
3 minutes ago, DJFL77I said:

what kind of seizures?

Grand mal

DJFL77I Experienced
DJFL77I
Posted

Celiac can cause neurological problems..   not sure about seizures though.. wouldn't be surprised though

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

Yes, celiac disease can indeed cause seizures, and here are some articles on this:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/epilepsy-and-celiac-disease/ 

How this happens seems to be nerve damage, and here are articles on this:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/

This article in particular is very interesting:

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,497
    • Most Online (within 30 mins)
      7,748
    Nicole71
    Newest Member
    Nicole71
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JA917
      A year and a half of test confusion...

      By JA917 · Posted

      I was just thinking this same thing - requesting repeat testing prior to giving up gluten. Makes sense. Thanks!
    • knitty kitty
      A year and a half of test confusion...

      By knitty kitty · Posted

      Since you're having a last hurrah with gluten, request another round of blood tests for celiac antibodies.  Make sure you're eating ten grams or more daily for those few weeks before your capsule endoscopy.  You probably weren't eating a sufficient amount of gluten needed to provoke sufficient antibody production.   
    • cristiana
      Christmas Cake

      By cristiana · Posted

      Hello all I am taking some time out from work today to make my annual Christmas cake along the lines of a tried and tested English recipe which means a fruit cake, with marzipan  and icing.   As usual, I've left it too late - we're meant to bake these things some time  in advance to improve the flavour.    I never remember.  But it never seems to matter! I thought I'd share it in case any UK coeliacs still haven't made theirs and don't have a recipe, or any of my friends across the Pond want to try making one.  Do you make iced fruit cakes like this in the US for Christmas? - I have no idea! I adapt it slightly as instead of fondant icing I make Royal Icing which sets hard and you can create exciting snow scenes with it if you can find any tiny model houses, churches and trees to put on it!  (my Mum used to do this).   https://www.coeliac.org.uk/information-and-support/your-gluten-free-hub/home-of-gluten-free-recipes/1511804/ With thanks to the charity Coeliac Uk for this recipe. Cristiana  
    • trents
      My 5 months of Struggle

      By trents · Posted

      Welcome to the forum, @Art Maltman! Ask your physician to order serum antibody tests specifically designed to detect celiac disease. That's the place to start but you shouldn't be on a gluten free diet some weeks before the blood draw. You certainly have some symptoms that are characteristic of celiac disease and you have a first degree relative that has celiac disease. So, I think this would be an appropriate request to bring to your physician. Here is an article outlining the various serum antibody tests that can be ordered when checking for celiac disease:   The physician may not be open to ordering a full panel but push for at least these two: total IGA and tTG-IGA. By the way, absence of gut pain is very common in the celiac population. We call them "silent" celiacs as they have no or very minor symptoms. There are over 200 symptoms and spinoff health issues that have become associated with celiac disease and the range of symptoms and effects produced by the disease in different individuals various tremendously. 
    • Art Maltman
      My 5 months of Struggle

      By Art Maltman · Posted

      Also been very fatigued
×
×
  • Create New...