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acd0198

Neurological symptoms after diagnosis of celiac disease

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Hi everyone,

I am posting because I am curious if anyone has had similar neurological symptoms that could be related to celiac disease.

To give some background info, I am a 23 year old female, healthy, active and recently diagnosed with celiac disease in August (5 months ago). I got tested only because my uncle and dad recently were diagnosed and because it’s hereditary, I asked my doctor for the test. My only symptoms were low ferritin, stomach aches at night 4-5 times a week and bloating. In the summer months before my diagnoses, I also felt dizzy/lightheaded and would often get a slight, strange tingling feeling in my hands/arms/lips. During the summer I also had an aura migraine (I get migraines but never had this before) where my right arm and right side of the inside of my mouth/tongue went completely numb (like dental freezing numb) for 10 minutes followed by a bad migraine headache. This probably is unrelated but I thought I would mention it.

I have been eating gluten-free for the last 4 months now and am very careful with hidden ingredients, cross contamination, etc. My stomach aches and bloating are completely gone and my ferritin levels are already up a lot (yay!). 
Around the same time I started eating gluten free, I started to have a strange sensation around my right eye socket and up to the right side of my forehead. When I blink, it feels like it’s numb but when I touch the area I can feel it perfectly fine and it’s not numb. This feeling usually comes around 2pm and stays until I go to bed. It doesn’t hurt but it is an irritating feeling and more concerning than anything that it could be an underlying symptom of something. In the last month I have also now had slight double vision. It’s most noticeable when I’m looking at words and numbers that I notice a hue above/below the words and especially when looking at my phone, computer, tv, digital clock. But sometimes I also see a slight hue  around my fingers for example. I had an eye exam this month and everything was fine so I know it’s not an eye problem. 
 

I’m curious if anyone with celiac disease has had similar symptoms to what I’m experiencing. I find it strange that I got the numb face feeling symptoms for the first time when I started eating gluten free, but I know the gut healing process can take a long time and think maybe it’s a coincidence of timing. My doctor thinks its sinus or migraine related but I’m not convinced. 
 

Thanks in advance!

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I don't mean to frighten you but I would advise getting a head CT done. Also, make an appointment with an opthalmologist. Your eye doctor is an optometrist and qualified to examine your eyes for corrective vision but not a specialist in eye diseases. 

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My symptoms included severe knots in my shoulder and neck muscles that often caused bad stiff necks, and this would sometimes cause a pinched nerve in my neck which included tingling sensations that shot from my right shoulder to the top of my head. I did get an MRI done on this, but they only found a compressed disk in my neck. After years of being gluten-free these symptoms have gone away.

I agree with @trents though, take these symptoms seriously and don't assume that they are related to celiac disease. Get your doctor to run tests to eliminate other possible causes.


Scott Adams

Celiac.com - Celiac Disease Board Moderator

Founder Celiac.com

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On 1/14/2021 at 8:42 PM, Scott Adams said:

My symptoms included severe knots in my shoulder and neck muscles that often caused bad stiff necks, and this would sometimes cause a pinched nerve in my neck which included tingling sensations that shot from my right shoulder to the top of my head. I did get an MRI done on this, but they only found a compressed disk in my neck. After years of being gluten-free these symptoms have gone away.

I agree with @trents though, take these symptoms seriously and don't assume that they are related to celiac disease. Get your doctor to run tests to eliminate other possible causes.

WTF Scott Adams!? I get the same knot! Between my shoulder blades. An extremely painful dot slightly to the right. It usually radiates to my right arm with some numbness. A few years ago it got so bad that I couldn't get out of bed because the slightest arm and shoulder movement would trigger the worst pain I've ever had. I had to roll out of bed screaming. I had no idea this was connected. I thought it was something else. I also get facial pain. Not jaw pain, but in my cheeks. 


If the doctor mention IBS, run. 

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