B12 defiency + low blood pressure + inflammation in

[Lindquist]

Hi i just order it from the Swedish reseller on imupro to test me. But another thing i got is very high levels of homocystein i think it's normal with celiac right? I will post the results as soon as i test me.

[Oldturdle]

13 hours ago, Lindquist said:

Hi i just order it from the Swedish reseller on imupro to test me. But another thing i got is very high levels of homocystein i think it's normal with celiac right? I will post the results as soon as i test me.

Lindquist, yes.  Elevated homocysteine levels are frequently seen in celiacs, secondary to the low B12 and folate levels.  Elevated Homocysteine levels are also seen in severe crushing injuries, where lots of muscle tissue has been damaged.   How long have you been gluten free?  Some of your deficiencies should soon begin to resolve.  Keep us posted!

[Lindquist]

Hi again when i got my b12 levels up again i don't need to take b12 all life? Have people with celiacs often Pernicious Anemia or Artrofic Gastritis too? How long does it take for the b12 to raise to normal levels again? Is b12 with metylkobalamin best then cyanokobalamin? I take metylkobalamin hope it's better. I put tablets under my tongue. So it goes with the blood up to the nerves and brain for better uptake as i don't take it up in my intestines. With celiac is that Instric factor is gone also and have lower stomach acid? I have bloodtype 0 RHd+ they say type 0 has problems with dairy products and grains and also have problems with ulceractive colitis and Crohns. I don't know if i had IBS or IBD too. If celiacs cause IBS and IBD or Gastritis i would be glad to know.

[Oldturdle]

On 10/7/2021 at 3:20 PM, Lindquist said:

Hi again when i got my b12 levels up again i don't need to take b12 all life? Have people with celiacs often Pernicious Anemia or Artrofic Gastritis too? How long does it take for the b12 to raise to normal levels again? Is b12 with metylkobalamin best then cyanokobalamin? I take metylkobalamin hope it's better. I put tablets under my tongue. So it goes with the blood up to the nerves and brain for better uptake as i don't take it up in my intestines. With celiac is that Instric factor is gone also and have lower stomach acid? I have bloodtype 0 RHd+ they say type 0 has problems with dairy products and grains and also have problems with ulceractive colitis and Crohns. I don't know if i had IBS or IBD too. If celiacs cause IBS and IBD or Gastritis i would be glad to know.

Lindquist.  Your questions are getting beyond my scope of being able to help you.  It sounds like you are doing a wonderful job of educating yourself about celiacs disease and nutrition in general!  I have heard sublingual is a good way to absorb B12, but not as effective as the injections.  I had not heard that the O blood type is likely to be more sensitive to wheat and dairy.  Thanks for that tid bit.

 

[Wheatwacked]

On 10/7/2021 at 3:20 PM, Lindquist said:

metylkobalamin best then cyanokobalamin

"cyanocobalamin is the form of B12 most used in supplements because it’s the cheapest"   https://www.justvitamins.co.uk/blog/cyanocobalamin-versus-methylcobalamin/

Once your gut heals, if you eat enough animal based foods with B12, you should be ok. Your advantage is that you already recognize the difference between enough and not enough B12. Trust your gut.

Beans are a good source of folate. The RDA is 350 to 3500 mcg a day. More is better. Our body uses folate and vitamin B5 to turn homocystein into Co-A which then uses glucose to create ATP (Krebbs cycle) which is what all living cells use for energy.

Despite a long family history of heart disease, and numerous personal risk factors  my homocystein (to the surprise of my doctor) is normal. I attribute it to 150 gm of beans and 1000 mg Pantothenic Acid (B5) a day. 

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there are no reports of pantothenic acid toxicity in humans at high intakes   https://ods.od.nih.gov/factsheets/PantothenicAcid-HealthProfessional/#h8

My Beans: take equal amounts of small red, garbanzo, and pinto beans. This combination keeps me from getting bored with it.  Soak overnight, rinse, bring to a boil then simmer one hour. Rinse.   150 gm of this has 782 mcg Folate.  Use instead of croutons.  For my evening meal I usually combine 150 gm cooked beans, 10 gm fresh parsley chopped ( RDA for vitamin K) tomato, cucumber, red bell pepper, shredded cabbage and 2 grams of salt.

[Lindquist]

5 hours ago, Oldturdle said:

Lindquist.  Your questions are getting beyond my scope of being able to help you.  It sounds like you are doing a wonderful job of educating yourself about celiacs disease and nutrition in general!  I have heard sublingual is a good way to absorb B12, but not as effective as the injections.  I had not heard that the O blood type is likely to be more sensitive to wheat and dairy.  Thanks for that tid bit.

Type 0 is Sensitive for Milkprotein and wheat because wheat cross allergy to grass timotej. Kasein in dairy is not good for type 0. So i don't consume milk it wheat. It's not benefical for me.

[Lindquist]

3 hours ago, Wheatwacked said:

"cyanocobalamin is the form of B12 most used in supplements because it’s the cheapest"   https://www.justvitamins.co.uk/blog/cyanocobalamin-versus-methylcobalamin/

Once your gut heals, if you eat enough animal based foods with B12, you should be ok. Your advantage is that you already recognize the difference between enough and not enough B12. Trust your gut.

Beans are a good source of folate. The RDA is 350 to 3500 mcg a day. More is better. Our body uses folate and vitamin B5 to turn homocystein into Co-A which then uses glucose to create ATP (Krebbs cycle) which is what all living cells use for energy.

Despite a long family history of heart disease, and numerous personal risk factors  my homocystein (to the surprise of my doctor) is normal. I attribute it to 150 gm of beans and 1000 mg Pantothenic Acid (B5) a day. 

My Beans: take equal amounts of small red, garbanzo, and pinto beans. This combination keeps me from getting bored with it.  Soak overnight, rinse, bring to a boil then simmer one hour. Rinse.   150 gm of this has 782 mcg Folate.  Use instead of croutons.  For my evening meal I usually combine 150 gm cooked beans, 10 gm fresh parsley chopped ( RDA for vitamin K) tomato, cucumber, red bell pepper, shredded cabbage and 2 grams of salt.

What bloodtype you have in here in this forum? I am 0+ so i know i can't have casein and grains in My diet. Because gluten is not benefical for 0. Bloodtype 0 was gatherer hunters. There for i eat meat most. IF i get grains i get sick even potatos make me sick of lectins. Apples are Good for intestines i know and my stomach. Beans i don't know if it's swell of fibers. Ananas is good. I consume alot of fruits. The problem with grains is yeast also even in dairy products yeast is problem as it show that in also allergy to mold so yeast is not good. I can't eat yoghurt , cheese and that contain yeast. Mold allergy cross allergy to yeast. 

[Wheatwacked]

On 10/3/2021 at 5:13 AM, Lindquist said:

i can tolerate lactose in adult age and whole life of this mutant gen we have in Sweden from ancestors My doctor say. But i get lactose intolerant when i get gluten in me of mistake.

Hopefully your test from imupro will have answers. It seems to me that everything you are experiencing comes back to Celiac. You eat lots of meats so you should not be B12 deficient. Yet you respond well to sublingual B12 bypassing the small intestine. Malabsorption syndrome caused by Celiac is plausible. Your other symptoms are also common with undiagnosed Celiac. If the type O diet works for you, great but its seems to me it is not. Too many unexplained.

Found this about that

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The Dr. D’Adamo I saw said I had Type O blood and therefore I should eat meat. I was getting desperate, so I did begin to eat a lot of meat. At that point, I was avoiding a lot of food items thinking they made me ill, so the meat I ate was probably plain and therefore gluten free.

But I didn’t get any better because what I really had was celiac disease. Dr. D’Adamo did not advance my health one bit. In fact, he set me back while I experimented with the idea that eating meat would make me better.  https://www.glutenfreeliving.com/gluten-free/celiac-disease/blood-types-celiac-disease/ 

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It’s important to cook beans correctly, as most of their toxins and gas-producing elements are released during the cooking process. Soak your beans for 8 hours, or overnight, before cooking. And skim the foam off the top after bringing them to a boil. Then cook according to the instructions for the type of bean you’re using...Type O: Include aduki beans, pinto beans, and black-eyed peas. Avoid kidney beans, navy beans, and lentils.   https://lulabrown.com/eating-for-your-blood-type-beans-and-legumes/

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Likewise, garbanzo beans are Avoids for Types A, B and AB, and are merely a Neutral for Type O   https://www.4yourtype.com/blog/is-your-superfood-my-superfood/

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adzuki beans are small, red beans originating from China and are popular in Asian cooking. Although they are also simply referred to as red beans, they should not be confused with kidney beans, which are twice the size and shaped like kidneys.   https://ohmyveggies.com/adzuki-beans/

In any case, according to this my bean bowl should be good for Type O.

[Lindquist]

Hi you say i can take Up b12 from meat no i can't because my stomach can not take up b12 in intestines so easy because Instric factor is missing and i think it's because i have also artrophic gastritis. You can even get b12 defiency and folate defiency with celiac. As you can't absorb vitamins and minerals with a inflammation. It take almost 6 month to 2 years to stomach to heal. I can only drink water or lactose free dairy. But as soon THE stomach has heal again i should tolerate dairy again. But i prefer to drink club soda water better for intestines. No sugar in that only carbonated water. Fruit juices and that just contain fructos and sorbitol and lot of sugar so drinking that is not healthy. Because sugar store as fat. Meat is good if it's beef not pig meat. Even in bible god say that pig meat is bad. So eat pig meat is not healthy. Pig can not swet and people don't know about that. I eat lamb, beef if i eat meat. 

[DebJ14]

On 10/2/2021 at 11:21 AM, Oldturdle said:

Hi again Lindquist.  Glad you made the decision to go gluten free now, rather than wait until you had a blood test.  Given your syptoms, and family history, I think you can safely say you have celiacs disease.  Low B 12 is usually caused by poor absorbtion in the small intestines, (celiacs, chrones, surgical alteration,) or poor diet.  Practicing alcoholics get this a lot.  Basically, B 12 is found in animal proteins.  Taking it orally, if there is a poor absorption problem, may not help much.  A lot of people require B 12 injections to get their levels up.  That said, if you have celiacs disease and go on a gluten free diet, you should heal your intestines very soon, and greatly increase your absorbtion of vitamins.  The "good" thing about having celiacs is that there are no medications needed to treat it, and you can go into life long remission simply by staying on a gluten free diet.  May I ask how old you are?  I was 69 years old when diagnosed.  Also, is there a celiac gene specifically for adult onset celiacs?  If so, I have not heard of it.  I am possitive for the celiac gene DQ8.

According to the Spectracell Test for Micronutrients that was administered after my diagnosis, I was low in B 12 and most everything.  I was put on targeted high dose supplementation and when the test was repeated in 6 months, many deficiencies had resolved.  After a year the test was repeated B-12, D and Antioxidant levels were the only ones that were still very low, in spite of increased doses.  At that point the doctor ordered Epigenetic testing and all those that were low were due to  genetic mutations, that are not in my favor.  As a result, I have to take extremely high doses for the rest of my life and my levels are nothing to write home about!

[Oldturdle]

2 hours ago, DebJ14 said:

According to the Spectracell Test for Micronutrients that was administered after my diagnosis, I was low in B 12 and most everything.  I was put on targeted high dose supplementation and when the test was repeated in 6 months, many deficiencies had resolved.  After a year the test was repeated B-12, D and Antioxidant levels were the only ones that were still very low, in spite of increased doses.  At that point the doctor ordered Epigenetic testing and all those that were low were due to  genetic mutations, that are not in my favor.  As a result, I have to take extremely high doses for the rest of my life and my levels are nothing to write home about!

DebJ14, wow.  You have a really great doctor!  So thorough.  May I ask what part of the country you live in?  Is your doctor a G.I. specialist, or some other specialist?  Did he/she suggest all of that testing, or did you ask for it?  Most importantly, are you feeling better?

  

[DebJ14]

5 minutes ago, Oldturdle said:

DebJ14, wow.  You have a really great doctor!  So thorough.  May I ask what part of the country you live in?  Is your doctor a G.I. specialist, or some other specialist?  Did he/she suggest all of that testing, or did you ask for it?  Most importantly, are you feeling better?

  

I am in Texas.  The doctor who ordered the nutritional testing is a board certified nutritionist.  He specializes in those with gluten issues.  He suggested the testing.  I never heard of it before he mentioned it.  And yes, I am feeling great.  I used to always be sick, but since following his instructions regarding diet and supplementation I can honestly say I have not been sick (not even a headache, sore throat nor a cold) in almost 10 years.  I feel better in my late 60's than I did in the prime of my life.

 

[Lindquist]

Does b12 defiency go away If i get better in celiac?

[Lindquist]

2 hours ago, DebJ14 said:

According to the Spectracell Test for Micronutrients that was administered after my diagnosis, I was low in B 12 and most everything.  I was put on targeted high dose supplementation and when the test was repeated in 6 months, many deficiencies had resolved.  After a year the test was repeated B-12, D and Antioxidant levels were the only ones that were still very low, in spite of increased doses.  At that point the doctor ordered Epigenetic testing and all those that were low were due to  genetic mutations, that are not in my favor.  As a result, I have to take extremely high doses for the rest of my life and my levels are nothing to write home about!

Hi im 45 how long does it take to have normal b12 levels again after been gluten free?? Do u know if it's any epigenic test in Sweden? I hope i can have My b12 levels back to normal and folate defiency but how long does it took for you??

[Oldturdle]

7 minutes ago, DebJ14 said:

I am in Texas.  The doctor who ordered the nutritional testing is a board certified nutritionist.  He specializes in those with gluten issues.  He suggested the testing.  I never heard of it before he mentioned it.  And yes, I am feeling great.  I used to always be sick, but since following his instructions regarding diet and supplementation I can honestly say I have not been sick (not even a headache, sore throat nor a cold) in almost 10 years.  I feel better in my late 60's than I did in the prime of my life.

 

DebJ14, great that you are feeling so good at your advanced age.  (I am 69, ha ha!)   A couple more questions...is the board certified nutritionist who helped you an MD?  How did you find him?  Also, I am guessing you live in or near a big city.  Houston?  I think most of us could really feel our best if we had such specialized care.  When I was diagnosed, all my G.I. guy said was to make an appointment with a dietitian.  He ordered no vitamin blood levels.  I think the moral is we all need to take the responsibility to educate ourselves about our medical conditions, and hold our physicians to a higher standard of care.

 

 

[DebJ14]

11 minutes ago, Oldturdle said:

DebJ14, great that you are feeling so good at your advanced age.  (I am 69, ha ha!)   A couple more questions...is the board certified nutritionist who helped you an MD?  How did you find him?  Also, I am guessing you live in or near a big city.  Houston?  I think most of us could really feel our best if we had such specialized care.  When I was diagnosed, all my G.I. guy said was to make an appointment with a dietitian.  He ordered no vitamin blood levels.  I think the moral is we all need to take the responsibility to educate ourselves about our medical conditions, and hold our physicians to a higher standard of care.

 

 

He is a Chiro and Board Certified Clinical Nutritionist, as many are.  I was sent to him by the GI MD who said he was sorry to admit that MD's get no training in nutrition and it was out of his lane.  You do not want a traditional dietician - find a nutritionist through the Doctor Search area on the acbn.org website.

 

[Oldturdle]

8 minutes ago, DebJ14 said:

He is a Chiro and Board Certified Clinical Nutritionist, as many are.  I was sent to him by the GI MD who said he was sorry to admit that MD's get no training in nutrition and it was out of his lane.  You do not want a traditional dietician - find a nutritionist through the Doctor Search area on the acbn.org website.

 

Thanks!  I will look into that!

[Lindquist]

This is what i found in Net that cross reacts with gluten to avoid.

[Oldturdle]

14 hours ago, Lindquist said:

This is what i found in Net that cross reacts with gluten to avoid.

Wow!  That is a list!  Thankfully, there is nothing on that list that I seem to have a problem with.  Admittedly, I have not tried them all.

[Lindquist]

Is Rice a problem for you or milk?

[Lindquist]

Hi again i have doing a new hair analyze test to know if i have more deficiencys then just b12. Hope to know soon. By the way im blood type 0 rhd + and it says in the book eat right 4 your type by Peter D'adamo that people with blood type 0 can not eat gluten or drink lactose products. Because bloodtype 0 coming from the hunter gatherer from Africa that were intolerant to gluten and lactose. Even on my allergy paper it say that i am sensitive to wheat. Even if i eat oats i get sick and rye.  Every gluten i eat i get pain in stomach and cant eat for a week.