Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vital Wheat Gluten for glucose challenge


Katerific

Recommended Posts

Katerific Explorer

I tried to start a gluten challenge today to see how I would react to vital wheat gluten, eliminating or reducing FODMAPS.  I have a lot of issues with FODMAPS (beans, onion, garlic, many vegetables). My endoscopy is in 5 weeks and as I understand it, I would only need to do the gluten challenge for 2 weeks prior.  I put 1/4 tsp of vital wheat gluten in water, drank it down and now 3 hours later am extremely nauseated, have cramps, bloating, gas and diarrhea.  Only 1/4 tsp!  I may try drinking it at bedtime starting 2 weeks out from procedure day, but I don't want to stay up all night being sick.  When my mother was diagnosed in 1990, she never saw another GI doctor again, nor had any follow-up on it from her PCP.  She was a master at avoiding gluten and lived to age 91.  I think I probably have IBS or something else along with the Celiac because even when I know I was eating clean, I had GI problems.  Until this afternoon, I haven't had a speck of gluten in 3 weeks and still have a few GI symptoms.  How long for all GI symptoms to clear once diet is clean?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

I don't envy you in your quest to go through a gluten challenge to get a diagnosis, but you only need to do it for 2 weeks before your endoscopy procedure, and it should be ~2 slices worth of wheat bread.

Given your immediate terrible symptoms, and your family history, do you really need an official diagnosis? To me it sounds like you already have your answer. 

Katerific Explorer
25 minutes ago, Scott Adams said:

I don't envy you in your quest to go through a gluten challenge to get a diagnosis, but you only need to do it for 2 weeks before your endoscopy procedure, and it should be ~2 slices worth of wheat bread.

Given your immediate terrible symptoms, and your family history, do you really need an official diagnosis? To me it sounds like you already have your answer. 

Here it is 4 days after my 1/4 tsp of vital wheat gluten and I still have diarrhea multiple times a day.  I have decided to go ahead with the endoscopy and colonoscopy but not do a gluten challenge.  In the back of my mind, I know it is possible to have Celiac as well as something else, like UC or Crohn's, so want to rule that out too.  I don't know how it is possible to have this level of diarrhea for months on end.

Scott Adams Grand Master

My first thought is are you sure your diet has been 100% gluten-free? If you eat at restaurants, probably not...

 

Katerific Explorer
9 minutes ago, Scott Adams said:

My first thought is are you sure your diet has been 100% gluten-free? If you eat at restaurants, probably not...

 

I think the biggest culprit was a cross-contaminated kitchen.  I love to bake and made cookies and cakes with wheat flour for family.  I can't say for sure, but I think that's when the raging diarrhea started.  I thought as long as I don't eat it I would be fine.  I haven't baked anything in about 6 weeks, but the diarrhea continues.  I have been eating in restaurants once a week and hate to stop since it is my only social outlet, but I will.  I can see that I need to give my intestines time to heal without hitting them with cross-contamination every week.

CarolSportySpice Newbie

I had similar issues after being diagnosed with celiac. I wasn’t able to take in enough wheat to get a positive result on my blood test, but my symptoms were enough for my doctor to make the diagnosis. One thing I recently discovered and am currently dealing with is SIBO (small intestinal bacteria overgrowth). This is a common problem with Celiacs. I treated mine with oregano oil. I do feel better, but I’m not sure the problem is completely dealt with. You may want to look at it to see if that applies to you.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to Mantooth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anyone Else Experiencing These Symptoms?

    2. - nanny marley replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      New here help needed

    3. - nanny marley replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      New here help needed

    4. - trents replied to alimb's topic in Coping with Celiac Disease
      5

      How to keep water down?

    5. - nanny marley replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      New here help needed


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,550
    • Most Online (within 30 mins)
      7,748

    Mantooth
    Newest Member
    Mantooth
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Hello mantooth nice to meet you it's so uncanny what you wrote you sound just like me even the back issues are exactly the same and I'm new here too trying to find out if I have the same had I too have been struggling to find answers with my docters I don't have a diagnosis but I've been struggling like forever and was told ibs and health aniexty was my problem but on researching I've come to the conclusion it's probably more because i cut gluten and lactose out for 6 months and  it was a incredible change for me so although I can't help with diagnosis I can say your not alone in trying  to find answers 😊
    • nanny marley
      I call it the fish because I can't spell the other word at times 🤣 don't want to make myself look silly but yes I have this symbol on many items so nice to see it today wen I'm needing help  gives me faith I'm on the right track 
    • nanny marley
      Yes I have the fish symbol on my car and my ring 🙏 and yes I've been going for years to the docters but I got that feed up ov having to avoid eating out or even visiting people threw aniexty of needing the toilet or of gas or sickness I did some research of my own and I did the elimination diet and what a difference I've had my family think I'm nuts at times saying it's in my head it won't help until they now are doing it too because my daughter's are facing the same issues it's made me feel so ill at times it's so crazy how food can do this to you one night I was up 6 times to the point I had nothing left in my body I didn't go to the toilet for days after and I felt sick has a dog I'm so glad I found this forum I feel a little more human already 😄
    • trents
      Prolonged dehydration can cause kidney damage. How long has this been going on? Are you have diarrhea also? That's what the dyclomine is for I think.
    • nanny marley
      Can I also pick anyone brains of the symptoms I have fatigue body hair loss had low vitamin d for like forever jumpy legs Renaud's contact dermatitis rhinitis body aches tmj heart palpitations I have regular hair loss sleep issues sickness dizziness also with my bowel issues are these any signs of this too because all I've ever been told by my doctors is that I have severe IBS  and health aniexty I've had inflammation flagged up before in blood tests but I have 3 herniated discs and a trapped sciatic nerve so they have put it down to that every time but I've been struggling with my bowels for years and it's got worse had Ive got older and Wen I cut the gluten out it was like omg what a difference then I did the lactose and it was  even better but I still have a few issues going on too so I'm thinking on the lines I could have this any help be appreciated because my docters are terrible 🙏
×
×
  • Create New...