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My 10 year old was just diagnosed w Celiac

Kareg
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Kareg Newbie
Kareg
Posted

My daughter had JVR at age 2 and is in remission but now we have a Celiac diagnosis to contend with.  I am Type 1 diabetic so autoimmune runs deep I gather.  For her, until I see her Dr after the Holidays etc do I need to check shampoo and everything or just focus on food?  Can she have a little gluten over the holidays?  I just found out this afternoon and trying to educate myself- looking for best site recipes and how deep I need to remove gluten out of her life 

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knitty kitty Grand Master
knitty kitty
Posted

Welcome to the forum, @Kareg!

How was your daughter diagnosed?  By blood tests?  By endoscopy?  Often people go gluten free before all testing is done which negates the test results.  

What were your daughter's symptoms that led to her diagnosis?  If she continues eating gluten, symptoms can become worse.

trents Grand Master
trents
Posted
(edited)

To echo what kk said, you should not put her on a gluten free diet until all testing for celiac disease is complete. Usually, there are two stages of testing, the first being blood antibody screening and the second being an endoscopy with biopsy of the small bowel lining to check for damage to the villi. The endoscopy/biopsy is the gold standard test and serves to confirm the blood testing if that was positive. 

If all testing is complete then your daughter needs to go on a strict gluten free diet with no cheating, not even during the holidays. It is challenging enough to avoid accidental gluten exposure without purposeful consumption which would only set back healing of the small bowel lining.

Yes, you should make a reasonable effort to eliminate gluten from anything that might purposely or incidentally wind up in her mouth such as pills, vitamins, lip balm, toothpaste and shampoo.

What is JVR?

Edited by trents
Scott Adams Grand Master
Scott Adams
Posted

Welcome, and we have lots of recipes here:

https://www.celiac.com/celiac-disease/gluten-free-recipes/ 

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