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Constant sweating with celiac disease

Braver101

By Braver101
in Coping with Celiac Disease

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Braver101 Newbie
Braver101
Posted

Does anyone else get soaking wet sweats just out of nowhere? I’m not in menopause, there’s nothing wrong with me except celiac disease and my thyroid, and I’m taking my medicine. I am 18 days gluten-free but I cannot stop sweating and it makes me freezing cold and I’m soaking wet and changing my clothes literally as I’m changing my clothes the new clothes are soaking wet and nobody will help me. Please somebody out there help me. 

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trents Grand Master
trents
Posted

There is such a thing, believe it or not, called gluten withdrawal. Gluten has addictive properties similar to opiates. I know it sounds bizarre but research it. Also, are you compensating for the loss of vitamins and minerals you were getting from the FDA mandated fortified wheat flour products you were formerly consuming?

Scott Adams Grand Master
Scott Adams
Posted

I'm sorry to hear about what you're going through. It must be really frustrating and uncomfortable. Have you talked to your healthcare provider about these sudden sweating episodes? It might be helpful to discuss this with them to rule out any other underlying issues or to see if there are specific strategies or treatments that can help manage this symptom. Additionally, staying hydrated and wearing breathable clothing may provide some relief. 

knitty kitty Grand Master
knitty kitty
Posted

Welcome to the forum, @Braver101,

You may need to have your thyroid medication dose adjusted.  Excessive sweating can occur in hyperthyroidism.  

Excessive sweating consumes lots of Thiamine Vitamin B1.  Thiamine turns carbohydrates and fats into energy for the body.  Thiamine depletion can happen quickly, within three days to two weeks.  Celiac Disease can interfere with the absorption of essential vitamins like thiamine and the other B vitamins, so you may already have low vitamin stores.  The Gluten Free diet can be deficient in vitamins like thiamine and the other B vitamins because processed gluten free facsimile foods are not enriched with added vitamins like gluten based foods.  If one eats lots to gluten free processed foods full of fats and carbohydrates, additional Thiamine is needed.  

Dysautonomia, a Thiamine deficiency disorder, can interfere with the part of the brain that controls temperature regulation, resulting in excessive sweating, too.  Dysautonomia can cause the thyroid to swing high or low resulting in a thyroid storm, thyrotoxicosis.

High blood glucose levels can cause excessive sweating, too.  Most diabetics have low Thiamine. 

Your doctor dealing with your thyroid needs to check your thyroid medication dose.  Ask for an Erythrocyte Transketolase test as well.  This tests for Thiamine activity and is a better measure of Thiamine deficiency than blood levels.  You can have a deficiency in B vitamins and still have "normal" blood levels.

Keep us posted on your progress!

References:

An Uncommon Presentation of Hyperthyroidism Can Culminate in Devastating Neurological Consequences: A Case Report

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9509528/

Gluten-free diet intervention reduces thiamine intake in two weeks, increases glycaemic response and decreases body weight in four weeks, with no long term nutritional deficiencies (because they went off the gluten-free diet after four weeks, not Celiacs)

https://pubmed.ncbi.nlm.nih.gov/34583628/

Dysautonomia, A Heuristic Approach to a Revised Model for Etiology of Disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2644268/

Thiamine deficiency disorders: a clinical perspective

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/

Braver101 Newbie
Braver101
Posted
  • Author

Thank you all for your support and encouragement. All of the issues you’ve mentioned are being looked into. I had a stroke in 2018 and I believe the sweating may be neurological in nature, because I have numbness and tingling on my right side, and occasionally in my hands and feet. I’m looking for a new neurologist and hopefully they can help me. God bless. 

Braver101 Newbie
Braver101
Posted
  • Author

I also have hypothyroidism, fibromyalgia, ankylosing spondylitis, OCD, PTSD, and osteoporosis. My thyroid was just checked and my thyroid meds are the correct dosage.

knitty kitty Grand Master
knitty kitty
Posted

I also have had hypothyroidism, fibromyalgia, OCD, PTSD, and osteoporosis, Wernicke's Encephalopathy, and type two diabetes.  I'm a Microbiologist.  My health has improved by taking high dose Thiamine, and supplementing essential vitamins and minerals.   

Vitamins and minerals are essential for life.  These should come from the food we eat, but celiac disease damages the intestines and we cannot absorb sufficient nutrients from foods when we need them most to heal.  Supplementing with vitamins and minerals boosts your ability to absorb these essential nutrients.

 

STROKE

Prevalence of Low Plasma Vitamin B1 in the Stroke Population Admitted to Acute Inpatient Rehabilitation

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7230706/

Reduced thiamine is a predictor for cognitive impairment of cerebral infarction

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7507112/

 

HYPOTHYROIDISM

Thiamine and Hashimoto's thyroiditis: a report of three cases

https://pubmed.ncbi.nlm.nih.gov/24351023/

Hypothyroidism Complicated by Vitamin C and Thiamin Deficiency in Surgical Patients

https://pubmed.ncbi.nlm.nih.gov/37278003/

 

FIBROMYALGIA

High-dose thiamine improves the symptoms of fibromyalgia

https://pubmed.ncbi.nlm.nih.gov/23696141/

 

ANKYLOSING SPONDYLITIS

Ankylosing spondylitis disease activity and serum vitamin D levels: A systematic review and meta-analysis

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9678609/

Low Vitamin D Levels Predict Mortality in Ankylosing Spondylitis Patients: A Nationwide Population-Based Cohort Study

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7285142/

 

OSTEOPOROSIS

Non-coenzyme role of vitamin B1 in RANKL-induced osteoclastogenesis and ovariectomy induced osteoporosis

https://pubmed.ncbi.nlm.nih.gov/32100911/

Nutrient Patterns and Risk of Osteopenia in Postmenopausal Women

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10096860/

 

OCD

Obsessive-Compulsive Symptoms as a Manifestation of Homocystinuria

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8007370/

 

PTSD

Neuroinflammation is a susceptibility factor in developing a PTSD-like phenotype

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10090279/

 

THIAMINE 

Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/

Thiamine deficiency disorders: a clinical perspective

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/

 

God bless you, too.  God and @Scott Adams allow me to share this knowledge with you.  I've had to find the answers to why I was so sick because my doctors did not recognize nutritional deficiencies.  

Please discuss supplementation with your Nutritionist and doctors.  Correcting nutritional deficiencies is part of proper follow up care for us.

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  • 2 weeks later...
brian1 Newbie
brian1
Posted
On 4/4/2024 at 10:27 PM, knitty kitty said:

I also have had hypothyroidism, fibromyalgia, OCD, PTSD, and osteoporosis, Wernicke's Encephalopathy, and type two diabetes.  I'm a Microbiologist.  My health has improved by taking high dose Thiamine, and supplementing essential vitamins and minerals.   

Vitamins and minerals are essential for life.  These should come from the food we eat, but celiac disease damages the intestines and we cannot absorb sufficient nutrients from foods when we need them most to heal.  Supplementing with vitamins and minerals boosts your ability to absorb these essential nutrients.

 

STROKE

Prevalence of Low Plasma Vitamin B1 in the Stroke Population Admitted to Acute Inpatient Rehabilitation

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7230706/

Reduced thiamine is a predictor for cognitive impairment of cerebral infarction

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7507112/

 

HYPOTHYROIDISM

Thiamine and Hashimoto's thyroiditis: a report of three cases

https://pubmed.ncbi.nlm.nih.gov/24351023/

Hypothyroidism Complicated by Vitamin C and Thiamin Deficiency in Surgical Patients

https://pubmed.ncbi.nlm.nih.gov/37278003/

 

FIBROMYALGIA

High-dose thiamine improves the symptoms of fibromyalgia

https://pubmed.ncbi.nlm.nih.gov/23696141/

 

ANKYLOSING SPONDYLITIS

Ankylosing spondylitis disease activity and serum vitamin D levels: A systematic review and meta-analysis

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9678609/

Low Vitamin D Levels Predict Mortality in Ankylosing Spondylitis Patients: A Nationwide Population-Based Cohort Study

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7285142/

 

OSTEOPOROSIS

Non-coenzyme role of vitamin B1 in RANKL-induced osteoclastogenesis and ovariectomy induced osteoporosis

https://pubmed.ncbi.nlm.nih.gov/32100911/

Nutrient Patterns and Risk of Osteopenia in Postmenopausal Women

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10096860/

 

OCD

Obsessive-Compulsive Symptoms as a Manifestation of Homocystinuria

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8007370/

 

PTSD

Neuroinflammation is a susceptibility factor in developing a PTSD-like phenotype

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10090279/

 

THIAMINE 

Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/

Thiamine deficiency disorders: a clinical perspective

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/

 

God bless you, too.  God and @Scott Adams allow me to share this knowledge with you.  I've had to find the answers to why I was so sick because my doctors did not recognize nutritional deficiencies.  

Please discuss supplementation with your Nutritionist and doctors.  Correcting nutritional deficiencies is part of proper follow up care for us.

I concur with you there I had blood test after blood test they say everything is OK but I don't beleave them there doing just the basic required blood tests I've suffered from ceilics for six months and I don't seem to be getting any better it seemed to collide with my enlarged prostrate when that was discovered a while later certain pain seems to be delayed in my body except for the pain from the prostrate when they change the cathata I don't expect to survey as my confidence and energy levels have dropped to an all time low I sleep a little at night but end staying awake my BP can can go through the roof when asleep even though I'm taking meds it a puzzle it feels like there's no way out 

knitty kitty Grand Master
knitty kitty
Posted

@brian1, welcome to the forum

Sorry to hear you're not feeling better.  Improving one's vitamin levels are so important.  

I use Thiamine, Pyridoxine B6, and Cobalamine B12 for pain relief in addition to a B Complex supplement.  This combination really works for my pain.  

Keep us posted on your progress!

Here's some articles you might find interesting.

High Dose Vitamin B1 Reduces Proliferation in Cancer Cell Lines Analogous to Dichloroacetate

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3963161/

And...

Effect of Combined Diclofenac and B Vitamins (Thiamine, Pyridoxine, and Cyanocobalamin) for Low Back Pain Management: Systematic Review and Meta-analysis

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7139211/

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      @glucel,  There's a strong correlation between thiamine deficiency, hypoxia, and insomnia.  Thiamine is needed to help red blood cells carry oxygen.  In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular events.  Curiously, thiamine deficiency is correlated with excessive daytime sleepiness and oversleeping.   I found a combination of Tryptophan, Pyridoxine B 6, magnesium, and L-theanine works very well for inducing sleep.  Sometimes, I add Passion Flower Extract and/or Sweet Melissa.  There's no side effects the next morning with Passion Flower, it just induces sleepiness.  Sweet Melissa is groovy, and has anti-inflammatory effects on the digestive system.   I prefer to take 250 mg Benfotiamine and 100 mg Thiamine TTFD in the mornings and another dose of Benfotiamine at lunch.  I try not to take any thiamine after four p.m. because it keeps my brain so energized and wanting to think... Oh, I do take a combination of another form of thiamine (sulbutiamine), Pyridoxine and Cobalamine for a pain reliever sometimes, but I can sleep after taking that.  But thiamine does help regulate circadian rhythm.   Make sure you're getting Omega Three fats! They'll help you satisfy that late night carb craving with fewer carbs.  Flaxseed oil, olive oil, sunflower seed oil.  Nuts and nut butters, like walnuts and cashews, are good, too, if you can tolerate them.    Try taking the 100mg thiamine HCl before your aerobics and see if there's a difference.  Sweet dreams! References: Network Pharmacology Analysis of the Potential Pharmacological Mechanism of a Sleep Cocktail. ......(Skip to Section Four) https://pmc.ncbi.nlm.nih.gov/articles/PMC11201840/ Effects of Melissa officinalis Phytosome on Sleep Quality: Results of a Prospective, Double-Blind, Placebo-Controlled, and Cross-Over Study https://pubmed.ncbi.nlm.nih.gov/39683592/
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