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Recently diagnosed with Celic disease


Babygirl877

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Babygirl877 Newbie

hi I’m Stephanie from Saginaw Michigan. I was recently diagnosed with Celic disease this month march 2025 on the date of the 17th I was scared my body was trembling from crying after I tmi threw up blood with undigested food. I thought that night that I was dying I texted my family and my close friends and my boyfriend scared. They told me to go in when they found me in the bathroom shaking leaning up against the bathroom wall with my hand over my mouth I’m 37. A year and a half ago I was diagnosed with diabetic gastropresis another problem that I didn’t want to ever have. The same night I was diagnosed with Celic disease  guess they had diagnosed me with gastritis which is another symptom of gastropresis. I am scared but as long as I have God my fam and my boyfriend by my side it helps me calm down. In other ways I know I’ll be ok. Everything has to be gluten free and I’m gonna try nervous and scared don’t know what to expect from this journey. 


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trents Grand Master

Welcome to the  forum, @Babygirl877! You may find that your gastritis and your gastroparesis improve once you begin following a gluten free diet consistently. But to arrive at consistency in eating gluten free can involve a real learning curve. This might help: 

 

Babygirl877 Newbie

Thank you so much 

Scott Adams Grand Master

Hi Stephanie, I’m so sorry you’ve been going through such a frightening and overwhelming time. A celiac diagnosis on top of gastroparesis and gastritis is a lot to process, and your feelings are completely valid. It’s wonderful that you have such a strong support system—leaning on them (and your faith) will make this journey easier. The gluten-free transition can feel daunting at first, but it does get better with time, and many people find relief once their body heals. You’re not alone in this! Sending you so much strength as you navigate these changes.

Babygirl877 Newbie

Thank you I know I will be ok and it’s a journey but I think gluten free lifestyle will help me with a little weight loss as well cause I struggle with this everyday. We don’t know what’s gonna be thrown at us.

Scott Adams Grand Master

If you replace the gluten products you normally ate with gluten-free versions, and I mean the breads, be careful, as many gluten-free products can be high in calories and low in nutrients (high carb).

  • 2 weeks later...
Kathleen Mostek Newbie

I just moved from Bay City. With gastritis, I found that conventional meds (Pepcid, pro tonic, sucrafate) made it worse. Peppermint tums (gluten free) saved me. There are additives in all meds. “Off the Wheaten path”, in Midland, is a drive for you….great sweets. Baynes in Freeland carries some “Third Coast” items, delicious! I also order from them, they are in Traverse City. 

You  have to keep a food diary! Even if you have been eating the same brands, keep checking labels.

Cosmetics, toothpaste both caught me! Even lip-balms. Pinterest has a lot of gluten-free tips and menus. There are apps that help you find eating establishments in your area.

lastly, hang in there….soon it won’t feel like a burden!


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    • Scott Adams
      This may not be the cause, it's pure speculation on my part, but for 10-15 years I had a tingling/burning/electric-like shock sensation that emanated from my right-neck upward across the right-side of my head. I was worried about having a stroke or something so got all sorts of tests done, including an MRI, which found not much--only a minor degenerative disk in my neck--which I just accepted as the cause. Fast forward to when I was ~45 and I was hit with shingles in the EXACT place that this sensation would travel--I ended up with a very painful case of shingles that felt like the right-side of my head had been set on fire, and had the blistering and pain that ran along the exact path of nerves that I had felt this sensation travel along for the prior 10-15 years. For me, this was a shingles warning, and all those feelings were likely inflammation in my nerves. Needless to say I've not had this since getting my shingles vaccines at 50.  Your situation could very well be something else, but I just wanted to mention this possibility because your symptoms sound similar to what I experienced. I'm not sure if you're in the age range to get a shingles vaccine, but it may be something to consider.
    • trents
      Welcome to the celiac.com community, @Richard Rusnak! The short answer is "No". Barley is a gluten-containing grain. The three gluten-containing grains are wheat, barley and rye.  Barley and rye contain less gluten than wheat but still should be avoided. Understand that smaller amounts of gluten may not produce a noticeable reaction in so far as symptoms go, but they still may be causing some inflammation in the gut. Products derived from gluten-containing grains should also be avoided, for instance malt and malt flavoring. 
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    • trents
      Sciatica came to mind for me as well. You might want to get some imaging done on your C-spine.
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