Stomach burning and neuropathy

[Colleen H]

Hello 

I'm not sure what to think . Seems no matter what I do I get sick.

I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off

My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !!

I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer 

This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞

Does any of these symptoms sound familiar to anyone?

The neuropathy is quite intense. 

What do you eat or drink after this happens 

Open to suggestions 

Thank you 

[Juliane]

Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…

[Colleen H]

Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free)

I add a very tiny amount of margarine less than a teaspoon. 

I did no't have any bread   

It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms.

My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it 

The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook.

Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems...

I wonder if I should fast because I'm not eating gluten . 

Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞

Any suggestions I am open... I am bedridden when this happens to me. 

Thank you Celiac community. 🙏🏻❤️

 

 

 

[Scott Adams]

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.

Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.