Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

New

HeatherMelissa

Recommended Posts

HeatherMelissa Apprentice
HeatherMelissa
Posted

Hi, well, my ped. just diagnosed my daughter today with celiac disease.

My daughter is 2 and a half and has had unexplained anemia for quite some time. Her blood tested positive tow out of three times, yet her endoscopy and colonoscopy came back looking great. The GI doc just retruned from a conference in Paris regarding celiac disease and feels confident in this diagnoses. I am actually relieved. I have felt this is what the problem was for quite some time. It feels good to start working on getting her healthy.

Shoot, I forgot to mention that she has Down syndrome also. Anyhow, she is an extemely picky eater. Seriously she eats yogurt from breaksafet, applesauce for a snack. Beans and Orzo (an orzo that I found made from lentil beans, gluten free) And chocolate pudding. Oh, and gold fish crackers. So, I know the crackers have to go, and I have found gluten-free cheese crackers on line, but she won't eat anything that is not shaped like a goldfish. The yogurt has corn food starch. The applesauce is OK. So, I guess my two questions are, anyone see any fish shaped gluten-free cheese crackers? And, how do you know is the food starch in food is safe? Oh, I am also pumping breastmilk for her since I have a 6 month old. Should I be gluten-free too?

Thanks, off to bed, my eyes hurt from so much reading! :blink:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lovegrov Collaborator
lovegrov
Posted

If the food starch is named, like corn, then you know what it is. If it says modified food starch you then have to call the manufacturer and ask if it's gluten-free because it could be modified wheat starch. Usually it isn't, but it could be.

Can't help on the others.

richard

chasesmom Newbie
chasesmom
Posted

Hi,

Gluten DOES travel through the breastmilk. If you are going to continue to pump breastmilk for your daughter, you should also be on a gluten free diet. It is great you are still giving her milk, it will continue to boost her immune system. Good luck finding the crackers, I have not had good luck finding a tasty cheese cracker my son finds appealing. Take Care!

Colleen

flagbabyds Collaborator
flagbabyds
Posted

You could always bake cheese crackers and cut them into fish shapes

celiac3270 Collaborator
celiac3270
Posted

Applesauce....as long as it's all apples...and some sugar, perhaps, it's fine.......oh, yeah, I just saw that you said you found one that was fine.

There are plenty of gluten-free yogurts...don't know which cause I'm still dairy-free; in the recovery stage. Scroll up and hit "site map" on the left...then find something that says something like "gluten-free products" or "gluten-free foods"....click that...you can look at a category of things: such as gluten-free sodas or gluten-free hotdogs/corndogs......etc.

Choc. pudding....Kozyshack makes a gluten-free chocolate pudding which I ate before going gluten-free and I loved it -- it's great. Many Jello products are gluten-free......someone might know if their choc. pudding is gluten-free?

I posted on some other post that you wrote.....oh yeah, in this section......anyway, good luck with the cheese crackers in the shape of fish.... :)

-celiac3270

HeatherMelissa Apprentice
HeatherMelissa
Posted
  • Author

Thanks everyone. I researched and her yogurt, applesauce and pudding are fine. We found a recipe for Pepperridge Farm Gold Fish, we are ordering a cookie cutter and everything :) And her soup is made with either potatoe, corn or wheat starch, whatever they have on hand. The rest of the ingredients are simple, so I think I 'll just try to make it myself. THANK YOU

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

      Thanks. Not a big thing, particularly because most likely it is "true" but not yet demonstrated.
    2. glucel
      - glucel replied to glucel's topic in Super Sensitive People
      16

      iron digestibility

      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

      Thanks for the thoughtful comment. You are right that the study’s main conclusion was cautious: the researchers found that inherited antibody-gene variants significantly shape the naïve B-cell receptor repertoire, including usage of some gene segments involved in celiac-related antibody responses, but they did not find strong evidence that polymorphisms in...
    4. knitty kitty
      - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      I have osteoporosis and have crushed three vertebrae. I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health). I tried Fosomax, but it tore up my insides. I prefer the supplements. I feel better and my bones feel stronger. References...
    5. knitty kitty
      - knitty kitty replied to Aileen Cregan's topic in Related Issues & Disorders
      5

      Coeliac And Cardio Vascular Disease

      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1. I am no longer on high blood pressure medication. I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine. The particular high blood pressure...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,003
    • Most Online (within 30 mins)
      10,442
    michelinagiggles
    Newest Member
    michelinagiggles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • glucel
      iron digestibility

      By glucel · Posted

      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      By knitty kitty · Posted

      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      Coeliac And Cardio Vascular Disease

      By knitty kitty · Posted

      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
    • gregoryC
      Walt Disney World Gluten Free

      By gregoryC · Posted

      Walt’s Hash
×
×
  • Create New...