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happy4dolphins

Can You Share More About Why You Felt Ok With Using This Lab?

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HI,

The process of ordering the tests on line was very easy and paying was also easy.

It's the back and forth information about weather or not it's more relyable then the blood work. IT's a lot of money, but I'm still interested in doing both my daughter and I. WE (hubby and I) are in deabate about weather or not it wil be usedful for us or if knowning that we react to the gluten is enough.

Now our bcbs said that all of those tests were covered based on the diagnosis they gave, provided it was from an approved lab. Entero Las wasn't on the "approved" list fro bcbs ppo.

SO, I did call the rheumatologist to talk with her and she said she'd done the celiac tests. But I got an e mail from someone saying that I need to ask for a celiac panel test. I would have thought the rheumy would have known to do that. SO there's some confusion there about why it wasn't done.

I do have both of the packages from Enterolab here, so If I change my mind. I"m guessing I can just do a reorder!?!???? I've been thinking maybe I'll do one now for me and do another one for megan later if I can't find any other approved labs here.

Now, does WHY is ENtero lab different, other then being in Texas?

Nicole


Dolphin Joy,

Nicole

gluten intolerant/ 2005

dd gluten intolerant/ 2006

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For me, I was gluten-free because I had figured out on my own that gluten was a problem. After some time gluten-free, I was still sick and wanted a celiac test. Now I know I wasn't really gluten-free because of hidden gluten and contamination.

The doc tested me for IgA only. He just wasn't real familiar with celiac. He also didn't mention that I should be eating gluten for the test. The test was negative. I went to a GI several months later, was more gluten-free at the time as I was finding some of the hidden glutens. He told me to eat maybe a little more gluten than I was and he'd do an endoscopy and colonoscopy in 6 weeks. Now I know six weeks wasn't enough and a little gluten wasn't enough either. Those tests were negative, too, yet I spent that six weeks VERY ill. That should have been enough proof for me!

Since I have kids and knew Enterolab had genetic testing, I just wanted someone to tell me I wasn't crazy. So, I used it. I recommend it to people who either have negative testing yet know they have a reaction, or to someone who is already gluten-free because I think it's ridiculous to go on a gluten challenge (especially after having been on one) if you're feeling better off gluten.

I was happy with their service and my dietary response for both the gluten and the casein proves the test were correct for me. I went into denial about the casein, but eventually had to give it up.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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I used them to get the genetic test for my 2 year old daughter. I was recently dx with celiac; my daughter does not have any sympotms so the dr's won't test her, so I just decided to get the gene test done so I know if I ahve to worry about it in the future - turns out I do :(

They were very easy to use and their genetic test was cheaper than Kimball labs (the other one I checked out).

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I used it for my daughter because I suspected her tummy aches were from gluten but the regular blood tests at the doctor were negative. She was tested several times from the time she was 1 until she was 8. My grandmother had celiac and I had read the blood tests were not reliable. My daughter said she felt better gluten-free but the doctors said she didn't need to be on the diet. They thought she was anxious. I thought if I did the Enterolab test and she was negative, I would finally give up the idea that gluten was behind her troubles. Her test was positive so I tested myself and my other daughter.

We were also positive even though we were unaware of any gastro problems. Enterolab suggested we try the diet and see what happened. My mother is also gluten-free even though her biopsy was negative. She also encouraged me to try the diet. Within 3 days, I could see huge differences in the way I felt. That convinced me to have my daughter try the diet. She also feels much better.

Because we had such success with the gluten sensitivity test, I have gradually had other tests done by Enterolab. It turns out we are all casein intolerant and that has made a difference for us, too. Because their results seem to have worked for us, I trust them. My husband is still somewhat skeptical but even he had the gene test done by them. However, when he came up with 1 celiac gene, he said that made him distrust them even more. But he doesn't argue any more with the results we are seeing by changing our diets.

I did not submit our tests for insurance reimbursement. I like that not being part of our record.


Karen

gluten free 4/06

casein free 7/06

DQ1, DQ8

Daughter (11) gluten free 5/06, casein free 6/06

Daughter (9) gluten free 3/06, casein free 7/06, soy free, trying peanut free

vegetarian

gluten lite on and off since 1999

All dx'ed by Enterolab

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I was gluten light (due to allergy testing) for 1 1/2 months prior to ordering the enterolab tests. After reading more about enterolab and their test I decided to have it done for our whole family. My doctor was willing to test me but since I had been gluten light (very light) I figured it wouldn't come back positive. Me and my children did not have obvious symtpoms prior to going gluten free. Now we all have stomach distress/intestinal distress until it clears our systems.

One thing I found interesting aside from the genes was that I tested IgG intolerant to gluten, soy and dairy; but only IgA intolerant to gluten and soy. I am dairy free as well due to my allergy/intolerance though.

I also did not submit it for reimbursement. From what I understand insurance doesn't cover much of it unless your deductible has been met.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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