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Hidden Gluten?

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Ok, well the three replies I have gotten have been AMAZING! Thanks to you all so much, but I already have another question. What is hidden gluten and how do I know if it is there if it is "hidden"?


Diagnosed Fibromyalgia March 2007

Mom to Katharine, 5 years old diagnosed Celiac Disease Sept 2006

Peanut allergy

Michael 3 years old diagnosed infant reflux at 6 weeks

Dairy Soy allergy until 22 months

Neg blood tests and biopsy Feb 2008

Positive gluten-free dietary response

You may have to fight a battle more than once to win it.

Margaret Thatcher

Fall down seven times stand up eight.

"I've decided that after air, water, and dirt, the next most common substance on the planet must be gluten!"

Toni Nolte, Overland Park, Kansas

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That one I'm not as sure of.....someone else will jump on.

From my very limited understanding it is gluten that is not disclosed (ie....flavors(ings)). Some companies are really good at disclosing, others aren't. Of course, then you also have the possible cross contamination even with gluten free food since a lot of it isn't made on dedicated lines. Some people react, some don't. Sorry I couldn't be more help, but I'm looking foward to the answers.


Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)

The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Hidden Gluten-----

Let me try and I am sure others will post.

When you buy shampoo, have you ever read the ingredences (they don't even sound like english), but many of those strange words do contain gluten. That is why it is always good to call the company. Write down the 1-800 number and call when you get home from the store, if you want to buy a new product.

Cosmetics, shampoo, lipstick, soap, toothpaste, vitamines, suppliments, BC pills., shaving cream.. anything that can be ingested. Call the company.

Natural flavors, Artificial ingredences are always a concern.

Manufactured on lines that may contain, peanuts, wheat, soy, etc., also a concern.... Cross Contamination issues to those that may be sensitive.

I hope that this was helpful.


Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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someone else had a post for the newly diagnosed that has lots of brands that will list rye, oats, barley, and wheat on their labels if it's hidden in anything

This is from another post by TCA i think....she made it up as a list for the newly diagnosed and has lots of brans that will list that stuff:

I've seen a lot of posts lately asking how to get started. Why don't we make a thread of things to do to get started post diagnosis? That way we can direct new people to this thread to see the great ideas. All you old pros, add your info in. I'm still relatively new to this (9 mos.), but these are some tips that would have helped me:

1. Take a breath!!! You're not going to be able to do this overnight, but it will all come together. We're all here to help, so try not to panic!!!

2. Buy some gluten free treats that make you feel like you can eat!!! I highly recommend Enjoy LIfe snickerdoodles, Chebe breads and pizza crust, Cause you're Special (glutenfreegourmet.com) and Pamela's brands (on sale now at amazon .com), and Tinkyada pasta. If you don't have a good health food store near you, glutenfreemall.com is a good place to start and order from.

3. Go through your pantry and call the 1-800 #s on the backs of the package to see if they're gluten-free. Ask the manufacturers for gluten-free food lists. Most are great about this and will also send you coupons. The web also will have some companies' lists. This takes some time, but it helps you identify what you're already using that could be gluten-free.

4. Do the same with your med cabinet. Call about any drugs you take. This is sometimes harder to get info on, especially with generics. Vitamins, pain killers, cold meds, topical meds, everything has to be checked.

5. Move on to your health and beauty supplies next. This may not seem like a big priority, but it really is. Especially anything that goes on your hands. My daughter was VERY sick over some curel lotion we were using, then touching her bottles, etc. Unilever, lubriderm, and suave are some good companies for listing gluten ingredients, so that might be good to start with.

6. You don't have to throw out all your pans, but do be careful. I didn't realize this was an issue for months and months and got glutened several times. I wouldn't use cast iron, wooden spoons, colanders and scratched teflon pans. Other things will probably be ok if you wash them good and use the dishwasher!!!! Some people have used the self clean option on their oven to clean their cast iron.

7. Remember that a lot of pet foods have gluten. Wash your hands thoroughly after feeding animals. Be careful about the animals (dogs especially) licking you or the kids in the mouth or hands.

8. Be aware of Cross Contamination:

*Be careful for to have separate containers of Peanut Butter, jelly, butter, mayo, etc. Bread crumbs in common containers will cause a reaction. Squeezable condiments are great. We keep mayo, mustard, ketchup, and jelly this way.

*Make sure you thoroughly wash your hands between handling gluten and gluten free foods. Purell WILL NOT remove gluten, things have to be washed with gluten-free soap and water.

*Do not cook gluten-free food in a toaster that is used for gluten products.

*Glues often have gluten in them, so avoid using the paper towels with glue on them and watch him when playing with arts and crafts, washing his hands thoroughly afterwards. No licking envelopes, stamps, etc. No playing with the paper towel roll.

*DO NOT fry things in oil that has been used for things with gluten in them. Major source of contamination.

9. Stick with brands you know are safe:

These companies do not hide gluten and always list Wheat, Oats, Rye, or Barley if they use them:

Aunt Nelly's

Balance Oasis (Balance Bars)

Baskin Robbins

Ben & Jerry

Betty Crocker

Blue Bunny



Cascadian Farms

Celestial Seasonings


Country Crock


General Mills

Good Humor

Green Giant

Haagen Daz



Hillshire Farms


Hungry Jack




Kozy Shack




Martha White



Master Foods

Muir Glen



Old El Paso






Russell Stover

Sara Lee and their subsidiaries (Kahn's, Ball Park, Jimmy Dean, etc...)

Seneca Foods



Sunny Delight

T marzetti







also here is a link to the safe and forbidden list on this site which includes stuff that gluten is hidden in...


hope that helps



~Diagnosed with idiopathic autoimmune chronic hepatitus at age 7 (1992)

off medication and in remission since 2002

~Diagnosed with ulcerative colitus age 10 (1995)

on medication under control

~Diagnosed with Celiac's disease age 21, no symptoms (August 10, 2006)

been gluten free since September 6, 2006

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