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kalanfan

Research On Celiacs

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I suppose the 's' gets added because often we refer to ourselves as "Celiacs" meaning people who have Celiac Disease :)

Kalanfan, how did the paper turn out? I have a paper to write for my bio class, and I've been working on it, but was curious to know what sources you used, other than the people here :)


Sweetfudge

Born and raised in Portland, OR; Currently living in Provo, UT

Gluten-free since June 2006

Also living with Hypoglycemia since 1991

Dairy-free for good since summer 2008

Started IBS diet and probiotics at GI's recommendation - Fall 2008

Also avoiding: potatoes, beans, crucifers, popcorn, most red meat, coconut milk :(

Started eating a Paleo diet Spring 2011. Love it!

The grass is always greener where you water it.

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Well im a nursing student and we have to do a research paper on a topic of our choice. Since ive been doing the gluten free thing for a couple of months now i decided to do mine on celiacs. For my primary research i need some questions answered by people with condition so i devised a survey...it would help me greatly if you guys could fill it out.....

What age were you diagnosed with celiac's/gluten intolerance?

33

What were your most common symptoms?

anemia

What are your symptoms when you eat gluten now?

headache, stomach pain, bloating

Do you consider yourself more sensitive to gluten now that you try to avoid it?

yes

Did you or your doctor come up with the celiacs/gluten intolerance diagnosis?

my doctor, via biopsy

Do you have any other food allergies/intolerances?

yes

If yes what?

allergic to brazil nuts

Does anyone else in your family have celiacs/gluten intolerance?

brother has dermatitis herpetiformis

Do you consider the world celiac/gluten free friendly?

no

Explain.

Other than the obvious "whole" foods, it's difficult to find foods that are "safe".

Do you think we need better food labelling laws?

yes

Explain.

To make it clearer what foods are really gluten-free.

Does the world in your opinion need to be more educated about celiacs and gluten?

yes, simply because we are not diagnosed effectively.

thanx in advance for your time...

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What age were you diagnosed with celiac's/gluten intolerance?

47

What were your most common symptoms?

I wasn't aware of any, although I had always avoided bread products as they gave me bloating.

What are your symptoms when you eat gluten now?

cramping pain, fatigue, diarrohea

Do you consider yourself more sensitive to gluten now that you try to avoid it?

Yes

Did you or your doctor come up with the celiacs/gluten intolerance diagnosis?

Mr Dr did after I was dx with Hashis Thyroid , she did the testing.

Do you have any other food allergies/intolerances?

Not that I am aware.

Does anyone else in your family have celiacs/gluten intolerance?

I have 2 cousins that both have Hashis Thyroid and Celiac as well.

Do you consider the world celiac/gluten free friendly?

Its not too bad but you still feel a freak when eating out and asking for special menus.

Do you think we need better food labelling laws?

Pretty good here in Aust.

Does the world in your opinion need to be more educated about celiacs and gluten?

Yes!


Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.

Diagnosed June 2006 with adrenal insufficiency.

Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.

Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.

Trialled Dairy Free Diet and reacted positively to that challenge in January 07.

News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !

Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

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hey sweetfudge....

My paper is still in the process...its due on monday.....most of my research had to be primary research and the secondary stuff had to be scholarly journal articles so i had to search through the databases at school.....it was a lot of fun...lol

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