Jump to content

  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Somewhat New Celiac

*~jOaNnA~*

By *~jOaNnA~*
in Coping with Celiac Disease

Recommended Posts

*~jOaNnA~* Newbie
*~jOaNnA~*
Posted

Well hello yall, my name is Joanna, I'm 19 and I was just recently diagnosed with celiac disease in May 2006. During my senior year of high school I missed 28 days due to everything that comes along with celiac disease. At the time my family thought it was just a bug, then the last week of my senior year, I woke up with an unbearable pain on my left side. We went to the emergency room, they gave me morphine and everything, it was bad!!! They did x-rays, thinkin' it was kidney stones, then the Dr. thought it was, gall stones, then they they thought I had IBS (irritable bowl syndrome), then they thought this and thought that, finally I got into GI doctor and he said hey lets do this...so I was scheduled for a colonoscopy and an endoscopy a week after my high school graduation. They found out that I have celiac disease, it was the most dreadful thing to hear, b/c EVERYHING has wheat in it, but I was so happy to finally find out what was giving me such a fit and making me lose so much weigh! I use to go to the bathroom EVERYDAY at school, w/ watery D, I actually had went on myself several times b/c I had such a long way to walk to the bathroom and then tryin' to get the teacher to even let me leave class. My senior year was ruined, but...all i can do is look towards the future. In the beginning I use to dread going out with friends for dinner or to concerts or just to hang out in fear that it would hit me. I felt and still feel like whenever i'm nervous or stressed about something it hits me. Now I'm in my 1st year of college and I'm still dealing with it but I can't let it stop me in my tracks, i've got things I see myself doing in the future, and sittin' on my butt at home because I'm afraid "it" might hit me ain't it. I absolutely dread my public speaking class...I will be a CRAPPY MESS....haha...but I finally realized that their are more people with our problem than let on...so I do what I've got to do and give everything my best...ALWAYS...ALWAYS...ALWAYS REMEMBER: God doesn't give you more than you can handle!!

Oh yeah, i'm in college for nursing. So whenever I make it big i'm gonna let everyone know about celiac disease and then maybe people won't be so yucky about it!!

I LOVE YOU CELIACS!!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

Welcome! I love your attitude! Keep it up girl and yay on going to school for nursing and being able to educate more people about Celiac!

Jestgar Rising Star
Jestgar
Posted

Yea!! Kick some butt Joanna!!

jaten Enthusiast
jaten
Posted

Go, Girl!!!

That's the attitude. AND, you'll find that as your intestine heals more and more, you'll even be able to eat in public places (your own food), and be perfectly fine. In December I will have been gluten free for a year...and all is right with my world ;)

Canadian Karen Community Regular
Canadian Karen
Posted

Hi and Welcome!

I'm glad you got your answers without having to go years and years searching because the medical community is woefully uneducated about this disease! You lucked out with that GI!

You go and kick some butt in the nursing field! Every single person spreading the news about this disease helps!!!!

Hugs.

Karen

kbtoyssni Contributor
kbtoyssni
Posted

Welcome! We need more people like you in medical community!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat. In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue. A wedge...
    2. HelloFlowersGoodbyeFlour
      - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired. I haven’t been to an allergist in a few years, I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young...
    3. HelloFlowersGoodbyeFlour
      - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply
    4. cristiana
      - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways. I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux. Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following...
    5. trents
      - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442
    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Anyone else get a lot of upper respiratory infections?

      By trents · Posted

      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...