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Don't Think That Its Dandruff Anymore....

Canadiangirl

By Canadiangirl
in Dermatitis Herpetiformis

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Canadiangirl Apprentice
Canadiangirl
Posted

Thoughts!?!

I have had this patch of scalp for about 6 months that wont go away. I have tried all diff. shampoos, non-gluten, dandruff etc. I am starting to think it may be have something to do with celiac.

Its a specific patch on my scalp near the front of my head/hairline that peels no matter what I do. Sometimes itchy, but mostly just flakes in big chunks. Its gross! And it wont go away:(

-canadian girl

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LisaJ Apprentice
LisaJ
Posted

I had the same problem for about a year and tried every over the counter product there was - nothing helped at all. Finally went to the doctor and got a topical steroid for it. Worked wonders - I wish I would've gone to the doctor sooner!

lovegrov Collaborator
lovegrov
Posted

Sounds like psoriasis.

richard

lonewolf Collaborator
lonewolf
Posted
Sounds like psoriasis.

Richard beat me to it. I have psoriasis and it's just like this in my scalp. Unfortunately, it hasn't gone away by going gluten-free (or egg-free, dairy-free or soy-free). Cortisone cream should be helpful and you could also ask to try some Dovonex - it's a prescription Vitamin D cream.

stennis07 Newbie
stennis07
Posted

Yea... I wasn't convinced it was dandriff either. So I went to the derm and he was like..."well...uh...psoriasis"......OK. WELL... the stuff he's prescribed me hasn't been working. And it's RIGHT on my hairline--quite embarassing. ---Itchy, dry, flaky, red little bumbs.--- Grr.

I'm getting tested next week for celiac...so I'm thinkin this might be DH. The doctors havn't said ANYTHING about it...just that I may have celiac...(which I prolly DO have (my blood tests were high positive...but my scans were negative)>>>>soooo YA!! Tube-down-the-throat-time! :angry:

Oh well...I'm thankful that I have found doctors that are willing to do their job and figure out whats wrong with me>> it's been about 3/4 of a year....vs. some people where it may take years--*my prayers are with them*

ROM. 5:3-5

Generic Apprentice
Generic
Posted

I know that as DH heals it leaves a purple scar behind. Allot of people with celiac do suffer from psoriasis, and it tends to get better after going gluten free. Some people suffer from it regardless, if they are gluten-free or not. It can also be triggered by food allergies. My daughter's friend gets it when she eats pork or corn.

-Laurie

lovegrov Collaborator
lovegrov
Posted

I would go ahead and get tested for DH, but believe me psoriasis is completely unpredictable. The stuff I got got for my scalp has done little good, while the psoriasis on other parts has reacted in different ways. Some has disappeared completely, some has gotten better but is not gone, and some hasn't improved at all.

BTW, I didn't have psoriasis at all until after going gluten-free. You just never know.

richard

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Canadiangirl Apprentice
Canadiangirl
Posted
  • Author

this is all great feedback thank you! i will see my doctor about it....

canadian girl :)

debmidge Rising Star
debmidge
Posted

husband had patches on hairline which looked like psoriasis (forgive spelling) and in eyebrows and on middle of chest and after going gluten-free they are gone. For years we thought it was "psoriasis."

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    • Aretaeus Cappadocia
      Skin issues

      By Aretaeus Cappadocia · Posted

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Celiac flare years after diagnosis

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      Celiac flare years after diagnosis

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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
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