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  1. When I participated I didn't have to do a scope. They must be really getting down to the nitty gritty of this. Did they say whether or not the scope is done before or after the study meds? Just curious...
  2. I agree drugs are pushed way too much. I stand by why I participated. It is in hope of raising awarness, hoping they can give my dad a pill that will help him to not slowly kill himself, and cc issues.
  3. I have hope that there will be something available within in the next 5 to 10 years. I just hope it happens before it is too late for my idiot dad. If anyone at all has questions about participating let me know here or send me a pm. I'll be happy to help.
  4. I had a GI Dr. call me this morning from Virignia Mason (the hosp. where I particpated in the study). He told me that the phase I participated in went so well that the new study is focusing on using the At-1001 on newly diagnosed Celiac paitents. They want to know if it helps them heal faster. ...
  5. I participated in the study a year ago. I started in Nov. had to stop Dec. 24th due to a diseased galllbladder. I found out that I was recieving the actual test drug (not a placebo) and wheat flour in capsules. I am a person who is super sensitive and reacts horribly to gluten and I DID NOT get sick...
  6. Richard not to be rude, but they did not used to be gluten-free. I know this for a fact. My mom called and confirmed after I spent Thanksgiving night in the ER due to the butterball turkey my grandma made for dinner. (back then we ate at 2 P.M. for holiday dinners, not sure why). Either way...
  7. I have thrown up violently as an adult from accidental gluten. To make things more fun I usually have both ends going at the same time. (TMI sorry). I end up sitting on the can w/ a trash can on my lap. I would continue to do this to the point that I was severley dehydrated, delerious and passing...
  8. I'm hesitant to say go for the vacination. Shingles is just the Chicken Pox coming back to haunt you. Most people never get shingles others get them multiple times. My daughter got the at the age of 10 years old. She had chicken pox at 5 years old. She was treated by a Dr. both times with each outbreak...
  9. I went to the Mimi's near Magic Mountain and didn't get sick. They say they have a gluten free menu but they gave me a low carb menu. I told the waitress I wanted the gluten-free menu she told me they didn't have one. I told her yes you do. I showed her my Triumph dining book. I had her ask...
  10. My dad has that, but refuses to go gluten free. I am pretty sure it would be a night and day difference. I also would love to read any info any one might have.
  11. The FDA requires that it is listed whether or not any meat has had anything added to it. Not all self basting turkeys have gluten in them, that is an old myth. You need to check with each company on a case by case purpose. You may also want to buy a turkey breast and cook it sepperatly.
  12. Look into the americans with disabilities act, it may have some info that could help you. http://www.jan.wvu.edu/links/adalinks.htm
  13. Manna Mills is having a Gluten Free fair to promote celiac awarness and to let people sample gluten free foods for free. They are also offering helpful advise for people newly diagnosed or new to...
  14. I know Butter Ball wasn't several years ago, they injected some gluteney juice stuff into them. Not sure any more. I usually just get a "natural" trukey to stay on the safe side.
  15. I was diagnosed with celiac 18years ago. About 2 years ago they thought I had MS, I was having alot of the symptoms. After 2 different MRI's snd several trips to the nuerologist and normal doc., they couldn't figure out what was wrong with me. After talking to my mom I realized I had alot of the...