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NewtoGF

Blood Test Now Or Later On New C Diagnosis?

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Dr. suspects some form of Celiac disease in my 7 yr. old son. Headaches, slow growth, abnormal bowel movements, tired all the time, etc...

She said take him off wheat for a mo. and then see how it goes.

I want to know if I should insist on tests now or should I wait to see how he fares on a gluten free diet?

Heather

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Has your son had any bloodwork done at all? I would personally have the testing done before you put him on a gluten-free diet, especially if the dr suspects it. Once your son goes gluten-free, the test results could be skewed.

I hope that you can find some answers and get your son feeling better soon!


Kim

"Life isn't about how to survive the storm

but how to dance in the rain."

Positive bloodwork 1/9/06

gluten-free since 1/12/06

Very positive dietary response

DS (12 years old)

Biopsy 7/7/06 ~ Diagnosed Celiac 7/12/2006

gluten-free since 7/15/2006

DD (almost 6)

HLA-DQ2 positive

Celiac Bloodwork negative 2 different times

Still eating gluten for now.

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Thanks Kim,

No, he has not had any blood work done lately. Several years ago I had him tested for thyroid problems. He was tested for diabetes on Fri. (urine test). Nothing else. I think she is just guessing.

Heather

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Dr. suspects some form of Celiac disease in my 7 yr. old son. Headaches, slow growth, abnormal bowel movements, tired all the time, etc...

She said take him off wheat for a mo. and then see how it goes.

I want to know if I should insist on tests now or should I wait to see how he fares on a gluten free diet?

Heather

I'd do the tests now - before going gluten-free - because if the doc is right and the gluten-free diet DOES work, you're not going to want to have to challenge him (give him gluten) to get an accurate test - especially if eliminating wheat zaps his problems.


DS1&only(so far!): born 7/12/05 * chronic diarrhea from age 5 mos. * WF/gluten-free from age 9 mos. * NO MORE LOOSE POOP!

10/19/2006 Tested positive for DQ2 Heterodimer (HLA DQA1*05/DQB1*02) and negative for HLA DQ8. Have followup appt. with ped. GI in December!

Update: Told GI I was unwilling to do serum tests (give him gluten). GI said if what I was doing works, then keep on keepin' on! Happy, healthy & nearly two now! Occasional rash & loose poop from drinking bathwater, so switching to all gluten-free beauty/personal products.

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The clincal practice guidelines for celiac disease recommend doing the tests first. It is much harder to get an accurate diagnosis if you eliminate gluten before having any testing done.


Suzie

London, ON, Canada

celiac disease diagnosed by pos tTG March 2006 and pos biopsy June 2006

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make sure your doc does a total IgA serum and a Ttg IgA.


Christine

15 year old twins with celiac, diagnosed dec. 2005

11 year old daughter with celiac diagnosed dec 2005

17 year old son with celiac gene

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