Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Blisters On Lips..doing Gluten Challenge..


MinxyMandy

Recommended Posts

MinxyMandy Apprentice

:(

Hello everyone..

My names mandy ..

After a long 14 month sof illness ..misery giving up my home etc..I THINK and hope I am on the right track..

I am doing challenge ready for biopsy as been so ill it all started after I had surgery and loads of antibiotics ..oh and also got made redundant after reporting sexual harrassement..so could be any one of these things that have triggered it..

My main symptoms are gi symptoms when it all started 14 months ago I had massive distention, constipation, diarreah, seizures, really bad deppression, anxiety, low self esteem, heart burn, pains in stomach, thick rash thing at base of my bum crack excuse my explanation!!!! I do suffer from herpes and thought it was that but I dont think it was now I am looking into this whole celiac thing..

Also, today my lip looks like I ve had btox and I have what I thought was a cold sore but does anyone get lots of little blisters on thier lips? I have 4 on my lip and one on my skin below my lip and you dont normally get them there do you??

May be its the stress of the challenge as I feel so ruff all the time and I am going out of my mind stuck in here as never feel up to go anywhere and I ve been signed off work til test got another 2 1/2 weeks yet ..

Oh well at least the sun is shinning ahey ...hope your all getting better..better..or recovering well

Take care everyone

:)Mand

and I have blisters

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jesse Newbie

just spreading some thoughts to people:

anyway, anyone who sees this should attempt a "no table salt or iodized salty food diet" for a few weeks. if you have the same lip/mouth area dh/acne then its worth doing. i have also changed my soap from the dial gel which you need the sponge thingy to a bar of white ivory.

if you do this lmk how it works out for you, also kosher salt is okay, so if you do and want to go out to eat bring a little w/ you.

only the best,

jdog

confused Community Regular
just spreading some thoughts to people:

anyway, anyone who sees this should attempt a "no table salt or iodized salty food diet" for a few weeks. if you have the same lip/mouth area dh/acne then its worth doing. i have also changed my soap from the dial gel which you need the sponge thingy to a bar of white ivory.

if you do this lmk how it works out for you, also kosher salt is okay, so if you do and want to go out to eat bring a little w/ you.

only the best,

jdog

thanks about that tip about no salt. I have Dh and my son gets the mouth and lip blisters. So I hope this will make it better for both of us.

I only use dove, is that close enough to white ivory, or shouild i change to that.

paula

jesse Newbie

not sure about dove, but i was told that as long as its not colored soap then it should be okay and that is what im going by. not exactly the most scientific approach, but it seems to be fine.

anyways, w/ the salt though i do recommend that you avoid iodized salt and anything salty for a few weeks and see how it goes. it can difficult, but just eat more fruit and you'll be fine!

lmk how it goes,

jdog

ravenwoodglass Mentor
thanks about that tip about no salt. I have Dh and my son gets the mouth and lip blisters. So I hope this will make it better for both of us.

I only use dove, is that close enough to white ivory, or shouild i change to that.

paula

Stick with your Dove. They are safe. It is not the coloring in the soaps and shampoos and such we need to be careful of as 'Vitamin E', may be from wheat or soy, oats, wheat germ oil, and some of the vehicles for fragrances. Most products have a phone number or web site the safest thing to do with everything is to call the number. As a bonus many times the company will offer to send coupons or samples. Makes it doubly worth the call.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    2. - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    3. - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    4. - Peace lily commented on Scott Adams's article in Latest Research
      2

      New Study Reveals How the Immune System Learns Which Foods Are Safe to Eat

    5. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442

    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
    • Aretaeus Cappadocia
      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
    • Jmartes71
      Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during the same time I was dealing with covid, digestive issues, eyes and skin.Considering I " should  be fine" not consuming gluten/wheat, taking vitamins for sibo and STILL feeling terrible.It has to be parasites. I also take individual eye drops prescribed, could there be an issue there? Anyways my pcp thinks I need therapy because again they don't acknowledge my digestive issues because in my records it shows im fine, hintz the reason I had to go back to bay area hospital:(  I thought skin issues maybe sibo related but I feel and have seen and seriously trying not to think about it because it's disgusting. 
×
×
  • Create New...