Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Am I Going Nuts !


bigscott

Recommended Posts

bigscott Newbie

Hi folks, new on the forum but have been diagnosed with celiac disease, biopsy & blood tests. I have been gluten-free for about a week now and feel a very slight improvement although my consultant told me I have quite severe damage to stomach lining and surrounding areas...since going gluten free I have been experiencing some quite weird symptoms, forgetfulness, shaking right hand, cramp, sore neck & with helping my 10 yr old to do his school homework an inability to even do simple arithmetic....this was the worst feeling as I am very good at Maths.

Has anyone came across this before.

Thanks,

bigscott

Aye Yours.

XX


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I'm just guessing here but if you had severe damage to the villi in your small bowel, then your physical condition is possibly still deteriorating because one week is not enough time to heal significantly and start restoring all the nutrients your body is missing. I had the brain fog and muscle and joint aches and pains for week and weeks and weeks.

If these conditions continue to get worse, though, I'd see your doctor.

richard

bigscott Newbie

Thanks Richard.

bs

darlindeb25 Collaborator
:D hi big scott and welcome-----i too now realize i had symtoms such as yours--at the time i didnt relate it to celiacs--i read things in here and i think--wow, that was me---after going gluten-free, for months i had terrbile hip pain at night--it would even become a part of my dreams--whatever i was dreaming about, i would be in tears from the hip pain and i would wake up in tears hurting so bad--from what i read in here, it sounds normal for recovering celiacs to go through these little quirks---now whenever i forget something i tell my man its the celiacs fault ;) there has to be some pluses to having this disease ;) i promise, in time you will start feeling better :rolleyes:
bigscott Newbie

Thanks Deb,

I'm still trying to take all of this in...up until 2 years ago I was the fittest guy on the planet and a soccer coach, although I coach twice weekly it takes an awful lot out of me and at times trying to explain to others what it feels like also takes it out of me...It just got to the stage I kept it to myself for fear of sounding like a whinge who was always complaining.

I am glad now that I can focus and look forward to improve things and it has helped reading other peoples experiences.

Thanks a lot,

Aye Yours

BS ;)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,036
    • Most Online (within 30 mins)
      10,442

    NCGS Celia
    Newest Member
    NCGS Celia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Vitamin A is important for vision health. But be careful in supplementing it as it can lead to toxicity. Research it and consult with your medical professional. I do not have a definite answer to your original question but I was pursuing the possible cause of nutritional deficiency. But your visual deterioration could be unrelated to your celiac disease so don't rule that out.
    • Name
      Currently 19. Doctors think I was 1 year old when celiac started, but I wasn't diagnosed until 18, because they didn't do lab work on minors. I've been on a strict gluten-free diet for 14 months now. For example only certified gluten-free nuts and I've researched best brands a lot. I take B vitamins, vitamin D, vitamin C, Curcumin with black pepper, black sesame and green tea extract, magnesium, iron, and a little selenium and zinc, beef liver capsules. I recently had my vitamin and mineral levels retested and D is the only one I don't have enough of now. I had my eyes tested at 17 and they were good back then.
    • Scott Adams
      Not everyone with dermatitis herpetiformis needs to avoid iodine. DH is caused by gluten exposure, but iodine can worsen or trigger flares in a subset of people, especially when the rash is active or not yet controlled by a strict gluten-free diet. Some people react to iodized salt, seaweed, shellfish, or iodine supplements, while others tolerate normal dietary iodine without problems. In most cases, iodine restriction is individualized and often temporary, not a lifelong rule for everyone.
    • trents
      Questions: How old are you now? How long ago were you diagnosed as having celiac disease? Do you practice a strict gluten-free diet? Are you taking vitamin and mineral supplements to offset the nutrient malabsorption issues typical of celiac disease and if so, can you elaborate on what you are taking?
    • Name
      My vision was good as a teen and now has gotten worse in the last year. Could that be caused by my celiac disease?🤓😎🥸👓🕶️
×
×
  • Create New...