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confused

Test Results Are In

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Well today I got the results back for my stepson, and all of them came back elevated, but the malabsorption. But he does carry one celiac gene and one gluten gene. So since he does not have malabsorption is that a good thing or bad, or was it cause he was already gluten free for a few weeks prior to testing.

paula


gluten, casein and soy free

on low carb/low sugar diet

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It means you caught the disease before it did so much damage that he wasn't absorbing food.


"But then, in all honesty, if scientists don't play god, who will?"

- James Watson

My sources are unreliable, but their information is fascinating.

- Ashleigh Brilliant

Leap, and the net will appear.

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Is anyone else this subtype

Serologic equivalent: HLA-DQ 2,1 (Subtype 2,6)

Im wondering if i should get him a thing here to talk to other teenagers. Does anyone else have their kids on here.

paula


gluten, casein and soy free

on low carb/low sugar diet

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I am glad you now know and can get him feeling better.

Having him come on the board is a great idea. I would not even ask him his screen name so he could feel he has the freedom to ask whatever questions he needs to. Having other kids to talk to could help alot. The more responsible he feels for his diet the better he may comply, if that is even an issue.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Well today I got the results back for my stepson, and all of them came back elevated, but the malabsorption. But he does carry one celiac gene and one gluten gene. So since he does not have malabsorption is that a good thing or bad, or was it cause he was already gluten free for a few weeks prior to testing.

paula

Dear Paula,

I am glad you found out early! Had he waited until later to do the diet, he might have ended up with much worse health issues. It is great he has no malabsorption. That means you got him diagnosed before it was severe. I think it would be a great idea if you could get him to talk to others!

There may be some of his friends who are sick and do not know what to do. This could help people!

Sincerely,

NoGluGirl


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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Thanks everyone. I am happy that we now know. I am now trying to talk my husband into having the gene test done. I want to know if the celiac gene came from him or my ss mom. I am sure it came from the bio mom since the sister has celiac. But i want to be sure for the sake of the rest of the kids. But he is afraid to find out. So we shall see if i can make him do it lol.

Ok this might be a dumb question but i was wondering, ,since there was no malabsorption does that mean his body was absorbing everything that it was supposed to. Or will he now grow and gain weight from being gluten free. He is very skinny and not as tall as his classmates, and it has made him very sad, so i was hoping maybe being gluten free now that he would grow.

paula


gluten, casein and soy free

on low carb/low sugar diet

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