Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Thanks You


confused

Recommended Posts

confused Community Regular

I just wanted to say thank you to everyone that has been so supportive and helpful these last few months. I do not think i could have made it threw this time without all of you. I am so happy to be finally getting to be normal (whatever normal is) and loving it. I am now coaching my sons baseball team and im helping out in tball, golf and gymnasitics with the other kids. It is so nice to be out for 3 hours at one time and not care that there is not a bathroom were you at. It is nice not to have anxiety when out with others. It is also nice not to look 9 months pg all the time, now only like 4 lol. It is so nice to cook dinner and not worry how you are going to make foods like you did pre-gluten free days, that you just know how to cook the healthy way. It is so nice not to have to come on line everytime i want to eat something, or spending time looking up every little thing in life. it is so nice not to have the need to read every single post. And i could have not got to this point without all of you.

Last night i even talked to a 2 people and explained celiac to them and they were fascinated to learn about it. It is so nice when talking about the disease just becomes second nature and u are not stumbling at words trying to explain the disease that you and your son have. I finally know that celiac is just an part of my life, it is not who I am.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

Paula,

glad to hear you are feeling better!!! This board is a blessing in disguise, you walk away with more info and some great friends. It helps all around. :)

NoGluGirl Contributor
I just wanted to say thank you to everyone that has been so supportive and helpful these last few months. I do not think i could have made it threw this time without all of you. I am so happy to be finally getting to be normal (whatever normal is) and loving it. I am now coaching my sons baseball team and im helping out in tball, golf and gymnasitics with the other kids. It is so nice to be out for 3 hours at one time and not care that there is not a bathroom were you at. It is nice not to have anxiety when out with others. It is also nice not to look 9 months pg all the time, now only like 4 lol. It is so nice to cook dinner and not worry how you are going to make foods like you did pre-gluten free days, that you just know how to cook the healthy way. It is so nice not to have to come on line everytime i want to eat something, or spending time looking up every little thing in life. it is so nice not to have the need to read every single post. And i could have not got to this point without all of you.

Last night i even talked to a 2 people and explained celiac to them and they were fascinated to learn about it. It is so nice when talking about the disease just becomes second nature and u are not stumbling at words trying to explain the disease that you and your son have. I finally know that celiac is just an part of my life, it is not who I am.

paula

Dear Paula,

I am so happy for you! It is great you are doing so well! You sure are busy! It must be nice to be active again! I was amazed when the reflux was better. I did not think anything would help it because it was so bad. Who would have thought gluten could cause such trouble?

Sincerely,

NoGluGirl

confused Community Regular

Thank you both, it is so nice to be getting better. Of course I am not 100 percent better, but i bet i am at least 75 per cent better. I think also being busy helps alot cause i dont have time to sit around and feel sorry for myself or have the time to sit here all day and think what to eat or cook, now i just grab the foods i like and go.

I just hope some day I can get my step-son to feel as well as I do, he is still having rough days, but i think he is still eating gluten on occasion. But i am going to wait til all all of the allergy testing is done on him, then he will be getting serious on this plan.

paula

NoGluGirl Contributor
Thank you both, it is so nice to be getting better. Of course I am not 100 percent better, but i bet i am at least 75 per cent better. I think also being busy helps alot cause i dont have time to sit around and feel sorry for myself or have the time to sit here all day and think what to eat or cook, now i just grab the foods i like and go.

I just hope some day I can get my step-son to feel as well as I do, he is still having rough days, but i think he is still eating gluten on occasion. But i am going to wait til all all of the allergy testing is done on him, then he will be getting serious on this plan.

paula

Dear Paula,

75 percent better is great! I agree that staying busy is good. I never have been good about sitting still. I do not know why. I suppose I am hyper! Sitting around feeling sorry for yourself really does not do any good, as you said.

I am sorry to hear your step-son is having such a difficult time. I was going to ask about him in my last post. I think he needs to be extremely strict on the diet. If he is not, the results will not be very good. My reaction is so bad, I have not cheated once in the 8+ months I have been gluten-free.

Sincerely,

NoGluGirl

confused Community Regular

Well see I am not positive if he is cheating, he just has not felt very good since his first round of allergy testing. He has huge circles around his eyes, he is always tired, and just hormonal(not sure if that is cause he was grounded for running up an 121 buck cell phone bill) and he has had to work the bill off. He has also had a very bad cough since last week. His mouth and lips look fine and that is mostly the first sign i can tell he has ate gluten. So maybe it is just the allergy testing that has him sick. Plus i think he might be hormonal cause his mom kept saying she was coming this weekend and said she would call last friday to confirm and she has not called.

I guess it is just easy to blame everything on gluten til you look at the big picture.

paula

NoGluGirl Contributor
Well see I am not positive if he is cheating, he just has not felt very good since his first round of allergy testing. He has huge circles around his eyes, he is always tired, and just hormonal(not sure if that is cause he was grounded for running up an 121 buck cell phone bill) and he has had to work the bill off. He has also had a very bad cough since last week. His mouth and lips look fine and that is mostly the first sign i can tell he has ate gluten. So maybe it is just the allergy testing that has him sick. Plus i think he might be hormonal cause his mom kept saying she was coming this weekend and said she would call last friday to confirm and she has not called.

I guess it is just easy to blame everything on gluten til you look at the big picture.

paula

Dear Paula,

There is another possibility. He may of other sensitivities besides gluten. Is he still eating dairy? That could be trouble. It tends to cause sinus issues. If he is stressed out, that only adds to it. I understand why you would make him pay that bill off, though! That is a lot of money!

Sincerely,

NoGluGirl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

NoGluGirl,

No he is not eating dairy anymore, well that i know of lol. We do have soy milk that he drinks with his cereal in the morning. So maybe soy is giving him problems like it did me. I am now gluten dairy and soy free. Next friday they will be testing him for foods, i cant wait to find out if he is allergic to other foods,

Im sure all the wind we have is not great for his other allergies either. The baseball fields are like a completly dusting and it is terrible. My eyes are even so red from being out there. I think I will go buy us both sunglasses later on today so we can get some protection tonight.

Yes he got grounded and we gave him a list of chores that hd to be done, and we blocked text messaging from his phone. He was not an happy person, but we told him he had 100 free text, cause he had 300, but he decided to text over 900 times. I think if we didnt catch on this month when we did, he would have easily gone over 2 or 3 thousand cause he was doing like 80 an day. but we caught on on the 3 day of hte billing cycle, thank goodness. I guess it just shows 13 yr olds dont need cell phones lol

paula

SunnyDyRain Enthusiast
Yes he got grounded and we gave him a list of chores that hd to be done, and we blocked text messaging from his phone. He was not an happy person, but we told him he had 100 free text, cause he had 300, but he decided to text over 900 times. I think if we didnt catch on this month when we did, he would have easily gone over 2 or 3 thousand cause he was doing like 80 an day. but we caught on on the 3 day of hte billing cycle, thank goodness. I guess it just shows 13 yr olds dont need cell phones lol

paula

Holy Crap! Who is he texting, and about what?

I used 12 text messages last mo, and that was alot!

confused Community Regular
Holy Crap! Who is he texting, and about what?

I used 12 text messages last mo, and that was alot!

Well the ones that i read were dumb, there was like 10 that all they said was O and that is all. He was texting like 10 people and said practically the same thing to them all. I have no idea what the 900 said last month, But at least now i know why he was getting F's on homework assignwmnts, when he was in his room supposedly doing homework he was texting instead.

I know I use like 6 a month, i just text hubby when i need him to bring me home somehting lol, or when he or I are at the drs.

paula

NoGluGirl Contributor
NoGluGirl,

No he is not eating dairy anymore, well that i know of lol. We do have soy milk that he drinks with his cereal in the morning. So maybe soy is giving him problems like it did me. I am now gluten dairy and soy free. Next friday they will be testing him for foods, i cant wait to find out if he is allergic to other foods,

Im sure all the wind we have is not great for his other allergies either. The baseball fields are like a completly dusting and it is terrible. My eyes are even so red from being out there. I think I will go buy us both sunglasses later on today so we can get some protection tonight.

Yes he got grounded and we gave him a list of chores that hd to be done, and we blocked text messaging from his phone. He was not an happy person, but we told him he had 100 free text, cause he had 300, but he decided to text over 900 times. I think if we didnt catch on this month when we did, he would have easily gone over 2 or 3 thousand cause he was doing like 80 an day. but we caught on on the 3 day of hte billing cycle, thank goodness. I guess it just shows 13 yr olds dont need cell phones lol

paula

Dear Paula,

I am glad he does not have dairy either. Soy might be a problem. It could also be the carageenan. Other members have warned me about that, too! It is sort of like msg. Who knew? Maybe you will find more answers from the allergy testing. Let us know!

It gets pretty windy here as well. That can be bad for allergies. We live near the corn fields. The dust piles up in our house like you would not believe! My eyes are extremely dried out all of the time, and burn off and on.

I cannot believe he send so many text messages! We never text! The price is rediculous! I am surprised you let him live! Since his grades are going down, it is obvious that needs to go! I never saw why people get 12 year olds and even children those things. It is not like they need it for business! I know you want to keep in touch with them, but those things can be such a distraction. They actually banned them at my school for that reason.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to yellowstone's topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

    2. - knitty kitty replied to yellowstone's topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

    3. - Sheila G. replied to Sheila G.'s topic in Related Issues & Disorders
      11

      No red meat

    4. - yellowstone posted a topic in Coping with Celiac Disease
      2

      Hypoglycemia, ketones in urine and weight lost. I need advice.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,002
    • Most Online (within 30 mins)
      10,442

    Boikanyo William Mompati
    Newest Member
    Boikanyo William Mompati
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Your post doesn't mention if you are seeing Doctors about this and what they had to say, or if you are just trying to manage it by yourself. If you aren't getting medical support, that is the first place to go. On the other hand, if you've been on a diagnostic odyssey with Dr after Dr being perplexed, consider getting your genome sequenced (search for "whole genome sequencing"). It's not guaranteed to get you an answer, but if your symptoms are caused by a genetic condition you might get the answer that is stumping standard differential diagnosis. These days there are quite a few companies offering this service. I wish I could tell you which one was best but I've been out of that field for a decade. Talk to your Dr about this and see what they think. Price is probably ~$500-$1,500 including the sequencing and detailed reports. Sounds like a lot, I know, but consider that 25 years ago just the sequencing (no reports) cost $2.7 B and took 3 years to complete.
    • knitty kitty
      @yellowstone, You poor thing!  I'm not a medical doctor, but it sounds like "Refeeding Syndrome".   I suggest you seek medical attention.   Refeeding Syndrome occurs when your body doesn't have enough of the necessary vitamins, especially Thiamine, to turn sugars (from the fruit, juice, and honey) to turn provide energy.   This can occur in Malabsorption due to Celiac Disease.  Malabsorption prevents the absorption of B vitamins, especially Thiamine. The B vitamins and Thiamine cannot be stored long in the body.  When you run out of Thiamine, your body burns fat for energy which produces the Ketones, hence your weight loss. With medical attention, Thiamine and other B vitamins need to be replaced before giving any more sugars.  Doctors can give you an IV containing B vitamins including Thiamine, called a "banana bag".  Riboflavin  Vitamin B2 causes the yellow color.   Doctors can also monitor your electrolytes which can become unbalanced and cause further serious health issues. I've experienced Refeeding Syndrome.  It's very scary.  Health can deteriorate quickly in Refeeding Syndrome.  It's correctable, but complicated.   I strongly urge you to get professional medical attention as soon as possible.   Our prayers are with you! https://my.clevelandclinic.org/health/diseases/23228-refeeding-syndrome Thiamine Deficiency in Self-Induced Refeeding Syndrome, an Undetected and Potentially Lethal Condition https://pmc.ncbi.nlm.nih.gov/articles/PMC4295429/ Keep us posted on your progress!
    • Sheila G.
      Thank you for sending me this information 🙏🏻❤️✌️
    • yellowstone
      Due to malabsorption, I have hypoglycemia and I excrete ketones in my urine. I am losing a lot of weight. I don’t know what to do — I drink juice, eat fruit, take honey, but I don’t notice much improvement. Any advice?
    • glucel
      I ate sprouted buckwheat and hard boiled egg last night instead of cereal and got extra 1/2 hour sleep but more importantly feel better this morning. I do sleep in cycles that seems to rotate btwn 3 and 6 hrs but I will monitor next time I make a pot. Bwheat is a complete protein with good amounts of thiamin, magnesium, fiber and iron. High carb but much lower glycemic and much healthier than refined flour cereal.
×
×
  • Create New...