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JessieFree

Do I Have Celiac?

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hello all I am a 23 year old female. For the last for years I've had a problem with belching I saw a gastro specialist about 4 years ago who told me nothing was wrong. I just figured it was in my head. i now have a 3 year old a year after he was born I dropped a lot of wait and stopped having a period. I was trying to lose the baby weight so I figured the excessive weight loss was due to my diet and exercise. But I was still eating alot, always hungry, and still losing wait. It's been 2 and a half years and I have yet to get a period my gynecologist told me I just needed to eat more and gain weight guess he though I was anorexic. Well neway bout 4 monts ago I started having excessive gas and bloating I figured I was eating to much or something but it never went away no matter what I took and my stomach that has always been flat is sticking out all the time sometimes I look like I'm pregnant. I get muscle cramps like I used to when I was a kid and tingling in my body. My gastro specialist said my biopspsy was positive for celiac but he still wants to do a blood test and even if thats negative he still wants me to do the gluten-free diet for 3 months with a dietitian and if I don't feel better run more tests. So do I have it or not? I've only been gluten-free for a few days now I think I feel better but I've thought that b4. Does this sound like a true match? Why can't he give me a yes or no answer I'm tired of tests

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If you had a positive biopsy you definately have it. Go gluten-free completely and forever. Welcome!


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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If you have a positive biopsy you have celiac. There is no way around that one.

As far as other tests, it depends on what they are looking for. You don't need a celiac panel since the biopsy is the gold standard for diagnosis to most doctors.

Definately go gluten free and if symptoms don't improve (could be quickly or more slowly) then look into other things. It doesn't hurt to have bloodwork done for other tests, such as vitamin/mineral levels to make sure you aren't deficient in anything.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Thanx I don't understand why he couldn't just tell me "Yes you have it"

If you have a positive biopsy you have celiac. There is no way around that one.

As far as other tests, it depends on what they are looking for. You don't need a celiac panel since the biopsy is the gold standard for diagnosis to most doctors.

Definately go gluten free and if symptoms don't improve (could be quickly or more slowly) then look into other things. It doesn't hurt to have bloodwork done for other tests, such as vitamin/mineral levels to make sure you aren't deficient in anything.

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Jessie:

You do have an option of going gluten free immediately. If you do not see results, then you can do further testing. Your endoscopy and biopsy were positive, that is a confirmation of celiac.

Welcome to the Club.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Thanx I don't understand why he couldn't just tell me "Yes you have it"

Sometimes we forget medicine is a business .... or else, maybe he wanted to be thorough, though the biopsy is the gold standard, you can't get more thorough than that.

BTW, you will learn more here than from any dietician. :)


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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