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Finally Got My Biopsy Results

sneezydiva

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sneezydiva Apprentice
sneezydiva
Posted

Yup, after all this waiting, it turns out all he biopsied was my stomach inflammation. No ulcers and biopsy was negative for everything. But on the bright side, my meeting was with the P.A., not the doctor. He spent a lot of time with me. He wants to get my gallbladder checked out, even though the symptoms don't quite fit. I told him about my history of fatigue and my concerns about celiac disease, and he said that the doctor wasn't thinking along those lines, and hadn't gone into the small intestine. But my inflammation was at the bottom of the stomach close to the duodenum. He said it was definitely worth persuing and ordered the celiac panel, iron panel, and cbc along with the liver/gallbladder tests.

So tomorrow I will go get my blood drawn (can't do it today,I have to fast overnight). And after that I'm not sure what to do. Should I go ahead and try the diet, maybe just a few days or a week? I don't want to mess things up if they end up wanting another endoscopy to do a biopsy. But then part of me wonders, do I really need the biopsy, if the blood tests come back positive? I know I'm not a doctor, but in my gut (no pun intended) I just know celiac is the answer I've been searching for all these years.

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SunnyDyRain Enthusiast
SunnyDyRain
Posted
Yup, after all this waiting, it turns out all he biopsied was my stomach inflammation. No ulcers and biopsy was negative for everything. But on the bright side, my meeting was with the P.A., not the doctor. He spent a lot of time with me. He wants to get my gallbladder checked out, even though the symptoms don't quite fit. I told him about my history of fatigue and my concerns about celiac disease, and he said that the doctor wasn't thinking along those lines, and hadn't gone into the small intestine. But my inflammation was at the bottom of the stomach close to the duodenum. He said it was definitely worth persuing and ordered the celiac panel, iron panel, and cbc along with the liver/gallbladder tests.

So tomorrow I will go get my blood drawn (can't do it today,I have to fast overnight). And after that I'm not sure what to do. Should I go ahead and try the diet, maybe just a few days or a week? I don't want to mess things up if they end up wanting another endoscopy to do a biopsy. But then part of me wonders, do I really need the biopsy, if the blood tests come back positive? I know I'm not a doctor, but in my gut (no pun intended) I just know celiac is the answer I've been searching for all these years.

I didn't get the endoscopy, i felt blood tests were good enough for me. I still might have to go to a gastro to find out what else is wrong with me. If you think the blood work and dietary response is good enough to keep you on ther diet, go a head start it. If the idea of having to do a gluten challenge if required scares you.. stay on gluten.

ravenwoodglass Mentor
ravenwoodglass
Posted

The chances of a false negative on blood work and biopsies are quite high. It delayed my diagnosis by many painful years and resulted in some permanent neurological damage. The diet is the best test when it is done strictly. IMHO

sneezydiva Apprentice
sneezydiva
Posted
  • Author

Thank you both. I will be trying the diet for sure. As far as "needing" another biopsy, I think I will cross that bridge when I come to it.

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    • Dr. Gunn
      Test interpretations

      By Dr. Gunn · Posted

      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      Test interpretations

      By trents · Posted

      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
    • Dr. Gunn
      Test interpretations

      By Dr. Gunn · Posted

      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
    • Scott Adams
      Test interpretations

      By Scott Adams · Posted

      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
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