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sneezydiva

Finally Got My Biopsy Results

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Yup, after all this waiting, it turns out all he biopsied was my stomach inflammation. No ulcers and biopsy was negative for everything. But on the bright side, my meeting was with the P.A., not the doctor. He spent a lot of time with me. He wants to get my gallbladder checked out, even though the symptoms don't quite fit. I told him about my history of fatigue and my concerns about celiac disease, and he said that the doctor wasn't thinking along those lines, and hadn't gone into the small intestine. But my inflammation was at the bottom of the stomach close to the duodenum. He said it was definitely worth persuing and ordered the celiac panel, iron panel, and cbc along with the liver/gallbladder tests.

So tomorrow I will go get my blood drawn (can't do it today,I have to fast overnight). And after that I'm not sure what to do. Should I go ahead and try the diet, maybe just a few days or a week? I don't want to mess things up if they end up wanting another endoscopy to do a biopsy. But then part of me wonders, do I really need the biopsy, if the blood tests come back positive? I know I'm not a doctor, but in my gut (no pun intended) I just know celiac is the answer I've been searching for all these years.


Celiac blood testing negative July 2007

Confirmed diagnosis of wheat allergy by skin test Dec 2007

Gluten-lite since July 2007 (didn't know all the hidden sources of gluten)

Gluten-free since December 2007

Life Long Symptoms

Extreme fatigue--needing 10-12 hours of sleep and still woke up exhusted

Allergic to everything--allergies remained out of control despite shots and strict enviornmental controls in my home.

Severe "sinus" headaches

More Recent Symptoms

IBS symptoms

Severe stabbing stomach pains that started 6 months before diagnosis of wheat allergy.

In my heart I feel it is more than an allergy and that I am gluten intolerant. This is based on my how eerily my childhood maladies match most celiac's histories, and my more recent increase in the severity of my usual symptoms and new digestive symptoms that have already started to subside on the gluten-free diet.

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Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Yup, after all this waiting, it turns out all he biopsied was my stomach inflammation. No ulcers and biopsy was negative for everything. But on the bright side, my meeting was with the P.A., not the doctor. He spent a lot of time with me. He wants to get my gallbladder checked out, even though the symptoms don't quite fit. I told him about my history of fatigue and my concerns about celiac disease, and he said that the doctor wasn't thinking along those lines, and hadn't gone into the small intestine. But my inflammation was at the bottom of the stomach close to the duodenum. He said it was definitely worth persuing and ordered the celiac panel, iron panel, and cbc along with the liver/gallbladder tests.

So tomorrow I will go get my blood drawn (can't do it today,I have to fast overnight). And after that I'm not sure what to do. Should I go ahead and try the diet, maybe just a few days or a week? I don't want to mess things up if they end up wanting another endoscopy to do a biopsy. But then part of me wonders, do I really need the biopsy, if the blood tests come back positive? I know I'm not a doctor, but in my gut (no pun intended) I just know celiac is the answer I've been searching for all these years.

I didn't get the endoscopy, i felt blood tests were good enough for me. I still might have to go to a gastro to find out what else is wrong with me. If you think the blood work and dietary response is good enough to keep you on ther diet, go a head start it. If the idea of having to do a gluten challenge if required scares you.. stay on gluten.


Dx 3/23/07

Gluten free 3/27/07

Intolerant:

Gluten

MSG

Allergies:

Ragweed

Honeydew

Cantalope

Nickel (jewelry)

Dx'd Lymphocytic Colitis 6/16/08

I am a bad silly-yak!

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The chances of a false negative on blood work and biopsies are quite high. It delayed my diagnosis by many painful years and resulted in some permanent neurological damage. The diet is the best test when it is done strictly. IMHO


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Thank you both. I will be trying the diet for sure. As far as "needing" another biopsy, I think I will cross that bridge when I come to it.


Celiac blood testing negative July 2007

Confirmed diagnosis of wheat allergy by skin test Dec 2007

Gluten-lite since July 2007 (didn't know all the hidden sources of gluten)

Gluten-free since December 2007

Life Long Symptoms

Extreme fatigue--needing 10-12 hours of sleep and still woke up exhusted

Allergic to everything--allergies remained out of control despite shots and strict enviornmental controls in my home.

Severe "sinus" headaches

More Recent Symptoms

IBS symptoms

Severe stabbing stomach pains that started 6 months before diagnosis of wheat allergy.

In my heart I feel it is more than an allergy and that I am gluten intolerant. This is based on my how eerily my childhood maladies match most celiac's histories, and my more recent increase in the severity of my usual symptoms and new digestive symptoms that have already started to subside on the gluten-free diet.

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