Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Ra-and Celiac Genes (rhumatoid Arthritis), Swollen Fingers

dally099

By dally099
in Related Issues & Disorders

Recommended Posts

dally099 Contributor
dally099
Posted

so im starting to think that im in the early stages of RA ugh, swollen fingers, ankles, knees, pain when they are swollen etc. so i was looking on the net and it seems that if you are DQ2 or DQ8 these are the genes for RA as well as celiac, RA is autoimmune as well so it makes sense. wondering how many others out there suffer wi th this as well. its interesting, im an 0502 and 0302 and from what i was reading this is the gene pool for RA. going to see my doc in sept when he is back from holidays but just thought that this was interesting as ive seen a few people on here lately mentioning swelling in the fingers especially hard to bend etc. food for thought (would be nice if it was cinnomen buns for thought :lol: ) (wishfull thinking (dont mention the rice flour ones ICK!!)

nadine :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
so im starting to think that im in the early stages of RA ugh, swollen fingers, ankles, knees, pain when they are swollen etc. so i was looking on the net and it seems that if you are DQ2 or DQ8 these are the genes for RA as well as celiac, RA is autoimmune as well so it makes sense. wondering how many others out there suffer wi th this as well. its interesting, im an 0502 and 0302 and from what i was reading this is the gene pool for RA. going to see my doc in sept when he is back from holidays but just thought that this was interesting as ive seen a few people on here lately mentioning swelling in the fingers especially hard to bend etc. food for thought (would be nice if it was cinnomen buns for thought :lol: ) (wishfull thinking (dont mention the rice flour ones ICK!!)

nadine :P

Or perhaps RA is actually the autoimmune celiac reaction that has chosen to attack the joints rather than the just the intestines. I wonder how many doctors suggest trying the diet strictly as a first mode of treatment rather than the expensive and toxic drugs I was given over the years. Not many I think. But I do know for sure that I would not have the permanent damage I do now if they had. I have only had a couple flares now in over 4 years.

nikki-uk Enthusiast
nikki-uk
Posted
Or perhaps RA is actually the autoimmune celiac reaction that has chosen to attack the joints rather than the just the intestines. I wonder how many doctors suggest trying the diet strictly as a first mode of treatment rather than the expensive and toxic drugs I was given over the years. Not many I think. But I do know for sure that I would not have the permanent damage I do now if they had. I have only had a couple flares now in over 4 years.

Mmmm - I wonder this too.

My hubby was dx with Psoriatic Arthritis (similar to RA) 2 yrs before his dx of celiac disease.

Unfortunately like you damage has been done (lost quite alot of range of movements in some joints - especially elbows <_< ) but his 'flare ups' happen alot less and seemingly less severe.

I can't help but wonder if he'd got his celiac disease dx earlier he might have avoided the arthritis??

Of course this isn't true for all .Some folks have celiac disease and are gluten-free AND go on to develop RA.

...and the toxic drugs???....did you have Methotrexate too??? (oh gosh was hubby ill on that! ..evil!!)

Ann1231 Enthusiast
Ann1231
Posted

I have RA too. I've known about the gluten issue for 7 or 8 years but was only diagnosed with ra 2.5 years ago. My dr. doesn't think there's any connection but she also said food does not affect ra (I know better just from my flares! and there's plenty of research to back up a connection).

I'm on methotrexate, plaquenil, prednisone. I hate the drugs but I hated being bedridden for 2 months more....

nikki-uk Enthusiast
nikki-uk
Posted
I'm on methotrexate, plaquenil, prednisone. I hate the drugs but I hated being bedridden for 2 months more....

Absolutely - you HAVE to do whatever it takes.

When hubby was on prednisolone (prescribed for his non healing celiac disease) his joints were marvellous!! - hubby used to say it was a shame he couldn't stay on it!! :unsure:

He's now on a weekly injection of an anti-TNF (a relatively new drug) for the PA and so far so good (ESR coming down :D )

dally099 Contributor
dally099
Posted
  • Author

yup prednisone is wonderfull its a shame that the long term affects from it are so bad, i was on it for 3 months and my doc made me come off it.

Yellow Rose Explorer
Yellow Rose
Posted

My youngest was diognosed with JRA at 6 yrs old. She almost died from all the meds she was given. By the time she was in 8th grade she was taking 11 different meds all adult doses. She started having a really bad headache that lasted for a month. They took cat scans, said it was sinus infection, migraines, tension headaches, cluster headaches, that she was psycotic and needed to be checked into a hospital, that I was nuts too. We took her to an allergist and she was about to blow a vein in her temple. Two more days and I would have found her dead. He took her off all her meds and checked her out. Took her off wheat, milk, rice, and beef for 30 days and all her symptoms dissappered. She has been fine ever since. She can now eat wheat, milk and beef but not rice. It makes her hurt all over again. She has never been checked for celiac but looking back at this I have encouraged her to get tested. She doesn't want to know. But she sees me getting better and I keep hoping she will go and get checked out.

Yellow Rose

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      11

      Celiac flare years after diagnosis

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      11

      Celiac flare years after diagnosis

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest ...
    3. Peace lily
      - Peace lily commented on Scott Adams's article in Latest Research
      2

      New Study Reveals How the Immune System Learns Which Foods Are Safe to Eat

      Hi everyone well I don’t understand totally,I look for gluten-free only. I seem to be super sensitive. I had a problem the other day don’t know why it happen . I’m the only that handles my food . My husband has pancreatitis he’s fine with me cooking gluten-free I’ve tried doing both it doesn’t work for me strictly gluten-free kitchen. But he can actu...
    4. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      11

      Celiac flare years after diagnosis

      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am...
    5. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Dermatitis Herpetiformis
      4

      Skin issues

      Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442
    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
    • Jmartes71
      Skin issues

      By Jmartes71 · Posted

      Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during the same time I was dealing with covid, digestive issues, eyes and skin.Considering I " should  be fine" not consuming gluten/wheat, taking vitamins for sibo and STILL feeling terrible.It has to be parasites. I also take individual eye drops prescribed, could there be an issue there? Anyways my pcp thinks I need therapy because again they don't acknowledge my digestive issues because in my records it shows im fine, hintz the reason I had to go back to bay area hospital:(  I thought skin issues maybe sibo related but I feel and have seen and seriously trying not to think about it because it's disgusting. 
    • Aretaeus Cappadocia
      Zaalouk moroccan eggplant salad

      By Aretaeus Cappadocia · Posted

      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
×
×
  • Create New...