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scotty

A Gluten Test

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there needs to be a gluten tester invented. or a scanner that can test foods before we eat them to tell if they contain any traces of the poison. that would be great. anyone own one?


only when hope is fulfilled, hope is lost

*D-Digestive problems throughout youth and young adulthood unattended

*Self-convinced IBS '04 (began eating rice, breads, crackers...SFs to 'slow' the natural process)

*Winter '06 developed severely swelled legs with rashes, white tongue

*Self-diagnosed; Gluten Free Spring '07

*Celiac.com diagnosed Candida, Thrush Spring '07 (all that 3 years prior of nothing but rice)

*Celiac.com diagnosed IC Summer '07

*Winter '08 pursuing more accurate testing for dianosis of the beast in which I am battling

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there needs to be a gluten tester invented. or a scanner that can test foods before we eat them to tell if they contain any traces of the poison. that would be great. anyone own one?

Actually, my friend said it would be better if my skin DID react to wheat, that way any time I got zapped from holding food I'd know it wasn't safe!


If you're going through hell, keep going. ~Winston Churchill

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My 14 yo son is wicked smart and wants to be an inventor. I suggested that he invent a test to use on food before you eat it. Since I have celiac disease and he may, it would certainly be great to have something.

There's no money in celiac disease for drug companies, but there would be $ in an invention like this.

there needs to be a gluten tester invented. or a scanner that can test foods before we eat them to tell if they contain any traces of the poison. that would be great. anyone own one?

Diagnosed by biopsy 2/12/07. Negative blood tests. Gluten-free (except for accidents) since 2/15/07. DQ2.5 (HLA DQA1*05:DQB1*0201)

Son, age 18, previously delayed growth 3rd percentile weight, 25th percentile height (5'3" at age 15). Negative blood work. Endoscopy declined. Enterolab positive 3/12/08. Gene results: HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0503 Serologic equivalent: HLA-DQ 2,1(Subtype 2,5) Went gluten-free, casein-free 3/15/08. Now 6'2" (Over six feet!) and doing great.

"Great difficulties may be surmounted by patience and perseverance." Abigail Adams (1744-1818) 2nd First Lady of the United States

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there needs to be a gluten tester invented. or a scanner that can test foods before we eat them to tell if they contain any traces of the poison. that would be great. anyone own one?

Scotty,

That is so funny - I just said that exact same thing to my husband the other night. He is a mechanic and was trying desperately to think of how it could be done. It would make life soooo much easier haha. Let me know if you ever hear of such a thing in the future!

Dahlia

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i'm sure everyone would be quite pleased if anyone came up with some kind of tester!!!

i have no idea what zapped me; but i thought my appendix had burst the other night. i have heard Kroger seasonings are ok? (had garlic powder and onion powder) which was new to me; the only other possibility could be an onion i ate. i thought vegetables were safe across the board. it was one loose you know in the huge bin or whatever??? a yellow one...i keep getting zapped but i keep eating the same things over and over to know what is new. all this new stuff is really putting a hinder on my healing process. seemed like it happened 2 days in a row. i don't know...is this the usual circumstances? does it always seem like 2 days. cuz i ate most the same stuff like an idiot--you know for the test


only when hope is fulfilled, hope is lost

*D-Digestive problems throughout youth and young adulthood unattended

*Self-convinced IBS '04 (began eating rice, breads, crackers...SFs to 'slow' the natural process)

*Winter '06 developed severely swelled legs with rashes, white tongue

*Self-diagnosed; Gluten Free Spring '07

*Celiac.com diagnosed Candida, Thrush Spring '07 (all that 3 years prior of nothing but rice)

*Celiac.com diagnosed IC Summer '07

*Winter '08 pursuing more accurate testing for dianosis of the beast in which I am battling

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I had a look at the gluten test kit offered on the glutenfreetravel site. Obviously a bit cumbersome for taking to a restaurant or such. But it does mean that someone is thinking about this problem and maybe something usable isn't too far off.

Scotty, I think most of us find that we have symptoms after being glutened which can last for 2 or 3 days. So don't be alarmed that yours went on for so long. The first day is pure pain and agony, the second is usually ghost pains and lots of "brain fog" and the third is lots of weakness, but starting to feel human again.

Oh how I long for the good 'ol days when things were so much simpler.

Sue


Self-diagnosed in 2004 after 6 years of hell. Doing well on gluten-free diet, but still having occasional bouts of accidental glutening. Message board has been a godsend. Have been on since 2004 as "grannynanny," but couldn't recreate password and was shut out, having to re-register in 2007. Update: Gastroenterologist wanted to do genetic test for celiac (Mar 2008). Results showed genetic marker on G8 -- one of two genes identified as Celiac.

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I had a look at the gluten test kit offered on the glutenfreetravel site. Obviously a bit cumbersome for taking to a restaurant or such. But it does mean that someone is thinking about this problem and maybe something usable isn't too far off.

Scotty, I think most of us find that we have symptoms after being glutened which can last for 2 or 3 days. So don't be alarmed that yours went on for so long. The first day is pure pain and agony, the second is usually ghost pains and lots of "brain fog" and the third is lots of weakness, but starting to feel human again.

Oh how I long for the good 'ol days when things were so much simpler.

Sue

i have no problem recognizing that i have been glutened when i have been. i have trouble narrowing it down to what got me. i want to try things again just to be sure. cuz i will get a little good feeling circulating and try more than one thing at a time cuz of cravings. i just want variety. and i want a nice reaction immediately; one lick and the tongue swells or something. this literally wipes out days; always makes me think yup i got glutened; then next day, what the hell happened again.


only when hope is fulfilled, hope is lost

*D-Digestive problems throughout youth and young adulthood unattended

*Self-convinced IBS '04 (began eating rice, breads, crackers...SFs to 'slow' the natural process)

*Winter '06 developed severely swelled legs with rashes, white tongue

*Self-diagnosed; Gluten Free Spring '07

*Celiac.com diagnosed Candida, Thrush Spring '07 (all that 3 years prior of nothing but rice)

*Celiac.com diagnosed IC Summer '07

*Winter '08 pursuing more accurate testing for dianosis of the beast in which I am battling

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i have no problem recognizing that i have been glutened when i have been. i have trouble narrowing it down to what got me. i want to try things again just to be sure. cuz i will get a little good feeling circulating and try more than one thing at a time cuz of cravings. i just want variety. and i want a nice reaction immediately; one lick and the tongue swells or something. this literally wipes out days; always makes me think yup i got glutened; then next day, what the hell happened again.

There's a silver lining to every cloud scotty, last time I got glutened, the symptoms lasted over a month.......


If you're going through hell, keep going. ~Winston Churchill

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