Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

Archived

This topic is now archived and is closed to further replies.

debmidge

Peripheral Neuropathy

Recommended Posts

Other than gastro and neurologist what kind of doctor will treat this? My husband's PN is not from diabetes - that's been ruled out already. It could be B12 deficiency, but he's been tested for that and it was Ok.

Any suggestions?


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Your regular PCP can treat B12 deficiency. They can order you B12 shots, they can give them in the office or you can do them at home. Usually you start out with a shot a day for a month, then they get reduced to a shot a week then either every 2 weeks or once a month, depending on how well the person is doing. There is a good book out there called, "Could It Be B12" by Sally PacholoK, RN and Jeffrey J Stuart DO--I got mine from amazon .com. A neuro can treat you for B12 deficiency too though. A friend of mine is being treated by his neuro.

I am trying to travel this road too. Sometimes you have to do it alone. Read about B12 in wrongdiagnosis.com. http://forums.wrongdiagnosis.com/showthread.php?t=9948 It's a huge thread and I have learned so much there. If you privately message Sally, she will answer you.

Deb


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

Share this post


Link to post
Share on other sites