Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Evil Periods

gfmolly

By gfmolly
in Coping with Celiac Disease

Recommended Posts

gfmolly Contributor
gfmolly
Posted

Since diagnosis in April, I've been getting better and better, but when my period comes I get nailed with "glutened-like" symptoms: major migraine headache, the big d for days and painful gas and bloating. Does anyone have any suggestions or remedies that seem to alleviate some of the symptoms? I do have endo as well, and have been off the pill since I can't find a gluten-free/lactose free pill on the market, so my hormones are probably out of whack as well. I know that I am not being glutened, because it is clockwork. I have been enjoying feeling more normal. It has taken months to get to this point and it feels really good. I'm not sure I want to feel nasty for a week every month!

Terri

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TrillumHunter Enthusiast
TrillumHunter
Posted

Are you taking any supplements? I was really deficient in B, A, D, E, iron and magnesium. I hope eventually my intestines will heal and I can stop them but in the meanwhile I can tell if I miss them. My cycle was horrible before I was dx'ed. So bad, in fact, I was considering hysterectomy. Since going gluten-free they are light and *almost* pain-free.

Just a thought. Good luck!

I was dx'ed in April, too!

gfmolly Contributor
gfmolly
Posted
  • Author
Are you taking any supplements? I was really deficient in B, A, D, E, iron and magnesium. I hope eventually my intestines will heal and I can stop them but in the meanwhile I can tell if I miss them. My cycle was horrible before I was dx'ed. So bad, in fact, I was considering hysterectomy. Since going gluten-free they are light and *almost* pain-free.

Just a thought. Good luck!

I was dx'ed in April, too!

I'm supposed to be taking iron because I am anemic, but I am so afraid of upset this fragile balance of feeling well! I will go back on the iron and I have a really good multi that I should be taking as well. I do take a probiotic daily, and can really tell if I do miss that. I'll give it a shot this month and see if it helps.

Thanks!

jewi0008 Contributor
jewi0008
Posted
Are you taking any supplements? I was really deficient in B, A, D, E, iron and magnesium. I hope eventually my intestines will heal and I can stop them but in the meanwhile I can tell if I miss them. My cycle was horrible before I was dx'ed. So bad, in fact, I was considering hysterectomy. Since going gluten-free they are light and *almost* pain-free.

Just a thought. Good luck!

I was dx'ed in April, too!

What type of supplements do you take? I currently take a multivitamin, Folic acid and the B Complex. What else is a necessity do you think?

skinnyminny Enthusiast
skinnyminny
Posted

go to the website called cyclediet.com. this is really interesting I ordered the work book their is a gluten free diet plan too, it is just a healthy way of eating to help with the pain of that time of the month, making sure you get enough calcium, exercise, and cutting all a lot of processed food is key I hope this helps

FootballFanatic Contributor
FootballFanatic
Posted

You might not call this a natural remedy but I heard that ibuprofen is the best painkiller for cramps and can have an antidiarrheal effect. That's the closest thing to natural I can think of, but I naturally take pills all the time. :-/

hathor Contributor
hathor
Posted

Are you dairy free? If not, you might try that. My cramps basically went away when I dropped the dairy some years ago. My daughter finds that the more dairy she has during a month, the worse her period. If she has no dairy, she doesn't feel bad at all.

Also, a lower fat diet can reduce your estrogen level and thus may help. Here is an article which has cites to assorted studies about hormones and fat in the diet:

Open Original Shared Link

I concur with the ibuprofen recommendation. It seems to work better than anything else.

How long have you been off the pill? It might take awhile to get over its impact. I remember I got horrid migraines when I was on the pill and had to stop for that reason. It took a few months for that to go away.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfmolly Contributor
gfmolly
Posted
  • Author

Thanks for all of the advice. I will check out the Cycle book. That sounds interesting. I am only taking a probiotic, but have a really good iron and multi I should be taking but don't. Like I said earlier, I have really tried to eliminate all possible reactors, so I was afraid to take any supplements, gluten-free or not. I think I will try the I eliminated, even before gluten as a way to try to not get D. My diet is really low in fat as is, I don't think I could go lower. Since Nov. I have lost 16 lbs, and really shouldn't lose too much more. The only fat I get is from olive oil, peanut butter, and the occasional red meat we may have.

I've been off the pill for a few months now, and am about to start the patch. We tried using condoms, but it really doesn't work well for us, so I am going to see how the patch is for me. I have used the patch pre-diagnosis, but it made me really nauseous at the start of the patch, so I'm not looking forward to that!

I've never heard of ibuprofen as an anti-d! Is there a particular brand that works well?

JNBunnie1 Community Regular
JNBunnie1
Posted

Ibuprofen helps me, too. The thing that's helped me the most has been to take a Vitamin A supplement, at least 20,000 IU daily. I used to have periods from hell, no leaving the house. They got better when I was on birth control for a year, but my libido dropped by HALF on birth control, so we use condoms now. So the bad periods came back, and I read that vitamin A helps, and for me it does. Also, you kinda need a certain amount of fat in your diet to be able to digest the vitamins you need. For example, Vitamins A & D are FAT-SOLUBLE vitamins, hard to get enough if you don't have any good fat in your diet.

jmd3 Contributor
jmd3
Posted
Since diagnosis in April, I've been getting better and better, but when my period comes I get nailed with "glutened-like" symptoms: major migraine headache, the big d for days and painful gas and bloating. Does anyone have any suggestions or remedies that seem to alleviate some of the symptoms? I do have endo as well, and have been off the pill since I can't find a gluten-free/lactose free pill on the market, so my hormones are probably out of whack as well. I know that I am not being glutened, because it is clockwork. I have been enjoying feeling more normal. It has taken months to get to this point and it feels really good. I'm not sure I want to feel nasty for a week every month!

Terri

A little bit of hemp oil will relieve pain. A health store would carry it.

you can mix it in a drink, or your salad dressing...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. akebog
      - akebog posted a topic in Gluten-Free Restaurants
      0

      Fusilli Pizzeria, Miller Place, NY

      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious...
    2. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future.
    3. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down...
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest ...
    5. Peace lily
      - Peace lily commented on Scott Adams's article in Latest Research
      2

      New Study Reveals How the Immune System Learns Which Foods Are Safe to Eat

      Hi everyone well I don’t understand totally,I look for gluten-free only. I seem to be super sensitive. I had a problem the other day don’t know why it happen . I’m the only that handles my food . My husband has pancreatitis he’s fine with me cooking gluten-free I’ve tried doing both it doesn’t work for me strictly gluten-free kitchen. But he can actu...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442
    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • akebog
      Fusilli Pizzeria, Miller Place, NY

      By akebog · Posted

      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
×
×
  • Create New...