Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Ken70

Interpreting Enterolab Results

Rate this topic

Recommended Posts

I forced my father to get tested through Enterolabs. These are his results. It clearly shows he has gluten and casein sensitivity but does the fecal fat score mean he is probably Celiac?

A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Antigliadin IgA21(Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA29 Units(Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score1275 Units(Normal Range <300 Units)

Fecal anti-casein (cow

Share this post


Link to post
Share on other sites

I would say with his other scores yes even if he is not technically gene defined celiac. He is most likely not absorbing much of anything at this point. Hopefully this will turn around quickly once he is gluten and casien free. I would get him on the diet as soon as possible. He also should be taking a good gluten free supplement and an additonal sublingual B12. With a malabsorption score that high I would consider having that rechecked after 3 and again at 6 months to make sure that he is improving.

As you probally already know it is vital that you check every single med he is on, there are no labeling or gluten restrictions for medication. Do not trust the pharmacist, some are great but most have neither the time nor the information available.

Share this post


Link to post
Share on other sites

Not necessarily. There is someone on the board with a high fecal fat score, yet does not have celiac disease nor the gene though she is gluten intolerant.

Bacterial dysbiosis can also cause fat in the stool.

Share this post


Link to post
Share on other sites
Not necessarily. There is someone on the board with a high fecal fat score, yet does not have celiac disease nor the gene though she is gluten intolerant.

Bacterial dysbiosis can also cause fat in the stool.

Do you think fish oil pills taken daily could influence these results?

Share this post


Link to post
Share on other sites

All the tests for gluten sensitivity are positive, and milk too.

Gene test not finished yet.

This is my interpretation.

What are your gene results?

nora

Share this post


Link to post
Share on other sites
All the tests for gluten sensitivity are positive, and milk too.

Gene test not finished yet.

This is my interpretation.

What are your gene results?

nora

There are no gene results yet. I dont even know if Enterolab does this. Do we need a seperate blood test for the gene test?

I am having a hard time understanding how something like this can come on to a man in his 60's and not before this. My superfit uncle (fathers brother) died from lung cancer a few years ago. He didn't smoke and took great care of himself.

I am undiagnosed and that is the way I am going to stay. I have been gluten free for 6 months and casein free for 2 months. Huge difference but not all the way there yet.

Share this post


Link to post
Share on other sites
Do you think fish oil pills taken daily could influence these results?

Enterolab instructions say to avoid taking these three days before the test. I did this, and when my malabsorption was sky high, asked my allergist about it. He said that even if my body is slow to process and empty (hence my question did I still have these in my system?, taking these would not be enough to cause the malabsorption to be so high.

But yes there are many causes of malabsorption, so that is not diagnostic for celiac. Only the positive test panel together is suggestive.

Share this post


Link to post
Share on other sites
There are no gene results yet. I dont even know if Enterolab does this. Do we need a seperate blood test for the gene test?

I am having a hard time understanding how something like this can come on to a man in his 60's and not before this. My superfit uncle (fathers brother) died from lung cancer a few years ago. He didn't smoke and took great care of himself.

I am undiagnosed and that is the way I am going to stay. I have been gluten free for 6 months and casein free for 2 months. Huge difference but not all the way there yet.

If you had ordered the gene test they would have sent you a cheek swab to do it with. I don't remember how much it is, I think it was around $100. I just ordered mine out of curiosity 4 years after I was diagnosed and because my DD had her genes done and used that as a way to say 'see I don't have celiac and will never develop it because I don't have the gene'. I am proof positive that non celiac gene defined celiac can be just as life threatening and altering as any with the celiac genes.

As to how this could show up in someone who is 60, well he most likely had indications of it for years that he may have assumed were normal bouts of illness. Celiac also has a way of excaberating when when are ill or under stress. Many women will develop noticable symptoms after preganacy and for both sexes mental or physical stress can trigger it.

Share this post


Link to post
Share on other sites

Final Results are in for Enterolab gene test. Do you concur that my father should stop eating gluten and casein? I did an elimination diet to diagnose myself and I am now gluten and casein free. It has made a big difference but I am still strugling with the occasion glutening.

A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Antigliadin IgA 21 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 29 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 1275 Units (Normal Range <300 Units)

Fecal anti-casein (cow's milk) IgA antibody 15 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0301

HLA-DQB1 Molecular analysis, Allele 2 0501

Serologic equivalent: HLA-DQ 3,1 (Subtype 7,5)

Interpretation of Fecal Antigliadin IgA: Intestinal antigliadin IgA antibody was elevated, indicating that you have active dietary gluten sensitivity. For optimal health, resolution of symptoms (if you have them), and prevention of small intestinal damage and malnutrition, osteoporosis, and damage to other tissues (like nerves, brain, joints, muscles, thyroid, pancreas, other glands, skin, liver, spleen, among others), it is recommended that you follow a strict and permanent gluten free diet. As gluten sensitivity is a genetic syndrome, you may want to have your relatives screened as well.

Interpretation of Fecal Antitissue Tra! nsglutam inase IgA: You have an autoimmune reaction to the human enzyme tissue transglutaminase, secondary to dietary gluten sensitivity.

Interpretation of Quantitative Microscopic Fecal Fat Score: A fecal fat score greater than or equal to 300 Units indicates there is an increased amount of dietary fat in the stool which usually is due to gluten-induced small intestinal malabsorption/damage when associated with gluten sensitivity. Values between 300-600 Units are mild elevations, 600-1000 Units moderate elevations, and values greater than 1000 Units are severe elevations. Any elevated fecal fat value should be rechecked in one year after treatment to ensure that it does not persist because chronic fat malabsorption is associated with osteoporosis among other nutritional deficiency syndromes.

Interpretation of Fecal anti-casein (cow's milk) IgA antibody: Levels of fecal IgA antibody to a food antigen greater than or equal to 10 are indicative of an immune reaction, and hence immunologic "sensitivity" to that food. For any elevated fecal antibody level, it is recommended to remove that food from your diet. Values less than 10 indicate there currently is minimal or no reaction to that food and hence, no direct evidence of food sensitivity to that specific food. However, because 1 in 500 people cannot make IgA at all, and rarely, some people can still have clinically significant reactions to a food antigen despite the lack of a significant antibody reaction (because the reactions primarily involve T cells), if you have an immune syndrome or symptoms associated with food sensitivity, it is recommended that you try a strict removal of suspect foods from your diet for up to 12 months despite a negative test.

Interpretation Of HLA-DQ Testing: Although you do not possess the main genes predisposing to celiac sprue (HLA-DQ2 or HLA-DQ8), HLA gene analysis reveals that you have two copies of a gene that pr! edispose s to gluten sensitivity (DQ1 or DQ3 not subtype 8). Having two copies of a gluten sensitive gene, means that each of your parents, and all of your children (if you have them) will possess at least one copy of the gene. Two copies also means there is an even stronger predisposition to gluten sensitivity than having one gene and the resultant immunologic gluten sensitivity may be more severe.

Share this post


Link to post
Share on other sites

I have the aame genes as ur father, and am diagnosed celiac threw blood work and confirmed Dh. Your father should give up gluten and casein as soon as he can.

paula

Share this post


Link to post
Share on other sites

DQ7 and DQ5:

Now DQ7 is very similar to DQ8, a main celiac gene. There is an article on DQ7 and celiac here:

http://www.clinchem.org/cgi/content/full/44/8/1755 and they found some celiacs who were DQ7.

DQ5 is a subtype of DQ1 and several people on the forums with neurological symptoms report they are DQ1 or double DQ1.

Dr. Hadjivassiliou writes in several papers that about 20% of his gluten ataxia subjects are DQ1.

"we have found a similar HLA association to that seen in patients with celiac disease: 70% of patients have the HLA DQ2 (30% in the general population), 9% have the HLA DQ8, and the remainder have HLA DQ1. The finding of an additional HLA marker (DQ1) seen in the remaining 20% of our patients may represent an important difference between the genetic susceptibility of patients with neurological presentation to those with gastrointestinal presentation within the range of gluten sensitivity.

" See also other papers by Hadjivassiliou (like in www.pubmed.com)

nora

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,777
    • Most Online
      4,125

    Newest Member
    Sdceliac
    Joined
  • Forum Statistics

    • Total Topics
      112,052
    • Total Posts
      956,601
  • Who's Online (See full list)

    There are no registered users currently online

  • Forum Discussions

    I am celiac and eat gluten-free, DF, SF and sunflower free because I'm highly reactive to all 4. I discovered about a year and a half ago that I would have severe and immediate GI reactions, similar to as if I ate dairy, to anything with sunflower/safflower products in it, but I think that's when using the oil became more prevalent too. Strange because I loved sunflower seeds as a kid. I've also linked it to places I've eaten out where everything was fine and then discovered they started using s
    So i recently had a baby and 3 months postpartum I started celery juicing and after juicing my stomach would be in so much pain. So I stopped it for a while and a whole month no pain or issues. I made an apt with a GI doctor to just get my blood work checked everything came back great except the Ema it was 1:20 he said it was strange because all the other Celiac panel test were negative my Ttg and the genetic screening even. So I made an apt with another doctor for second opinion she stated that
Potatoes are good for breakfast! Your concoction sounds pretty good. K, how about this? Peel & dice potatoes, fry them in just enough olive oil to keep them from sticking in a skillet until they begin getting crispy. Toss in diced sweet peppers or maybe chili peppers, onions to soften. I know you're not doing egg yolks b/c of iodine but you can do the whites. Pour egg white on top until the white is done. If you have a steak or some leftover steak, you can heat that on the side. YUM!
  • Blog Entries

  • ×
    ×
    • Create New...