Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Sootie Patches

My Blood Test Came Back Normal

Rate this topic

Recommended Posts

I have a question about being wheat intolerant. I have had a miserable time the last 6 months not feeling well. I have been in and out of the ER three times thinking something was wrong with my heart. My heart would race and I would get really naustious. I have done every heart test under the sun and the end result has come out that I am extremely healthy and I am probably suffering from anxiety. That has not sat well with me. I am not going through anything at this point in my life. I meditate and do yoga. I have recently been doing acupuncture to try and get rid of the nausea. 3 different people had recommended to me that I try and cut wheat out of my diet so reluctantly I finally did. I have had the best week not eating wheat. I have not had one bout of nausea. I went in and had a blood test to screen for celiac and I just got the results back and they said that my blood looked great and I am not showing any signs of celiac disease. They also recommended seeing a GI doctor and getting a biopsy done for a more accurate result. Are the symptoms that I mentioned above typical for wheat intolerant people? I have been nausea non stop until I have cut wheat out. Even though the blood test isn't showing any signs of me having a wheat problem could I still? I have been going nuts for the past 6 months trying to play doctor for myself. I really thought wheat was the problem and now I feel set back. Any comments or suggestions would be appreciated. Thank you, Jen

Share this post


Link to post
Share on other sites

Hi Jen, you can still be reacting even with a neg blood test. People here will attest to that. Listen to your body--you are probably right!

Share this post


Link to post
Share on other sites

Welcome to the forum!

You most certainly could have a wheat allergy or a sensitivity to wheat. Some researchers think that a sensitivity may be a precursor to Celiac Disease. Celiac can have over 200 symtoms. The Celiac Blood Panel is not aways considered 100% accurate. The blood test can rule Celiac in, if possitive; but, it can't rule it out if the tests are negative.

The bottom line here is that you feel better off of wheat products. It's sort of like stopping beating your head against a wall - it feels so good when you stop. :rolleyes:

Your best for a diagnosis either for a wheat allergy or sensitivity is a positive dietary response. And you already know that answer.

This site is a great source of dietary information. Take a walk around

Share this post


Link to post
Share on other sites

My first set of blood work came back negative but I had already started on the diet. My biopsy came back negative and I stopped the diet. My body went into shock after just two days off the diet. Then my second set of blood work came back positive.

I'm new to this Celiac thing,,,,, but my opinion is the diet is by far the best test for Celiac Disease.

I've only been back on the diet for three weeks and I can already see minor improvements.

I am really upset that with all of our Nation's resources, Celiac Disease is still in the dark ages.

Joe

Share this post


Link to post
Share on other sites

Don't trust those blood tests, trust your body. Trusting the blood tests almost killed me. Doctors wouldn't tell me what 'sprue' was, just that I was lucky I didn't have it cause I wouldn't be 'able to eat anything' (a quote from my rheumy). No one bothered to tell me what sprue was or suggest the diet. I would literally be almost dead before an allergist I was bullied into seeing by my PT finally diagnosed me. I was seeing the PT to improve my strength and get in better condition so they could do a GI surgery on me. I never had to walk back through the surgeons door.

Try the diet strictly and make sure you are eliminating gluten and not just wheat. Gluten is also in barley, rye and in almost all oatmeal and hides in a lot of manufactured food. Read all you can here and ask any question you may need to.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,807
    • Most Online
      4,125

    Newest Member
    MeresaI
    Joined
  • Forum Statistics

    • Total Topics
      112,067
    • Total Posts
      956,699
  • Who's Online (See full list)

  • Forum Discussions

    Oh yes, it could, although to be honest I never got myself so wet with sweat that it would have been a serious situation.  However, I can remember one time when I got caught in a cloudburst while going to my car in a large parking lot, though, and got soaked to the skin, and of course had to wear those soaking-wet clothes while I drove the 45 minutes it took me to get home --- I will NEVER forgot the misery and agony of that drive!  I could just barely keep the car under control, in fact.
    Thanks for your response, Squirmingitch, but I have to almost laugh, as at this point I am not really stressing over these questions at all --- just curious.  I have always been an insatiable question-asker, so please don't take my frequent questions as a sign of my obsessing over celiac disease or DH.  Yeah, admittedly I was rather stressed out for a couple of days two weeks  ago or so, but I am significantly settled down now, even while negotiating the nutritional maze of trying to manage two
Water?! That's… unreasonably inconvenient. Did it happen with sweat?
  • Blog Entries

  • ×
    ×
    • Create New...