Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Rate this topic

Recommended Posts

I had my endo scope today and my dad has celiac, we asked how my villi looked and the doc repied it looked ...

relatively normal villi, so I am going to assume it looks fine.

Could you have celiac with normal looking villi??

Share this post


Link to post
Share on other sites
I had my endo scope today and my dad has celiac, we asked how my villi looked and the doc repied it looked ...

relatively normal villi, so I am going to assume it looks fine.

Could you have celiac with normal looking villi??

I would expect that it would depend on how quickly a person was diagnosed. A biopsy can also be a determination of Celiac.

Share this post


Link to post
Share on other sites

Technically, no....celiac disease really means intestinal destruction, but there is movement in pathology circles to quantify the numbers of intraepithelial lymphocytes to establish the diagnosis BEFORE villous blunting. That would be nice :D if we could get the slide guys on board for a faster Dx !! There are still too many docs who stop the search if tTG is negative! And the main journal for FP's this month has a lead article re:celiac, but they pretty much tell them to check for tTG and then it runs into dead ends if that is negative. What the USA needs is docs who THINK instead of react to tests. My rant.......

Share this post


Link to post
Share on other sites
I had my endo scope today and my dad has celiac, we asked how my villi looked and the doc repied it looked ...

relatively normal villi, so I am going to assume it looks fine.

Could you have celiac with normal looking villi??

Your GI can not tell just by looking that everything is fine. I sure do hope he took lots of biopsies. No matter what that report states you need to do a dietary trial to see if it does away with problems that you are experiencing. Biopsies miss a lot of us and doctors here are reluctant to diagnose us till we are almost dead. Try the diet. You can start today since your endo is over. You may have the answer before the appontment to get the results of the biopsies.

Share this post


Link to post
Share on other sites

thanks so much for your replies. I was not sure how well thses boards move. I have been reading these for a month now. I have several things that can point to celiac. My GI is great and I believe he took several samples. I had 15 tubes of blood taken to figure out what is wromg with me,(reg doc ordered these) here are some that were high or low.

EBV VCA IGG AB 1.44 (postive over >1.10)

EBV Nuclear AG (EbNA) IGG 3.03 (positive over 1.10)

Plts 530

eosinophil % 1.9 range 0.0-0.7

SED rate is 40 range 0-20

fibrinogen 450 range 200-400

Gfr Caucasian 75.59 (stage 2)????

hemoglobin A1c 5.6 range <60

CPK 372 range 30-170

CKMB 9.9 range 0.0-3.4

protein S activity 114 (not sure circled range is 60-140)

Cardioplipin IGM ab 1.1 range <0.8

RF - NEG

ANA- neg

CK total 335 range <165

folate >20.00

low in rbc,hct,

high in RDW,PLTS sodium low 134 ( surprise I use tonsof salt)

here are some others celiac- not complete (did not order the correct one)

tissue transglutam <3 more then > is post.

IGA, Serum 298 range 81-463

Gliadin AB IgA 8 which is neg, need more then >17 to be pos

BUN- 12.8 range 7.0-21.0

creatinine 0.9 range 0.7-1.5 so no heart atack.

RF was neg so was the ANA neg. so neg for lupus and RA????

My thyroid is fine, all in range, horemores all find, all in range.

CA125 is 19 ( good range for me)

the reason for the blood work is over 1 year ago I was told I had RA, I was happy to have a dx , started to feel better and about 5 months ago the medications are not working. I do take humira and methratexe(sp)

After talking to the RA doctor I was told since the muscle inflammtion is going up they want to try remacde (sp) that is a strong medication and I wanted to make sure 100% it's RA and nothing else before starting the new medications.

WELL, My RF was NEG, and so was my ANA. found a test back in 2006 that they were both neg then too.

I am sick all the time, facial sweating, tummy trouble, joints ache, muscles are so sore, it feels like I have a huge bruise on my whole body, you can't touch me without pain.muscle weakness, I have severe constapation that I need to take medication for. Horribe GERD and now told I have a herina. Had my gallbladder removed and had ovarian cancer.

My body aches so bad, it hurts every morning and takes about 2 hours to feel better, then I am find until I eat, then my fingers get tight and my body hurts again, horrible gas, stomach pains and I can never finish a plate of food without feeling like I can throw up. I can't eat barley but was neg to the skin prick test.

Now can celiac skip a family member, My dad has it and if I don't I wonder about my dd. She is 7 and I won't type all her issues now, but when she was about 6 months, she was DX with acid reflux and lactose . SHe would get WHITE stools all the time and throw up green bile (knew that becasue I NEVER feed her food and the doctor would say I did ..lol- or maybe it was the food fairy .lol )

Anyways, I know we are missing something and I was hoping I would get some answers yesterday, I guess I can wait a week.

Thanks for reading this if you got this far.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
https://www.celiac.com/blogs/blog/1202-gluten-free-and-specialty-diet-recipes/
  • Blog Entries

  • ×
    ×
    • Create New...