Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

vanillazeis

Nighttime Reactions

Rate this topic

Recommended Posts

My daughter has celiac... positive blood work, biospy confirmed, but she does NOT have the "typical celiac reaction". When she gets gluten, or milk or soy it always seems like her reaction comes at 9 or 10 at night, a few hours after she goes to bed. Usually i put her in bed, she falls asleep (we still have a video monitor in there, because shes across the house) and then a few hours later she sits up in bed and starts yelling "MOMMA, i need puke!!!" Last time, it was due to a soy intolerance (soy is fairly new for us) and my husband went in and got her, and when she came in to our room her belly was the size of a basketball (literally, i wish i would have taken a picture for the other thread that needed one) and she threw up twice and went back to bed. Anyone else have a similar experience? I always have a hard time figuring it out, because her reaction could be 3 hours later or 12 hours later. Anyone else have vomiting for their main celiac reaction rather than diahhrea? I never really see anyone mention it, although i read it is a less common reaction. Anyone?

Share this post


Link to post
Share on other sites

Vomiting isn't my main reaction, but I've found out that it's definitely there. After my last gluten challenge (and I do mean my LAST) I got my usual symptoms- diarrhea and crushing heartburn- and then the next day came the pukies. It was horrible.

Maybe the timing of her reaction has something to do with what her metabolism does after she's fallen asleep... Dunno, just a thought.

Share this post


Link to post
Share on other sites
Vomiting isn't my main reaction, but I've found out that it's definitely there. After my last gluten challenge (and I do mean my LAST) I got my usual symptoms- diarrhea and crushing heartburn- and then the next day came the pukies. It was horrible.

Maybe the timing of her reaction has something to do with what her metabolism does after she's fallen asleep... Dunno, just a thought.

Yes, that's pretty much what i keep thinking, that theres something about when she lays down she's not moving around, getting any gas out, and she just wakes up with this HUGE gas-filled belly, and throws up. It's really it weird, especially when i read about other peoples reactions on here.

Thanks for the insight!

Share this post


Link to post
Share on other sites

Before going gluten free my son didn't vomit. But now that he is gluten free and has been since October again he does. In the past couple of weeks he had a couple of incidences, dh gave him something to eat he wasn't sure of. The next morning my son vomitted one time and than was fine.

The weekend after we had some new dish and the ingredients looked safe so I'm thinking there might have been traces of gluten or something else he doesn't tolerate in it and he vomitted again the next morning.

This past weekend he had some french fries from Mcdonalds and a tender grilled chicken patty and vomitted the next day again. So we'll stay away from trying anything new for now, it's just not worth it.

Share this post


Link to post
Share on other sites
Before going gluten free my son didn't vomit. But now that he is gluten free and has been since October again he does. In the past couple of weeks he had a couple of incidences, dh gave him something to eat he wasn't sure of. The next morning my son vomitted one time and than was fine.

The weekend after we had some new dish and the ingredients looked safe so I'm thinking there might have been traces of gluten or something else he doesn't tolerate in it and he vomitted again the next morning.

This past weekend he had some french fries from Mcdonalds and a tender grilled chicken patty and vomitted the next day again. So we'll stay away from trying anything new for now, it's just not worth it.

Thanks for your response... it's nice to know this isnt too uncommon. I always sort of wonder if something else is going on as well, since i never hear other people say their kids throw up. Watch out for McDonalds, their french fries do have wheat as an ingredient (and also milk and beef)!!

Share this post


Link to post
Share on other sites

We are currently in Germany and their french fries do not contain wheat. It's weird how different the fast food chains are around the world.

Share this post


Link to post
Share on other sites

None of my two ever vomited, but their beelies do however get HUGE, and both of them ALWAYS HAVE and had their reacrtions at night, anywhere from about 2 hours tow 3-4 hours after going down! The average is about 3 hours after going down! and it continues all night long almost, my daughter will be so gassy, but she can only pass the gas when she's upright- so eveyrtime I pic her up she'll almost set her diaper on fire, once it's all out she'll pass right out from being so exausted and being so tired, just to wake up anywhere from 5-30 minutes later to do the same! I've been smiled at by regular people and by Dr.s for that observation! With my son too it was Milk or Gluten, I only suspected milk though as the culprit and not Gluten! It just now iwht my daughter dawned on me! My kids also get extremely constipated after being glutened rather then diarrhea actually! their main symptoms are extreme constipation (one glutening results in one week constipation), and huge foul smelling gas. My daughter will continue to have nightly symptoms for almost two weeks after beeing glutenend!!!! Oh and I dfo have to mentioned that my dd was diagnosed with Acid reflux a pretty coomon sideeffect in infants for beeing sensitive to wheat/celiac!

My daughter has celiac... positive blood work, biospy confirmed, but she does NOT have the "typical celiac reaction". When she gets gluten, or milk or soy it always seems like her reaction comes at 9 or 10 at night, a few hours after she goes to bed. Usually i put her in bed, she falls asleep (we still have a video monitor in there, because shes across the house) and then a few hours later she sits up in bed and starts yelling "MOMMA, i need puke!!!" Last time, it was due to a soy intolerance (soy is fairly new for us) and my husband went in and got her, and when she came in to our room her belly was the size of a basketball (literally, i wish i would have taken a picture for the other thread that needed one) and she threw up twice and went back to bed. Anyone else have a similar experience? I always have a hard time figuring it out, because her reaction could be 3 hours later or 12 hours later. Anyone else have vomiting for their main celiac reaction rather than diahhrea? I never really see anyone mention it, although i read it is a less common reaction. Anyone?

Share this post


Link to post
Share on other sites
We are currently in Germany and their french fries do not contain wheat. It's weird how different the fast food chains are around the world.

I am German, living currently for the past 6 years in the state, that in Germany however they do cook other things in the same oil they cook the frenchfries which are not glutenfree, the Apple and cherrypockets for example are fried in German y (which makes them so much tasdtier I don't like the ones here in the states) but ti does however add gluten to the oil, also the hasbrowns there I'm not sure are a 100% glutenfree or what ever! even if the frenchfries are glutenfree you can NEVER count on it that the oil is glutenfree since often things get cooked in the same, just like here inthe states! ;)

Vanillaeis, thanks for the hint, when we where brandnew to this whole things just several short motnh ago, I stil gave my dd the MC donalds fries, not thinking that the Nuggets and stuff are done in the same oil, I was dumb! I did however suspect that their frenchfries might as well contain wheat too since I read my homefries and dfid in fact see there too that those simple fries contained milk AND wheat- I had always thought frenchfries are only potatoes! I was dumb, now I know that ALL the lables ALWAYS have to be read and that if you are not sure aobut some thing you should not ever give it to your child (of if you the celiac yourself). I bought a book I think is worth Gold, it's called "Glutenfree for Dummies" you know those books yellow and black ! that book is awesome! not only is she a celiac herself and has been glutenfree since 91 she writes with such humor as well, that even though it's a pretty big book it's easy reading! I've read many other books on the subject but found that one to be the best! there is not a single thing she doesn't go into, startting from finding out aobut it to reading lables and what to be aware, from how to aks the right questions when calling customerservice of a producrt, to which things are naturally glutenfree to how to tunr every single one of your favourite recepies in to a glutenfree one to basking to how much glutenfree gloewr to use as a substitute for real one andandand, I'm only half way through and there is still so much more to come! I for example did not know that Soy-sauces ALWAYS contain wheat unless it explicitely says so on the bottle that it does not whichis rare! I did NOT know that Malt is a gluten-trap and is used in many things called natural falvore.... I can highly recommend this book to you! I LOVE it!

Share this post


Link to post
Share on other sites
I am German, living currently for the past 6 years in the state, that in Germany however they do cook other things in the same oil they cook the frenchfries which are not glutenfree, the Apple and cherrypockets for example are fried in German y (which makes them so much tasdtier I don't like the ones here in the states) but ti does however add gluten to the oil, also the hasbrowns there I'm not sure are a 100% glutenfree or what ever! even if the frenchfries are glutenfree you can NEVER count on it that the oil is glutenfree since often things get cooked in the same, just like here inthe states! ;)

Vanillaeis, thanks for the hint, when we where brandnew to this whole things just several short motnh ago, I stil gave my dd the MC donalds fries, not thinking that the Nuggets and stuff are done in the same oil, I was dumb! I did however suspect that their frenchfries might as well contain wheat too since I read my homefries and dfid in fact see there too that those simple fries contained milk AND wheat- I had always thought frenchfries are only potatoes! I was dumb, now I know that ALL the lables ALWAYS have to be read and that if you are not sure aobut some thing you should not ever give it to your child (of if you the celiac yourself). I bought a book I think is worth Gold, it's called "Glutenfree for Dummies" you know those books yellow and black ! that book is awesome! not only is she a celiac herself and has been glutenfree since 91 she writes with such humor as well, that even though it's a pretty big book it's easy reading! I've read many other books on the subject but found that one to be the best! there is not a single thing she doesn't go into, startting from finding out aobut it to reading lables and what to be aware, from how to aks the right questions when calling customerservice of a producrt, to which things are naturally glutenfree to how to tunr every single one of your favourite recepies in to a glutenfree one to basking to how much glutenfree gloewr to use as a substitute for real one andandand, I'm only half way through and there is still so much more to come! I for example did not know that Soy-sauces ALWAYS contain wheat unless it explicitely says so on the bottle that it does not whichis rare! I did NOT know that Malt is a gluten-trap and is used in many things called natural falvore.... I can highly recommend this book to you! I LOVE it!

I actually just saw that book at the book store the other day, i was wondering if it was any good... like you, i read everything i can get my hands on about celiac :) If your kiddo has something you might as well know everything about it... i dont understand people that dont read. Thats why i like these boards. You can assume that if people take the time to get on here, that they are eduacated, or atleast they're trying. I know 2 celiacs in real life, and both of them are ignorant about celiac.

Share this post


Link to post
Share on other sites

I am German as well, lol. The McDonalds we go to over here has a dedicated fryer for the french fries. It's usually the smaller McDonalds over here in Germany that don't have enough room for an extra fryer that fry things in the same oil.

Share this post


Link to post
Share on other sites

Nighttime wast he only time I noticed it in my son. Starting when he started getting some finger foods like cheerios and graham crackers and biter biscuits. His symptoms were waking about 1 1/2 hours after going down SCREAMING. His stomach would be rock hard and he's be going hoarse. I'd go to him and pick him up and as soon as I'd put pressure on his belly he'd let out wet sounding burps. He'd get them out and then go limp in my arms back to sleep. Only to do it again an hour later. Night after night after night while I tried to figure out what we were eating (he's bf) that would cause this.

Now during the day I will notice him as super clingy and irritable and mean if one of us has had something "unsure." I'm pretty good about making sure if there is any doubt HE doesn't get it, but I'm a lil more lenient on myself because sometimes what I eat bothers him and other times it doesn't. I think its the amount that I take in.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
Yes, I had to stop eating Schar bread because I was getting sick on it all the time. I believe if I am not mistaken (it has been a long time) the Artisan line does not. I received this tip from someone else, and I don’t know if it is accurate but it seemed to help me, at least. 
  • Blog Entries

  • ×
    ×
    • Create New...