Nighttime Reactions

[vanillazeis]

My daughter has celiac... positive blood work, biospy confirmed, but she does NOT have the "typical celiac reaction". When she gets gluten, or milk or soy it always seems like her reaction comes at 9 or 10 at night, a few hours after she goes to bed. Usually i put her in bed, she falls asleep (we still have a video monitor in there, because shes across the house) and then a few hours later she sits up in bed and starts yelling "MOMMA, i need puke!!!" Last time, it was due to a soy intolerance (soy is fairly new for us) and my husband went in and got her, and when she came in to our room her belly was the size of a basketball (literally, i wish i would have taken a picture for the other thread that needed one) and she threw up twice and went back to bed. Anyone else have a similar experience? I always have a hard time figuring it out, because her reaction could be 3 hours later or 12 hours later. Anyone else have vomiting for their main celiac reaction rather than diahhrea? I never really see anyone mention it, although i read it is a less common reaction. Anyone?

[Ridgewalker]

Vomiting isn't my main reaction, but I've found out that it's definitely there. After my last gluten challenge (and I do mean my LAST) I got my usual symptoms- diarrhea and crushing heartburn- and then the next day came the pukies. It was horrible.

Maybe the timing of her reaction has something to do with what her metabolism does after she's fallen asleep... Dunno, just a thought.

[vanillazeis]

Vomiting isn't my main reaction, but I've found out that it's definitely there. After my last gluten challenge (and I do mean my LAST) I got my usual symptoms- diarrhea and crushing heartburn- and then the next day came the pukies. It was horrible.

Maybe the timing of her reaction has something to do with what her metabolism does after she's fallen asleep... Dunno, just a thought.

Yes, that's pretty much what i keep thinking, that theres something about when she lays down she's not moving around, getting any gas out, and she just wakes up with this HUGE gas-filled belly, and throws up. It's really it weird, especially when i read about other peoples reactions on here.

Thanks for the insight!

[Owen'sMom]

Before going gluten free my son didn't vomit. But now that he is gluten free and has been since October again he does. In the past couple of weeks he had a couple of incidences, dh gave him something to eat he wasn't sure of. The next morning my son vomitted one time and than was fine.

The weekend after we had some new dish and the ingredients looked safe so I'm thinking there might have been traces of gluten or something else he doesn't tolerate in it and he vomitted again the next morning.

This past weekend he had some french fries from Mcdonalds and a tender grilled chicken patty and vomitted the next day again. So we'll stay away from trying anything new for now, it's just not worth it.

[vanillazeis]

Before going gluten free my son didn't vomit. But now that he is gluten free and has been since October again he does. In the past couple of weeks he had a couple of incidences, dh gave him something to eat he wasn't sure of. The next morning my son vomitted one time and than was fine.

The weekend after we had some new dish and the ingredients looked safe so I'm thinking there might have been traces of gluten or something else he doesn't tolerate in it and he vomitted again the next morning.

This past weekend he had some french fries from Mcdonalds and a tender grilled chicken patty and vomitted the next day again. So we'll stay away from trying anything new for now, it's just not worth it.

Thanks for your response... it's nice to know this isnt too uncommon. I always sort of wonder if something else is going on as well, since i never hear other people say their kids throw up. Watch out for McDonalds, their french fries do have wheat as an ingredient (and also milk and beef)!!

[Owen'sMom]

We are currently in Germany and their french fries do not contain wheat. It's weird how different the fast food chains are around the world.

[ShayBraMom]

None of my two ever vomited, but their beelies do however get HUGE, and both of them ALWAYS HAVE and had their reacrtions at night, anywhere from about 2 hours tow 3-4 hours after going down! The average is about 3 hours after going down! and it continues all night long almost, my daughter will be so gassy, but she can only pass the gas when she's upright- so eveyrtime I pic her up she'll almost set her diaper on fire, once it's all out she'll pass right out from being so exausted and being so tired, just to wake up anywhere from 5-30 minutes later to do the same! I've been smiled at by regular people and by Dr.s for that observation! With my son too it was Milk or Gluten, I only suspected milk though as the culprit and not Gluten! It just now iwht my daughter dawned on me! My kids also get extremely constipated after being glutened rather then diarrhea actually! their main symptoms are extreme constipation (one glutening results in one week constipation), and huge foul smelling gas. My daughter will continue to have nightly symptoms for almost two weeks after beeing glutenend!!!! Oh and I dfo have to mentioned that my dd was diagnosed with Acid reflux a pretty coomon sideeffect in infants for beeing sensitive to wheat/celiac!

My daughter has celiac... positive blood work, biospy confirmed, but she does NOT have the "typical celiac reaction". When she gets gluten, or milk or soy it always seems like her reaction comes at 9 or 10 at night, a few hours after she goes to bed. Usually i put her in bed, she falls asleep (we still have a video monitor in there, because shes across the house) and then a few hours later she sits up in bed and starts yelling "MOMMA, i need puke!!!" Last time, it was due to a soy intolerance (soy is fairly new for us) and my husband went in and got her, and when she came in to our room her belly was the size of a basketball (literally, i wish i would have taken a picture for the other thread that needed one) and she threw up twice and went back to bed. Anyone else have a similar experience? I always have a hard time figuring it out, because her reaction could be 3 hours later or 12 hours later. Anyone else have vomiting for their main celiac reaction rather than diahhrea? I never really see anyone mention it, although i read it is a less common reaction. Anyone?

[ShayBraMom]

We are currently in Germany and their french fries do not contain wheat. It's weird how different the fast food chains are around the world.

I am German, living currently for the past 6 years in the state, that in Germany however they do cook other things in the same oil they cook the frenchfries which are not glutenfree, the Apple and cherrypockets for example are fried in German y (which makes them so much tasdtier I don't like the ones here in the states) but ti does however add gluten to the oil, also the hasbrowns there I'm not sure are a 100% glutenfree or what ever! even if the frenchfries are glutenfree you can NEVER count on it that the oil is glutenfree since often things get cooked in the same, just like here inthe states!

Vanillaeis, thanks for the hint, when we where brandnew to this whole things just several short motnh ago, I stil gave my dd the MC donalds fries, not thinking that the Nuggets and stuff are done in the same oil, I was dumb! I did however suspect that their frenchfries might as well contain wheat too since I read my homefries and dfid in fact see there too that those simple fries contained milk AND wheat- I had always thought frenchfries are only potatoes! I was dumb, now I know that ALL the lables ALWAYS have to be read and that if you are not sure aobut some thing you should not ever give it to your child (of if you the celiac yourself). I bought a book I think is worth Gold, it's called "Glutenfree for Dummies" you know those books yellow and black ! that book is awesome! not only is she a celiac herself and has been glutenfree since 91 she writes with such humor as well, that even though it's a pretty big book it's easy reading! I've read many other books on the subject but found that one to be the best! there is not a single thing she doesn't go into, startting from finding out aobut it to reading lables and what to be aware, from how to aks the right questions when calling customerservice of a producrt, to which things are naturally glutenfree to how to tunr every single one of your favourite recepies in to a glutenfree one to basking to how much glutenfree gloewr to use as a substitute for real one andandand, I'm only half way through and there is still so much more to come! I for example did not know that Soy-sauces ALWAYS contain wheat unless it explicitely says so on the bottle that it does not whichis rare! I did NOT know that Malt is a gluten-trap and is used in many things called natural falvore.... I can highly recommend this book to you! I LOVE it!

[vanillazeis]

I am German, living currently for the past 6 years in the state, that in Germany however they do cook other things in the same oil they cook the frenchfries which are not glutenfree, the Apple and cherrypockets for example are fried in German y (which makes them so much tasdtier I don't like the ones here in the states) but ti does however add gluten to the oil, also the hasbrowns there I'm not sure are a 100% glutenfree or what ever! even if the frenchfries are glutenfree you can NEVER count on it that the oil is glutenfree since often things get cooked in the same, just like here inthe states!

Vanillaeis, thanks for the hint, when we where brandnew to this whole things just several short motnh ago, I stil gave my dd the MC donalds fries, not thinking that the Nuggets and stuff are done in the same oil, I was dumb! I did however suspect that their frenchfries might as well contain wheat too since I read my homefries and dfid in fact see there too that those simple fries contained milk AND wheat- I had always thought frenchfries are only potatoes! I was dumb, now I know that ALL the lables ALWAYS have to be read and that if you are not sure aobut some thing you should not ever give it to your child (of if you the celiac yourself). I bought a book I think is worth Gold, it's called "Glutenfree for Dummies" you know those books yellow and black ! that book is awesome! not only is she a celiac herself and has been glutenfree since 91 she writes with such humor as well, that even though it's a pretty big book it's easy reading! I've read many other books on the subject but found that one to be the best! there is not a single thing she doesn't go into, startting from finding out aobut it to reading lables and what to be aware, from how to aks the right questions when calling customerservice of a producrt, to which things are naturally glutenfree to how to tunr every single one of your favourite recepies in to a glutenfree one to basking to how much glutenfree gloewr to use as a substitute for real one andandand, I'm only half way through and there is still so much more to come! I for example did not know that Soy-sauces ALWAYS contain wheat unless it explicitely says so on the bottle that it does not whichis rare! I did NOT know that Malt is a gluten-trap and is used in many things called natural falvore.... I can highly recommend this book to you! I LOVE it!

I actually just saw that book at the book store the other day, i was wondering if it was any good... like you, i read everything i can get my hands on about celiac If your kiddo has something you might as well know everything about it... i dont understand people that dont read. Thats why i like these boards. You can assume that if people take the time to get on here, that they are eduacated, or atleast they're trying. I know 2 celiacs in real life, and both of them are ignorant about celiac.

[Owen'sMom]

I am German as well, lol. The McDonalds we go to over here has a dedicated fryer for the french fries. It's usually the smaller McDonalds over here in Germany that don't have enough room for an extra fryer that fry things in the same oil.

[jenilee]

Nighttime wast he only time I noticed it in my son. Starting when he started getting some finger foods like cheerios and graham crackers and biter biscuits. His symptoms were waking about 1 1/2 hours after going down SCREAMING. His stomach would be rock hard and he's be going hoarse. I'd go to him and pick him up and as soon as I'd put pressure on his belly he'd let out wet sounding burps. He'd get them out and then go limp in my arms back to sleep. Only to do it again an hour later. Night after night after night while I tried to figure out what we were eating (he's bf) that would cause this.

Now during the day I will notice him as super clingy and irritable and mean if one of us has had something "unsure." I'm pretty good about making sure if there is any doubt HE doesn't get it, but I'm a lil more lenient on myself because sometimes what I eat bothers him and other times it doesn't. I think its the amount that I take in.