Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rash Question


bird0705

Recommended Posts

bird0705 Newbie

I am new to this board and have a question. I recently discovered that I am gluten intolerent through alot of reading and research. i try to be very carefull with what I eat and for the most part do ok, but my question is about DH. Last month I noticed a spot on my upper thigh, I thought it was a pimple but it dident go away. It ended up looking like a dime sized patch of red,scaley skin. Then I got another on my shoulder, then another 4 more on my upper thighs. Is this DH?? Does it go away? I go to the doctor next month and will ask, but in the mean time this is really bothering me. Any help would be appreciated.

Robin.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

The way you describe it, it doesn't sound like DH to me. My DH looked like blisters filled with clear fluid. And they itched so bad I'd scratch them til they bled.

richard

darlindeb25 Collaborator
;) hi robin--i get those same kind of patches--maybe not DH, but i am willing to bet its still related to gluten intoerance in some way--i just went through a bout of this myself--i got the 1st spot on one elbow, then the other followed in a few days--finally going away after 2 weeks now--i have a dry patch like that on my leg now too--usually for me, it is just dry patches, this last time i had raised spots that itched a lot--just keep gluten free and do the best u can--watch your lotions and soaps for gluten too--deb
cdford Contributor

My daughter got some of those patches. They have a name, but I can't remember it. It is a side symptom of the celiac and can also be caused by recurrent EBV (that's how we learned about them then segued into the celiac/dh diagnosis).

Most of our "celiac bumps" are the pus pocket things that look more like chicken pox or poison ivy, but what you are describing sounds like Jenn's first outbreak.

Donna

cdford Contributor

Okay, so it drove me crazy until I went and got the info...

The name was pityriasis lichenoides (PLEVA is a form of it). It it hard to find info on it because it is not a real common form of rash. I got the info from our dermatologist who got it off a sit called emedicine.com. There was another site from New Zealand that had good info.

At any rate, what I remember of it was that it comes and goes and usually clears up on its own unless it is a side symptom of another illness (guess what it was for us). Then, it only clears up completely when the trigger clears.

Don't know if it is what you are looking for, but at least it may give you a place to start researching.

Donna

bird0705 Newbie

Thank you all for the information! I go to the doctors on the 6th, but it's nice to have some information ahead of time.

Take care,

Robin.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,230
    • Most Online (within 30 mins)
      7,748

    CarolfromSanDiego
    Newest Member
    CarolfromSanDiego
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Betsy Crum
      Thank you for your response! I have considered starting a food diary in the past, I suppose this is as good a time as any to start.  
    • Betsy Crum
      I don't have health insurance so I have never had any testing done. I always thought if I stay away from gluten Ill be fine but I suppose that isn't enough anymore. I will look into getting an allergy test. Thank you for your input! 
    • trents
      I remember reading an article summarizing testing done by Gluten Free Watchdog on several brands of dried lentils. They were all heavily cross contaminated with wheat and the commentary was to the effect that dried lentils in general were the most heavily cross contaminated product category in their testing data base. So, I would definitely not use any dried lentil product that was not tested to be Gluten Free (<20ppm of gluten) or Certified Gluten Free (<10ppm of gluten).
    • Scott Adams
      While spices, lentils, beans and chickpeas are naturally gluten-free, the main concern with any brand is cross-contamination during processing and packaging. Since Suraj doesn't appear to certify their products as gluten-free or use dedicated gluten-free facilities, there is some risk of trace gluten exposure, especially with their corn flour which could be milled on shared equipment with gluten-containing grains. For absolute safety, I'd recommend looking for brands that are certified gluten-free by organizations like GFCO - good options include McCormick for spices, TruRoots or Bob's Red Mill for lentils and beans, and Anthony's for corn flour. That said, if you need to use Suraj products, be sure to carefully check labels for any wheat warnings, thoroughly rinse lentils and beans before cooking, and consider contacting the manufacturer directly to ask about their gluten testing protocols. Many in our community have found that investing in certified gluten-free brands gives them greater peace of mind and helps avoid accidental gluten exposure, especially for higher-risk items like flours.
    • Scott Adams
      Dapsone, commonly prescribed for dermatitis herpetiformis (the itchy gluten-related skin condition), comes with several potential side effects that patients should monitor. The most frequent issues include blood-related problems like hemolytic anemia (especially in those with G6PD deficiency, which is more common in certain ethnic groups) and methemoglobinemia that can cause fatigue, shortness of breath, or bluish skin. Many patients also experience headaches, nausea, dizziness, or skin sensitivity to sunlight. While these effects are often manageable, there are rare but serious risks including dapsone hypersensitivity syndrome (with fever, rash and organ inflammation), liver problems, or severe anemia that require immediate medical attention. That's why doctors typically monitor blood counts and liver enzymes regularly during treatment. A crucial tip: proton pump inhibitors like omeprazole can interfere with dapsone's effectiveness, so discuss all medications with your doctor. If you develop fever, unexplained fatigue, yellowing skin/eyes, or a spreading rash while on dapsone, stop taking it and contact your healthcare provider right away. For celiac patients specifically, remember that strict gluten-free eating may eventually reduce or eliminate the need for dapsone to control dermatitis herpetiformis symptoms over time.
×
×
  • Create New...