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Chuckles

Pain In The Back Of The Chest

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Hi there, I have just been diagnosed with Coeliac and have had many symptoms which are listed on various web sites. However, I keep getting severe pain in the back of my chest to the point that even with a combination of painkillers at the same time cannot even touch it. It comes on several hours a day and is like waves of pain or something turning and moving around - I cannot walk when it is really bad and have trouble sitting still as the pain moves around. I have had many scans and tests all of which assure me that there is 'nothing nasty' according to the doctors but the pain is having a major impact on my life. I am also told the pain is in the wrong place, wrong place for what I dont know but it is what it is . I was diagnosed Xmas eve just gone and started the gluten free diet immediately - just after the New Year the pain went altogether until two weeks ago and I have had it every day since then - I would be very grateful if any one could let me know if you have experienced anything similar.

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Hi there, I have just been diagnosed with Coeliac and have had many symptoms which are listed on various web sites. However, I keep getting severe pain in the back of my chest to the point that even with a combination of painkillers at the same time cannot even touch it. It comes on several hours a day and is like waves of pain or something turning and moving around - I cannot walk when it is really bad and have trouble sitting still as the pain moves around. I have had many scans and tests all of which assure me that there is 'nothing nasty' according to the doctors but the pain is having a major impact on my life. I am also told the pain is in the wrong place, wrong place for what I dont know but it is what it is . I was diagnosed Xmas eve just gone and started the gluten free diet immediately - just after the New Year the pain went altogether until two weeks ago and I have had it every day since then - I would be very grateful if any one could let me know if you have experienced anything similar.

That must be so frustrating! I feel for you. What kinds of doctors have you tried so far? Will your insurance let you go to a specialist without a referral? And have you tried a chiropractor? A good chiropractor may at least be able to steer you in the right direction if he or she cannot help you. Do not give up, but keep going to different kinds of doctors until you find out what this is.

While I have never had a pain like the one you describe, I have had other pains and problems that conventional doctors have been "unable" to find the reason for. Conventional medicine can sometimes be very rigid, until you find a doctor with a more open mind than many of them have.

Good luck! :)

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Hi there, I have just been diagnosed with Coeliac and have had many symptoms which are listed on various web sites. However, I keep getting severe pain in the back of my chest to the point that even with a combination of painkillers at the same time cannot even touch it. It comes on several hours a day and is like waves of pain or something turning and moving around - I cannot walk when it is really bad and have trouble sitting still as the pain moves around. I have had many scans and tests all of which assure me that there is 'nothing nasty' according to the doctors but the pain is having a major impact on my life. I am also told the pain is in the wrong place, wrong place for what I dont know but it is what it is . I was diagnosed Xmas eve just gone and started the gluten free diet immediately - just after the New Year the pain went altogether until two weeks ago and I have had it every day since then - I would be very grateful if any one could let me know if you have experienced anything similar.

I have had similar things--my lungs are very sensitive I think too to both stress and celiac. I first got pneumonia after all as an infant after first being introduced to grains.

Thus it really could be part of the celiac. I have read somewhere or other that it is one way celiac can manifest. Sometimes it causes areas of sensitivity in the lungs which can eventually have DH like sores. You might be getting hidden glutens in your diet or just from some shampoo, toothpaste or other hidden source like an old toaster or frying pan. You need to be a detective to figure out what is what...This is my best advice.

Apart from staying away from all gluten, Detoxification can also help lessen the problem. Herbs again like dandelion, burdock, yellow dock etc. and maybe some licorice root (this last if you don't have high blood pressure). You could also use a little lobelia to relax and lessen the pain. And using a Sauna will help detox the lungs quite a lot--as will aerobic exercise.

However it also could be that you need some kind of adjustment. It might be a bone or muscle out of place. For myself now I do yoga and that really helps keep that and other parts of my body working well together. Deep breathing helps too. Seeing a chiropractor might help. Also going to the Y and using the jacuzzi or getting a good massage or two...

Then too if nothing above works, I would see an acupuncturist. It might be some kind of energy or pinched nerve problem...

Or yet another undiagnosed allergen. If so, go on a fast or simplified paleolithic diet (roots, vegetables, some fruit with, later on, a little meat) and reintroduce your foods slowly to detect the culprit. You might check your pulse too. If its high sometimes and low otherwise despite no concurrent exercise this definitely indicates an allergen.


Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

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About 2 years ago I was going to the dr about my high pulse and I was getting this REALLY bad pain in my upper chest that went through to my back. The dr's could not figure it out I did lots of heart tests to make sure there were no other problems. Months later during the busy season at work I was moving lots of boxes to put stock out and I got a really bad pain in my lower back (where I was crying from the pain). My dr had me get an x-ray but nothing showed up.

My in-laws and husband suggested going to their chiropractor. MY GOSH he helped soooo much!! He did his magic cracking and then I asked about the chest pain and it was like my rib was poking out of place and hitting a nerve which caused the stricking pain that felt like chest problems and then boom the pain was gone. I was shocked and amazed b/c I had never been to a chiropractor before. I have learned that you have to watch how you sleep (i.e. if you lay on your stomach with one leg straight and one bent it messed with your hip bone area or how you place your arms above you head or under the pillow can mess with the bones in your upper chest/neck).

Oh... the pain that I got in my chest area would come and go during the day, it was not constant the whole day and I could not pin point if I did something that it would make the pain come.

Hope you can figure out what is causing the pain. :(

Best of luck.


Rebecca

Partial Gluten Free March 2007

Completely Gluten Free February 2008

Tapioca Starch/Flour Free April 2008

No MSG July 2008

Cut out Nitrates//Nitrites January 2009

Problems with Tomatoes and Potatoes -- Cut out Nightshades Aug '09

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Hi there, I have just been diagnosed with Coeliac and have had many symptoms which are listed on various web sites. However, I keep getting severe pain in the back of my chest to the point that even with a combination of painkillers at the same time cannot even touch it. It comes on several hours a day and is like waves of pain or something turning and moving around - I cannot walk when it is really bad and have trouble sitting still as the pain moves around. I have had many scans and tests all of which assure me that there is 'nothing nasty' according to the doctors but the pain is having a major impact on my life. I am also told the pain is in the wrong place, wrong place for what I dont know but it is what it is . I was diagnosed Xmas eve just gone and started the gluten free diet immediately - just after the New Year the pain went altogether until two weeks ago and I have had it every day since then - I would be very grateful if any one could let me know if you have experienced anything similar.

Chuckles

Do you mean that your pain is on your back, under your shoulder blade? If yes, which side? Does it move around after belching or having gas in your intestines move around?


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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