Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Frustrated In Colorado


Guest hightop girl

Recommended Posts

Guest hightop girl

I am frustrated. I was diagnosed in July. At that time I was extremely anemic and had gained about 30 lbs, mostly water retention. Since August I got the anemia under control and lost about 25 pounds. I am training for a 1/2 ironman, and now have gained at least 5 pounds back. I really only eat fruits, veggies, and fish ( and really only a few potato chips) I somehow ate some gluten this weekend, spent the whole night getting sick, and today weigh even more. The weight gain just adds insult to injury. I do not eat any of the "gluten free" pasta or snacks... what the heck is going on?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

For some of us celiac can impact the function of the kidneys. When glutened we will retain water. That can cause a temporary increase on the scale until our system clears out. If you wear rings the easiest way to know if that is what is going on is if they are too tight after a glutening. Make sure you are getting lots of water it will help clear things out of your system as quickly as possible.

Link to comment
Share on other sites
Guest hightop girl

Thanks. That makes sense. My body reacts the same way when I have seasonal allergies. It seems to be an autoimmune response for my body. Thank you for your support.

Link to comment
Share on other sites
confused Community Regular

What part of colorado are you from?

Link to comment
Share on other sites
Guest hightop girl

I live in the north part of Colorado Springs. I think I am going to try to find out when the support group here meets. This is just more complicated than I thought.

Link to comment
Share on other sites
roxie Contributor

Hey, It's me Roxie. You responded to my concern of gaining weight. Your kind and supportive words were extremely appreciated. It sounds like we have some things in common. I can totally relate to what you are saying. I would be so happy if I could get rid of the bloating. I'm trying so hard to be gluten free, but it's so crazy, because now I'm reading about things I may have never thought of like vitamins, medicines, and lipstick. This disease is so much work! It also sounds like you are very active. I envy you. I used to also be very active, and had started running. However, I hurt my back very badly, and I have scoliosis. My doctor said that I should stick to pilates and yoga. My physical appearance is extremely important to me, and I would give anything to be able to run or bike again. Maybe someday I will be able to resume some of those activities. Right now I am mostly trying to stick to a lot of fresh fruits and vegetables, brown rice, and chicken. But, I discovered the gluten free mall, and I have been ordering gluten free chips, cookies, and crackers like crazy (and that is probably really bad)! I also tried gluten free bread last night, but thought it was gross. I'm going to try and stay clear of breads though. Anyway, we should stick together. I know my Husband and family probably get SO TIRED of me talking about my celiac disease and my bloated stomach. It's really nice to talk with someone who shares my problems. Thanks. Roxie

Link to comment
Share on other sites
Guest hightop girl

I understand about the bloating too. It does get better. Mine was really bad. I have a 23" waist normally (so I really have nothing to complain about) but when I eat something with gluten it can expand to 28-29". I have found that cutting out milk as well, diet coke, and dried fruit has helped. I also did a lot of detox baths with epsom salt, ginger and baking soda. You can find the directions on line. I do try to steer clear of the gluten free pasta, bread, etc, just because I don't really need them.

You can feel free to vent, etc. to me any time.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



roxie Contributor

I got interested when I read what you said about the detox bath. I looked it up on the internet and found the recipe. I'm going to try it. What were the main benefits that you got from it?? Did it make you feel better, and Less Bloated?? Thanks! Roxie

Link to comment
Share on other sites
Guest hightop girl

I was less bloated, my joint swelling goes away, and I slept much better. Plus, I work out and beat myself up too much, and this was just something nice for my body.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...