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Ivanna44

Doc Confirms Gluten Sensitivity. Says Stay gluten-free

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Hi all,

Just an update. I saw my doctor today for a follow up appointment after being one month gluten-free (for the most part) Its a learning process. I told her about the couple of times I got glutten >the 1st time as an experiment and the 2nd time by accidently.

She review my food diary logs, and indicated that "yes" gluten does seem to affect your wellbeing. She indicated that she could send me off to a gasterologist. But, they in turn would only say the same thing in her opinion, to remain gluten-free . She felt I was wise enough to know my own body and how it reacts. She encouraged me to continue to research and remove all traces of gluten from my food items as well as toiletries etc. When I told her how my husband rolled his eyes, when he saw me looking at a gluten-free no-no list for cosmetics. He said, what its in make up too!! rolling his eyes. I tried to say, that you touch your face and then eat something and get gluttened. The doctor confirmed that yes, you need now to remove all traces of gluten from ALL areas of your life, as based on your wellbeing results of being "gluttened" even a trace amount can make you quite sick. Now, it's just a case of getting my husband to understand what this all means. >> OH boy .... he's a stubborn sell. :rolleyes: (big time rolls my eyes)

Phewwwwwwwwwwwwww! I was really worried that she'd order more tests to confirm it. I knew from other postings that you had to "return" to the gluten items, and basically get really Sick :( to prove that gluten was making me sick :(

She wants me to remain gluten-free for the next 2 months at least, give the body time to heal. Then she wants me to redo the blood works to see if there are changes. If there are changes then it definately confirms without a doubt that I should remain gluten-free .

Again, I'd like to thank all of you members for your help with past postings, in helping me with my many (and more to come :) ) questions and just being a huge support in this life style change.

hugs to all.


44 yr old mom, SAHM (stay at home; aka a Retro Mama :D , 2 special needs kids dd 15yrs ds 4 yrs

Follows Compassion Rules "Treat others; they way you wish to be treated"

blood test negative: celiac However, doctor felt other factors in blood works warranted trying the gluten-free diet

April 7/08 Doctor confirms gluten intolerance/ remain gluten-free for 2 more months; and repeat tests

Gluten free since March 4/2008 (other than accidently, or unknown gluten used--- its a learning process, Gluten is everywhere!)

"People are like stained-glassed windows. Best viewed in the light!" unknown author

"I am only as strong as the coffee I drink, and the hairspray I use" :)

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That's the kind of Doctor I want. One that realizes that YOU know your body. And that you have the ability and TIME to research your own issues and hand them to the Dr. for guidance.

I'm very happy for you!

I've no clue what to say about the husband.

Sometimes people do not connect importance to things that do not directly affect them.

I'm not saying your husband is not affected at all. Just not physically *unless you decide to beat the

info into his skull* <_<


4/30/2008 Went Gluten Free

Gluten Sensitivity Gene Test

HLA-DQB1 Molecular analysis, Allele 1 0202

HLA-DQB1 Molecular analysis, Allele 2 0301

Serologic equivalent: HLA-DQ 2,3 (Subtype 2,7)

3/19/2009 11 Months Gluten Free:Gluten Sensitivity Stool Test

Fecal Anti-gliadin IgA 21 Units (Normal Range <10 Units)

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Hi all,

Just an update. I saw my doctor today for a follow up appointment after being one month gluten-free (for the most part) Its a learning process. I told her about the couple of times I got glutten >the 1st time as an experiment and the 2nd time by accidently.

She review my food diary logs, and indicated that "yes" gluten does seem to affect your wellbeing. She indicated that she could send me off to a gasterologist. But, they in turn would only say the same thing in her opinion, to remain gluten-free . She felt I was wise enough to know my own body and how it reacts. She encouraged me to continue to research and remove all traces of gluten from my food items as well as toiletries etc. When I told her how my husband rolled his eyes, when he saw me looking at a gluten-free no-no list for cosmetics. He said, what its in make up too!! rolling his eyes. I tried to say, that you touch your face and then eat something and get gluttened. The doctor confirmed that yes, you need now to remove all traces of gluten from ALL areas of your life, as based on your wellbeing results of being "gluttened" even a trace amount can make you quite sick. Now, it's just a case of getting my husband to understand what this all means. >> OH boy .... he's a stubborn sell. :rolleyes: (big time rolls my eyes)

Phewwwwwwwwwwwwww! I was really worried that she'd order more tests to confirm it. I knew from other postings that you had to "return" to the gluten items, and basically get really Sick :( to prove that gluten was making me sick :(

She wants me to remain gluten-free for the next 2 months at least, give the body time to heal. Then she wants me to redo the blood works to see if there are changes. If there are changes then it definately confirms without a doubt that I should remain gluten-free .

Again, I'd like to thank all of you members for your help with past postings, in helping me with my many (and more to come :) ) questions and just being a huge support in this life style change.

hugs to all.

It's so wonderful to hear that someone has such a wonderful doctor.

As far as your husband goes, if he is anything like mine, he'll come around. "The proof is in the pudding" as they say. As you start to feel better, he'll take notice, and he will be much more motivated to maintain your newfound wellbeing, even doing things that seem so trivial to him now.


Celiac blood testing negative July 2007

Confirmed diagnosis of wheat allergy by skin test Dec 2007

Gluten-lite since July 2007 (didn't know all the hidden sources of gluten)

Gluten-free since December 2007

Life Long Symptoms

Extreme fatigue--needing 10-12 hours of sleep and still woke up exhusted

Allergic to everything--allergies remained out of control despite shots and strict enviornmental controls in my home.

Severe "sinus" headaches

More Recent Symptoms

IBS symptoms

Severe stabbing stomach pains that started 6 months before diagnosis of wheat allergy.

In my heart I feel it is more than an allergy and that I am gluten intolerant. This is based on my how eerily my childhood maladies match most celiac's histories, and my more recent increase in the severity of my usual symptoms and new digestive symptoms that have already started to subside on the gluten-free diet.

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Hi!

I am also recently diagnosed as extremely gluten-sensitive by my specialist...yay for good docs!

My doc never suggested to re-check my blood-work, although I think that's a great idea I might ask about at my next appointment.

The hardest part for me is that I am in university and so preparing food ahead of time and finding food when i am on campus late is very difficult.

I have also addidentally glutened myself a few times :(

But---I am feeling so much better already (2 months) that there is no question that this was the right diagnosis.

How are you finding the gluten free life so far?

-Glutina


-Recently diagnosed with extreme gluten sensitivity

-Celiac test results: negative

-In and out of hospitals and doctors offices for past 5 years with stomach/digestive issues

-Eating disordered past (this most likely triggered gluten issues G.I. thinks)

Symptoms when glutened: Diah. and Cons.; cramping/uncomfortable abdomen; rash on forehead; extreme fatigue; sometimes excruciating abdominal pain; feeling of weakness; acid reflux

**New to the gluten free way of living, but feeling like my old, healthy self again!!**

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