Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Will The "giving Up" Ever End

Guest hightop girl

By Guest hightop girl
in Coping with Celiac Disease

Recommended Posts

Guest hightop girl
Guest hightop girl
Posted

I am sorry... I think I just need to vent. I saw one of my docs today and he put me on an anti- autoimmune diet. The idea is that the inflamation from gluten as well as overgrowth of yeast and other allergies causes my autoimmune system to go hog wild. i have lots of autoimmune problems. My biggest fear is that soon I will just get to drink bottled water... Actually I guess i will live. I gave up fruit earlier this week and my bloating went away and I actually started to lose a few pounds. Now he wants me to give up nuts as well. That actually made me sad. i given up bread, all grains, pizza, fruit, dates, peanut butter, real beer, and now nuts. I may go nuts. Will all of this "giving up" ever end? I should feel grateful that I can control almost all of the autoimmune issues with diet. i should feel grateful that at the ripe old age of 43 I can bike 50 miles and then run 8, and get up and work the next day. I should feel grateful for a lot of things, but right now I wonder if this is worth it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


constantly questioning Newbie
constantly questioning
Posted

I wish I could bike that far and then run that far. I get it...there are days when I am so angry and frustrated that I could cry just thinking about it. At first I felt so down and low because everytime I had to tell someone I couldn't eat something they would look at me and say the same thing. "Oh you can't eat anything with gluten....Oh you poor thing. Can you eat wheat pasta?" AHHHHHHHH

It has been three years and my mother still asks me what I can and can't eat....drives me nuts. And, the nuts....yeah. Sometimes they bother me terribly and sometimes not at all. I am not sure if it is a CC thing or the company or what....I ate peanuts three weeks ago, and they almost had to take me to the hospital. I am a true fan of peanuts, but I had to give them up. However, for some reason Smukers natural peanut butter does not bother me. I keep a list of what bothers me and what doesn't. Yes, there are days I am feeling the same way as you...but when I stick to my diet...and I learned what works and what doesn't...I feel really great again. The lousy feeling goes away. And, once you learn what you can eat, and you slowly add more stuff in...there is day when all of a sudden you realize that you don't have to give everything up, you just have to find its alternative. Hang in there.

AliB Enthusiast
AliB
Posted

I know how you feel. My stomach wouldn't let me eat a lot of those things so I had to really go basic. As it has started to heal, I have been introducing a few things back in and I am now putting on weight at a lb a day and I can't afford to do that! I had lost 2 stone prior to the gluten-free and have now put half a stone back on and I just don't want to be going there - I still need to be losing it!

I have allowed a few carbs and sugars to creep back in and I think that is probably the problem - but even when I was hardly eating any carbs at all I still couldn't shift the weight. It is so frustrating!

I have been following the Specific Carb diet but I was eating some nuts and raisins all the way through - maybe that stopped the weight from going. Carbs of any kind are a real no-no for me and I couldn't cope with dairy, so am at a loss as to what I can have, especially for breakfast and snacks!

Like you say, sometimes the only option seems to be water!

roxie Contributor
roxie
Posted
I am sorry... I think I just need to vent. I saw one of my docs today and he put me on an anti- autoimmune diet. The idea is that the inflamation from gluten as well as overgrowth of yeast and other allergies causes my autoimmune system to go hog wild. i have lots of autoimmune problems. My biggest fear is that soon I will just get to drink bottled water... Actually I guess i will live. I gave up fruit earlier this week and my bloating went away and I actually started to lose a few pounds. Now he wants me to give up nuts as well. That actually made me sad. i given up bread, all grains, pizza, fruit, dates, peanut butter, real beer, and now nuts. I may go nuts. Will all of this "giving up" ever end? I should feel grateful that I can control almost all of the autoimmune issues with diet. i should feel grateful that at the ripe old age of 43 I can bike 50 miles and then run 8, and get up and work the next day. I should feel grateful for a lot of things, but right now I wonder if this is worth it.

Hey, it's Roxie. I felt sad when I read the message you posted. You just can't seem to get a break. I have also had a bad couple of days, and my husband came home tonight to find me crying in my detox bath. I don't care what anyone says - this diet we have to follow SUCKS!! However, we are going to have to find happiness through all of this - somehow! I have two words that I try to stick by when I am feeling down: confidence and faith! IT IS WORTH IT!! All of this will only make us stronger. I read a very inspiring verse in my journal one day: There is a deep peace that grows out of illness and loneliness and a sense of failure. God cannot get close when everything is delightful. He seems to need these darker hours, these empty-hearted hours to mean the most to people.

MDRB Explorer
MDRB
Posted

I once read something on this forum that helped me, maybe it can help you too:

Learn to eat to live, rather than living to eat

I'm sorry you are having such a hard time. If it makes you feel better, I am only 23 and can barely run around the block without being exhausted. You are right, you do have a lot to be grateful for :) I hope you feel better soon.

Guest hightop girl
Guest hightop girl
Posted
I once read something on this forum that helped me, maybe it can help you too:

Learn to eat to live, rather than living to eat

I'm sorry you are having such a hard time. If it makes you feel better, I am only 23 and can barely run around the block without being exhausted. You are right, you do have a lot to be grateful for :) I hope you feel better soon.

Here is a funny thing... I wrote that about learning to eat to live instead of living to eat. Then they took away my last snack. I had a very bingy day of all the last things they didn't want me to have... no gluten issues, just tortilla and sweet potato chips and nuts. Tomorrow i will try to remember that I don't have to be perfect, and that food is not happiness. right now i am trying to not equate eating and self control with dignity and competence

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Scott Adams's article in Summer 2026 Issue
      1

      New Study Finds 1 in 10 Celiac Patients May Have Additional Autoimmune Disorders (+Video)

      Kinda glad I read this and some related materials. My celiac symptoms seem mild and I sometimes question if the hassle of the gluten-free diet/lifestyle is worth it for mild symptoms. This is one of the answers to that. gluten-free diet can delay onset/progression of autoimmune polyglandular syndrome, but cannot reverse it.
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      1 Year Elimination Diet journey

      makes sense. sometimes you learn one path and never question it until you see someone take a different path
    3. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      1 Year Elimination Diet journey

      Interesting I read that toasted kasha groats have nutty flavor which I thought like oatmeal with banana and yogurt. Yes quinoa I have for dinner looking to switch oatmeal to buckwheat for breakfast. I have to look into amaranth
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      1 Year Elimination Diet journey

      I've never tried bananas or yogurt with kasha. It would probably work but in my mind I think of kasha as being on the savory side so I always add butter, peanut butter, or shredded cheddar cheese. Next time I make it I will try yogurt and banana to see for myself. Amaranth has a touch of sweet and I like to pair it with fruit. Quinoa is more neutral. I eat...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      1 Year Elimination Diet journey

      The basic seems more like oatmeal. You can also add yogurt banana to it like oatmeal right. I see rinsing as first step in basic recipes like this one https://busycooks.com/how-to-cook-toasted-buckwheat-groats-kasha/ I don't understand why since kasha is toasted and not raw. What about buckwheat flake cereal or is this better to go with.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,057
    • Most Online (within 30 mins)
      10,442
    Faiga
    Newest Member
    Faiga
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      1 Year Elimination Diet journey

      By Aretaeus Cappadocia · Posted

      makes sense. sometimes you learn one path and never question it until you see someone take a different path
    • xxnonamexx
      1 Year Elimination Diet journey

      By xxnonamexx · Posted

      Interesting I read that toasted kasha groats have nutty flavor which I thought like oatmeal with banana and yogurt. Yes quinoa I have for dinner looking to switch oatmeal to buckwheat for breakfast. I have to look into amaranth 
    • Aretaeus Cappadocia
      1 Year Elimination Diet journey

      By Aretaeus Cappadocia · Posted

      I've never tried bananas or yogurt with kasha. It would probably work but in my mind I think of kasha as being on the savory side so I always add butter, peanut butter, or shredded cheddar cheese. Next time I make it I will try yogurt and banana to see for myself. Amaranth has a touch of sweet and I like to pair it with fruit. Quinoa is more neutral. I eat it plain, like rice, with chicken stock or other savory things, or with coconut milk. Since coconut milk works, I would think yogurt would work (with the quinoa). I went to the link you posted. I really don't know why they rinse the kasha. I've eaten it for decades and never rinsed it. Other than that, her recipe seems fine (that is, add the buckwheat with the water, rather than wait until the water is boiling). She does say something that I forgot: you want to get roasted/toasted buckwheat or you will need to toast it yourself. I've never tried buckwheat flakes. One potential issue with flakes is that there are more processing steps and as a rule of thumb, every processing step is another opportunity for cross-contamination. I have tried something that was a finer grind of the buckwheat than the whole/coarse and I didn't like it as much. But, maybe that was simply because it wasn't "normal" to me, I don't know.
    • xxnonamexx
      1 Year Elimination Diet journey

      By xxnonamexx · Posted

      The basic seems more like oatmeal. You can also add yogurt banana to it like oatmeal right. I see rinsing as first step in basic recipes like this one https://busycooks.com/how-to-cook-toasted-buckwheat-groats-kasha/ I don't understand why since kasha is toasted and not raw. What about buckwheat flake cereal or is this better to go with. 
    • Scott Adams
      Pain in the right side of abdomen

      By Scott Adams · Posted

      Celiac disease can have neurological associations, but the better-described ones include gluten ataxia, peripheral neuropathy, headaches or migraine, seizures, cognitive symptoms, and, rarely, cerebral calcifications or white-matter changes. Some studies and case reports describe brain white-matter lesions in people with celiac disease, but these are not specific to celiac disease and can have many other explanations. A frontal lobe lesion could mean many different things depending on the exact wording of the report: a white-matter spot, inflammation, demyelination, a small old stroke, migraine-related change, infection, trauma, vascular change, seizure-related change, tumor-like lesion, artifact, or something that resolved on repeat imaging. The word “transient” usually means it changed or disappeared, which can happen with some inflammatory, seizure-related, migraine-related, vascular, or imaging-artifact situations.  Hopefully they will find nothing serious.
×
×
  • Create New...