A Year On...?

[bobjonson4]

hey guys

i was diagnosed with celiac disease in july 2007. before then i didnt feel sick as in i was going to throw up, but major bowel issues. so i havent had gluten (unless there was contamination) for over a year now.

but the thing is im still not better. im not putting any weight on, and my bowels still arent back to the way they were. i dread early morning starts as my bowels will always on cue want me to go, and the feeling wont go away until i go again. and it repeats itself.

its so fustrating! im getting fed up with it, because this issue has stopped me from socialising, attending events etc. because i just know im going to start feeling like "i need to go".

and with university starting for me in september, i am as worried about this as ever.

is there anything i can try or do? seriously, im up for giving anything a shot.

thanks for reading this guys. i know its just a rant really but i'm really fed up with this now.

cheers,

bob.

[ShayFL]

Hi Bob,

Have you cut out dairy as well? Many Celiacs cannot heal until they remove dairy. You can remove it for 3 months and if better try to reintroduce it (a lot of people tolerate it after they heal).

Also, soy and corn cause issues for many people Celiac or not. Once you remove your main gastro irritant (gluten) these other irritants show their nasty little heads.

Also consider the SCD (Specific Carbohydrate diet).

Digestive Enzymes including HCL.

Probiotics

SeaCure or Intestive

And be really sure there is no CC (toiletries, creams, toothpaste, dishes, cutting boards, old toasters, etc.

[powerbraid]

I was diagnosed September 2007, and this past year has been the hardest year of my life. It was almost like I felt WORSE after going gluten-free! I had to cut out diary and soy and ALL grains for the good part of the past year. Finally, I seem to be doing well with yogurt (it makes my tummy happy!) and grains such as buckwheat and amaranth. however, corn, and rice still bother me.

Be patient...I know it is hard. I have heard that it can take up to 2 years for the intestines to heal. I feel as though I am still "on the mend."

[oceangirl]

Yes, it is a painful journey sometimes for the first two years... discovering other intolerances and learning where all the hidden gluten is- it can be UNBELIEVABLY discouraging! Hang in there and just keep playing "detective", because you'll find sources of gluten that you'd never guessed were culprits! Keep reading this board and asking for help. There are some tried and true gluten "gumshoes" here!

Hang in there. It took me TWO YEARS to really feel better and I STILL have mysterious glutenings! I make all my own food from whole foods, do not eat most grains except got Tinkyada pasta on occasion and have a gluten-free house!

It WILL get easier.

lisa