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Beth in NC

This May Sound Crazy...

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Ill PM you Liz. You might not shoot, but a firing squad might develop quickly. :huh:


GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

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I didn't think I was very sensitive until I was truly gluten free for about 4 months, and then had some rotisserie chicken from sam's club that I 'thought' had never been a problem before.

Sam's Club's rotisserie chicken used to be gluten-free--they changed suppliers (at least, they did here in PA) to one who uses soy sauce in the marinade. So you weren't imagining things!

Last time I checked, Costco's rotisserie chicken was gluten-free, and they had LOTS of other great gluten-free items, including Trident brand salmon burgers that ARE gluten-free! (In the freezer section)

Your pasta recipe sounds yummy!

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I'm still here...and I'm fine, after having a Chicken Filet Biscuit from Chick-fil-a this morning at 10:30. I have to say I'm a little ticked off. All I had was a moderate belly ache for a couple hours. No gurgling, bloating, nadda...nothing.

Maybe I'm one of those that it takes a while to hit.

Maybe I'm a Silent Celiac.

How am I EVER gonna know if I'm glutened or not? Does that mean all the stuff I THOUGHT had glutened me in the past few weeks was really a fluke? I mean, if a BISCUIT doesn't do it, some trace amount from CC isn't going to do it! But all the while...this stuff is wearing down my small intestine and makes antibodies against other parts of me and attacks them too...leaves me prone to cancer if left untreated.

I didn't want to have some horrible reaction, but I sure expected more than this. I'm.really.frustrated.

One of the frustrating things about intolerances rather than true allergies is the possiblility of delayed reaction. Different folks react in different lengths of time and some of us can have a predictable 'progression' of symptoms that we learn to recognize. You may see a more of a reaction 3 days from now.

Doing a deliberate challenge can have value when gone about by adding in the offending food for a week at least 3 times a day. You would stop the challenge when you react. If after adding back in gluten for a week you have no reaction and you were diagnosed with biopsy then you would need to be very careful about CC. You do risk, as others have pointed out, a severe reaction that might take weeks to resolve.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I also think it is important to challenge with a pure source like "cream of wheat" and nothing else added.


GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

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I also think it is important to challenge with a pure source like "cream of wheat" and nothing else added.

Good catch Shay, yes that is extremely important and I forgot to mention it. The Cream of Wheat was what I used when I had to challenge.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Good catch Shay, yes that is extremely important and I forgot to mention it. The Cream of Wheat was what I used when I had to challenge.

True, you could theoretically be just reacting to the oil or something, pure source is a good idea.


If you're going through hell, keep going. ~Winston Churchill

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