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Am Looking For A Doctor In Athens, Ga

tlb

By tlb
in Coping with Celiac Disease

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tlb Newbie
tlb
Posted

I have just (yesterday afternoon) been "diagnosed" with celiac disease through a blood test - ordered by a neurologist because he was stumped about burning in my tongue that I've had for about 5 months. They have set me up with a GI doctor here locally (Kretzschmar) for Dec. 10 so I stayed home from work all day today to try to figure out what celiac disease is and to figure out what I can eat, etc. so I have been reading things on the internet all day. I have Hashimoto's thyroiditis (autoimmune disorder) that was diagnosed 6 yrs. ago. I just read about there being a connection between Hashimoto's and Celiac so now I'm wondering if I need to be seeing an endocrinologist about both of these diagnoses or whether one doctor should be able to handle both. And I'm wondering if I really need to be going to a bigger city like Atlanta to see someone that specializes more specifically in Celiac disease or in autoimmune disorders?? Sorry this is a long post - I have so many questions running through my mind. And reading everything I have today goes along with GI symptoms I've had for months that I thought must be a virus just dragging out, to the itching I'm having at the back of my head, and numerous other symptoms that I thought must just be menopausal or premenopausal. In addition, my blood work showed that I have a very high Vitamin B6 count - 10 times higher than what it should be which may be causing the burning in my tongue, as apparently too much B6 causes neurologic damage. The doctor is unable to tell me how to lower my B6 since I am not taking any supplements for this. Does anyone else have a high B6 count associated in some way with their Celiac disease. Would appreciate any info. anyone has about any of the above. I'm just a sponge right now trying to understand it all and some how adjust, which I know I eventually will. Thanks!

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MaryJones2 Enthusiast
MaryJones2
Posted

Hi - here is a list of physicians from Atlanta Metro Celiacs: Open Original Shared Link

Harry Delcher is an endocrinologist in Dunwoody and I cannot say enough kind things about him. He is certainly knowledgable and capable of addressing all of your issues.

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      Celiac flare years after diagnosis

      By trents · Posted

      Unless gluten exposure is happening on a regular basis, it is doubtful that blood antibodies would show up elevated in testing. It takes time for them to build up to detectable levels.
    • Russ H
      Celiac flare years after diagnosis

      By Russ H · Posted

      HI Nancy, In your first post, you said that you were diagnosed by biopsy and blood test - this is what I was referring to: the blood test is for antibodies that are made during active disease. After a period on a strictly gluten-free diet, the antibodies return to low level. It is a good way of checking for accidental exposure if symptoms persist. If you are reacting to foods that don't contain gluten, you may be reacting to something else. Alternatively, a condition called SIBO is common in people with coeliac disease, where there is an overgrowth of bacteria in the small intestine. This can be tested for with a simple breath test. The main treatment is with a course of antibiotic. Small Intestinal Bacterial Overgrowth (SIBO)
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      Celiac flare years after diagnosis

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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
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      Celiac flare years after diagnosis

      By trents · Posted

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
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