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Lexi

Glad To Know I'm Not Alone

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I have been reading a lot of the posts in this "coping" section, and I'm glad to know I'm not alone. I feel so crazy at times. Ever since I was diagnosed with Celiac Disease (about a year ago), I have had all these CRAZY health issues. One week I feel really good, and then one week I feel really bad. I was also just recently diagnosed with Candida, and still haven't taken aything for it. I have constant muscle pain, fatigue, burning feet, and headaches. I'm so tired of not being able to eat what I want to eat, and I'm tired of having to analyze every medicine, soap, shampoo, or lotion I want to use. I REALLY admire all the people who are able to follow the diet so strictly, and feel good about it. I read about some people who say that they don't miss gluten at all. I don't know how they do it. I do, and I'm fed up with this lifestyle. I have never been a strong person, and I definitley have not been able to deal with this very well. It's also hard because I don't really have anyone to express all these feelings to. I seriously think my friends and family are all as sick of this disease as I am. I try not to talk about it anymore. So, I am glad I can at least vent on Celiac.com, and I know people will understand. I am having a bad day, and I already feel a little better now.

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Vent away all you need to. This is a really hard adjustment to make and even most of us 'old timers' have our bad days. It isn't easy and it is even harder when we are doing all we can and we still don't feel good. Then we get hit with other issues like your candida it can get really defeating at times. Hang in there though it will be worth in the long run.

Do you take a sublingual B12? If you don't you might want to give it a shot for a bit. It can help a great deal with the energy and fatigue issue.

I hope tommorrow is a bit brighter for you.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I have been reading a lot of the posts in this "coping" section, and I'm glad to know I'm not alone. I feel so crazy at times. Ever since I was diagnosed with Celiac Disease (about a year ago), I have had all these CRAZY health issues. One week I feel really good, and then one week I feel really bad. I was also just recently diagnosed with Candida, and still haven't taken aything for it. I have constant muscle pain, fatigue, burning feet, and headaches. I'm so tired of not being able to eat what I want to eat, and I'm tired of having to analyze every medicine, soap, shampoo, or lotion I want to use. I REALLY admire all the people who are able to follow the diet so strictly, and feel good about it. I read about some people who say that they don't miss gluten at all. I don't know how they do it. I do, and I'm fed up with this lifestyle. I have never been a strong person, and I definitley have not been able to deal with this very well. It's also hard because I don't really have anyone to express all these feelings to. I seriously think my friends and family are all as sick of this disease as I am. I try not to talk about it anymore. So, I am glad I can at least vent on Celiac.com, and I know people will understand. I am having a bad day, and I already feel a little better now.

You are not alone. When I was diagnosed about 7 years ago, I was on this forum, but don't remember my old log in name after I got my new comp and moved.

Anyway, I too am sooo glad I don't eat gluten. I can relate to something always going wrong though. I have learned that when I feel bad it's usually related to my diet or lack of something.

When you say your friends and family are sick of hearing of it? What do you mean?

Are you taking a good supplement? I am now taking the vitamin code, digestive enzymes by source natural and probiotics. I see a huge difference and in getting back in shape. If you don't have a Vitamin shoppe locally, they have them really cheap online at www.viteaminz.com

We are all here for you!


Celiac diagnosed 2002 from being scoped "flat vili" Began to feel better but have always had:

Anemia, Elevated liver enzymes on and off for 15 years, dizziness off and on, Brain fog off and on, Most recent TAILBONE PAIN, 2 LARGE breast lumps, a pounding heart, and elevated cholesterol.

I found out I had been taking vitamins and eating protein bars that had gluten in them when I was told they didnt. And most recently I was taking unisom always assuming it was gluten-free I can't believe I did not check into this. I am in the process of calling the manufacturer but no answer yet. If you know of anything or can help me, I'd love a PM from you![/size]

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Hi Lexi...I'm glad that you are here. This is a great plce for information, for venting, for commiseration! People who don't have to deal with these issues themselves really don't want to hear all about it. Here are people who face the same issues and understand what you are talking about and truly want to help. They have been a lifesaver for me!

This lifestyle is NOT an easy one! Even those who seem to take to it so easily have had their struggles, too. The reason many don't miss the poisonous foods is that they know deep down that they really are poison to them, and they truly don't want to feel so sick again.....I'm one of those. Sometimes....though.....there are things I would like to have. The temptation is very short lived....I just don't want to go through all of that again! My hubby is a gluten eater....I would never ask that he deny himself those things that he enjoys. I DO ask that he not tell me how wonderful that bagel, doughnut, candy is that he is having. That's just too hard!

After a while, you will adjust to this lifestyle. You will have found those products that are safe and that you like (or can at least live with), you will develop tastes for safe foods that you can enjoy. As you read and research (info AND recipes), you'll discover that there really is NOTHING that you cannot have, you just can't go into a store and conveniently pick it up pre-made. Eating fresh foods without chemical, preservatives, not to mention gluten is so very much healthier than the convenience foods. At some point I'm sure you'll realize that you are so glad you stuck to it!

I'm hoping you are feeling better today, and that you are having more good days than bad. Even gluten eaters have bad days :D

Hang in there....


GOD IS GREAT, GOD IS GOOD, THANK YOU FOR OUR GLUTEN-FREE FOOD!

MUSIC IS THE BREATH OF LIFE

Theresa

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Thanks for the support! I quit taking my digestive enzymes and my probiotics because they were making me feel so bloated (is that normal?). I have tried many different kinds too. I heard that Digest Gold was supposed to be the best. However, my Doctor put me on Amitiza and that helped tremendously. I am waiting to talk to my Family Doctor about the candida. My gynecologist (who is supposed to be hollistic and all natural) wants me to take the generic for Diflucan for 30 DAYS!! That seems like an eternity of bad side effects. I am also on pain medicine. Crazy!

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