Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Fairly New At This And Very Frustrated Right Now


Sin3str0

Recommended Posts

Sin3str0 Rookie

About 2 months ago, thanks to process of elimination and an opened minded doctor, I discovered had celiac disease. I've not done any of the testing due to my doctor saying that it'll be a waste of money when it's very clear that I have it and me agreeing.

My health has improved greatly since I've stopped eating gluten, but on some days I just feel plain ol bad... like today!

Here are my symptoms:

Heartburn

Gastritis or Ulcer, although im thinking the first due to the cramping and pain going away once I release air (burp or pass it) :P

Depression

Anxiety

Moody and irate

Tingling in hands and feet. Used to be my whole body until I completely stopped eating gluten

Congestion! So badly congested :(

Cold

Here's my dilemma. Today I'm having one of the worst days I can remember having health wise in over 2 months.

I use a separate oven to cook my food, I've gotten rid of all of the allergens in my bathroom. I use Nature's Gate Deodorant, Tom's of Maine toothpaste, and none of my shampoo's have gluten.

As far as dietary goes, I still eat corn, dairy, soy, etc. The only thing that I have completely cut out is the gluten.

Like I said, today I feel really bad. Most of my symptoms are running rampant and I feel piss poor.

Here is what I ate yesterday. with whatever could cause a problem after.

2 pork sausages from whole foods - Natural Flavor - New to diet

A box of rice crispy snacks from envirokids, so about 6 bars - New to diet

2 servings of Corn puffs from envirokids - Corn - New to diet

A gluten free pizza from pizzafusion - Dairy

1 box of Mary's gone crackers - Safe

Rice milk labeled gluten free

The newest things I've added to my diet are the bars and cereal

Could it be that I need to drop the corn completely? I feel so bad today. :(

Anyways, like I said I'm fairly new at this and I need any advice that could help me recover that you guys could suggest.

Clearly I've continued to eat dairy and corn, so do I need to eliminate these from my diet?

What are the steps I need to take? What foods are totally safe?

I'm pale, people notice somethings wrong, I want to quit my 30 minute away job for something closer because I feel weak, etc.

I'm tired of my health holding me back from my true potential.

Thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



home-based-mom Contributor

Just a quick response before others who are more familiar with the foods you listed jump in.

First of all, I would not recommend adding more than one new food at a time. When you add several new things at once and then feel awful, you have no idea what caused it.

Second, if the rice milk was Rice Dream, they can legally claim to be gluten free even though they really are not, because the amount of gluten the product contains is under the legal limit. But it is still there.

Many newly diagnosed people have to give up dairy until they heal because the villi in the intestines that digest dairy are what is destroyed by the body's reaction to gluten. You may be able to add dairy back in later.

Perhaps not all of your symptoms are caused by diet. You may just have a cold! :blink:

Mother of Jibril Enthusiast

I think it's good to keep an open mind about multiple causes... maybe you DO have a cold, or you're intolerant to corn, dairy, etc... It takes time to figure these things out :(

My suggestion is to forget about the grains for a while and focus on whole, nourishing foods: fruit, vegetables, nuts, seeds, and a moderate amount of meat. Unless there were vegetables on your pizza, you didn't eat ANY fruits or vegetables yesterday! Your body is probably making a desperate plea for some real nutrition!! :o:ph34r: Celiac disease can cause malnutrition even when you're eating a perfectly healthy diet... don't make it worse by eating tons of heavily-processed grains. Even for a "normal" person, these foods are difficult to digest and don't have many nutrients.

mamaw Community Regular

I know some people get ill from pizza fusion, not all of this chain is gluten free savvy!

I agree if you are super sensitive adding more than one food a week isn't a good idea. plus you could be having a reaction to rice or corn or anything else that doesn't have anything to do with gluten. Many have other issues that crop up as an allergy.

Plus I find that sometimes I feel differently when I combine certain foods in one day. I can eat something by itself one day but when I eat it the next day with something else I get a tummy ache.

another thought , a box of Mary's Gone Crackers has flax seeds which means fiber .I'm not sure you meant to say you ate a whole box in a day?!?! If so it could be the fiber that your body hasn't adjusted to as yet. A whole box of rice crispy treats in one day?!?! That is alot of sweets for one day as well.

I guess everyone needs to find their own tolarance when it comes to food. Some are more sensitive than others.

blessings

mamaw

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    2. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    3. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    4. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    5. - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442

    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...