Just Dignosed 4 Days Ago.

[Lisa79]

After having symptoms since I was sixteen, bloating, tired, anemia and lots of major headaches. After a gallbladder removal, ovarian cysts discovered and removed and a previous negative celiac test 7 years ago, finally I got a positive blood and gastroscopy last week. I am now nearly 30.

The few weeks leading up, I was extra tired and kept telling my husband I felt like I had been running a marathon. Headaches were a weekly thing as well as major bloating.

To be honest dont know where to start, I stated immediately eating gluten free, continuing to take a few supplements (have been for long time just obviously not absorbing them), not seeing my GI for another couple of weeks, I think I am on the right track. Have quite a bit of reading and finding out lots so far. I feel quite achy, tired. My eyes feel sore and a little blurry. Unsure on how long recover can be.

I am also very stressed and anxious (major anxiety attacks), I have had a huge fear, my Grandmother had MS and I have read about the links with Celiac and MS and had a major breakdown last week. I have seen a neurologist to but my mind at ease, all was normal neurological test although having an MRI tomorrow and results on Friday so I am praying and sure its just my fear getting the best of me and need my mind put at ease.

Can anyone suggest any supplement I should start immediately or anything to help with the recovery? I have not had any further test done to check my mineral levels or anything, I just got a phone call from my GI last Thursday night to confirm the biopsy results.

I am learning to read the packages although any tips or information on what to look for would be appreciated. Also tips on fibre intake, as I suffer major constipation and was put on a high fibre diet not so long ago with lots of high fibre grainy bread etc. and now struggling with carbs and fibre.

Breaky proving to be quite difficult.

I am eating lost of seafood, salad, veggies, steak, eggs and basmati rice.

I am glad to have found the site, Thanks

Lisa

[RiceGuy]

Welcome to the board! You've come to the right place.

The supplements I'd suggest first would be a sublingual methylcobalamin (active form of B12), magnesium, a strong B-complex, and vitamin D3. All these are vital for proper neurological function, and deficiencies of them can produce the neuro symptoms you've mentioned, including anxiety. Other common deficiencies can include calcium, potassium, iron, zinc, EFAs (such as omega-3s), and probably many others. It does vary from person to person, so blood work is helpful if you can have it done. However, make sure you get a copy of the results, as many doctors don't seem to recognize deficiencies unless it's very obvious, not just on the low side of what they call the "normal range". Many on this board have found supplements to be very helpful even when their blood work showed levels within the normal range.

The magnesium will help with bowel function, though the gluten-free diet should make for most of the improvement. But you can get lots of fiber from beans and grains. For instance, just 1/4 cup of teff or amaranth has 6-7 grams of fiber. Both are high in protein as well. Buckwheat is another good one, and coconut is even higher in fiber.

Digestive enzymes can be very beneficial, so you might search the board for discussions on that topic. It might be helpful to look for products which have enzymes for the things you're having trouble digesting. For instance, lipase for fats, amylase for carbs, protease for proteins, etc. Raw, unfiltered, unpasteurized apple cider vinegar is said to be very helpful for digestion too, as is betaine HCL w/pepsin.

Last I knew, Basmati rice is mostly carbs, so you may find it helpful to switch to a whole grain rice, or use one of the many other gluten-free grains or legumes available.

Dairy is often difficult to digest, especially during the healing process. You may be able to add it back at some point, though not everyone can. You should also watch for reactions to other top allergens, such as soy, corn, eggs, nuts, peanuts, etc. Many also find nightshades to be troublesome.

Most basic, natural foods are gluten-free, except for wheat, barley, rye, and most oats. It is the processed foods which you need to be most careful about. However, any food can be subject to CC (Cross-Contamination), so if you aren't sure about a particular product, just ask! Calling the company, or looking on their website for a gluten-free statement is also a good idea when you aren't sure. It is good if you can find products which are processed in a dedicated gluten-free facility, though the easiest and most healthy, is to stick with plain produce and meats, etc. The more you can prepare from scratch, the better off you'll be.

Here is a list of safe/unsafe foods and ingredients:

https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

Here is a list of gluten-free recipes:

https://www.celiac.com/categories/Gluten%252dFree-Recipes/

I hope you feel better soon!

[Jamie]

Hello... I'm Jamie... I was just diagnosed last Tuesday. I had been having bad stomach problems since last Jan... they really just started randomly. These symptoms included severe bloating, constipation, migranes(but I was put on topamax for those) and gas. I also have had hypoglycemia since I was 8 years old.. and hypothyroid since I was 17. I have been on this diet since last Wed.. I already feel such a difference. I was afraid that I wouldn't be able to get the proper nutrients... but you very well can. So far I have been taking a magnesium citrate supplement... the serving is 1 pill in the AM and 1 in at night. That def helps with regularity. I am only going to stay on it until I am set with this diet and am regulated on my own. Also... there is this product called Fibersure. It is a powder that you can sprinkle on any food or any drink. It just disolves and has no taste. One teaspoon is 5 grams of fiber. It is pure fiber... nothing else. It's gluten free. Def... without a doubt take a multivitamin. Other than that... youll be more prone now to eating more fruits, vegies and lean meats. Try to stay away from the junk food... because it's loaded with even more calories than the regular gluten filled junkfood. It's better to not have that junk food so available anyway. That's how I see it. Instead of having a 100 calorie pack, a cookie or a ring ding.... I will go for a fruit to feed the need for sweets. I think it's better and more healthy this way. Aside from the fact that you are healing your intestines.

[Lisa79]

Thanks so much for the replies, really helpful. Glad to hear after a week you are feeling better, I am hoping I am lucky enough to have some pretty quick results.

Funny to hear about nightshades something I never knew much about but I definately have a real problem with potatoes and have done so for yeas. So I will be looking into that much more.

So much to learn. Thanks very much.