Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Undiagnosed Newbie

tinyshinythings

Recommended Posts

tinyshinythings Newbie
tinyshinythings
Posted

Hi folks, I would much appreciate your opinion about my symptoms. I am scheduled for proper test but am stll in the scray, not knowing time. Here goes. Worsening indigestion and nausea for about 7 weeks. Feel a bit better if I leave out the gluten (know I mustn't before test). Crazy, inappropriate hunger and bad nause both at the same time. Imrpoves when I eat. Burning and tingling in toes. Feeling of food sitting in esophogus. Might be h pylori infection? Might be coeliacs? Also muscle/joint pain not resolving over last year. Osteoparosis because of coelacis? Thanks everyone. It's comforting to read of your experiences and I would value your opinions of my situation.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

Coulds be, yes it coulds be non-tropical sprue, or celiac. If it is that's not so bad news really. Celiac is certainly something you can adjust to living with, although it may take some time. I hope you get a sold test results either way. Unfortunately, some of the blood tests are not 100% on the negative results. Positive results are more a sure thing.

tinyshinythings Newbie
tinyshinythings
Posted
  • Author

Thanks for that. Went gluten-free anyway after home celiac test was negative and feel remarkably much better.

ravenwoodglass Mentor
ravenwoodglass
Posted

Sometimes our bodies can really tell us the answer. If you are comfortable with being self diagnosed then just keep going. If you want a doctors diagnosis you MUST continue on gluten until all testing is done. The tingling may be from failure of your body to be able to utilize the B12 from food or supplements that you swallow. You may want to try taking sublingual B12 tablets and see if it helps. Many of us do have the issues you describe and you could well be one of the family.

I hope you continue to improve and you have found a good place for info and support. Welcome.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,036
    • Most Online (within 30 mins)
      10,442
    NCGS Celia
    Newest Member
    NCGS Celia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Worsening vision 🕵🏽‍♀️

      By trents · Posted

      Vitamin A is important for vision health. But be careful in supplementing it as it can lead to toxicity. Research it and consult with your medical professional. I do not have a definite answer to your original question but I was pursuing the possible cause of nutritional deficiency. But your visual deterioration could be unrelated to your celiac disease so don't rule that out.
    • Name
      Worsening vision 🕵🏽‍♀️

      By Name · Posted

      Currently 19. Doctors think I was 1 year old when celiac started, but I wasn't diagnosed until 18, because they didn't do lab work on minors. I've been on a strict gluten-free diet for 14 months now. For example only certified gluten-free nuts and I've researched best brands a lot. I take B vitamins, vitamin D, vitamin C, Curcumin with black pepper, black sesame and green tea extract, magnesium, iron, and a little selenium and zinc, beef liver capsules. I recently had my vitamin and mineral levels retested and D is the only one I don't have enough of now. I had my eyes tested at 17 and they were good back then.
    • Scott Adams
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By Scott Adams · Posted

      Not everyone with dermatitis herpetiformis needs to avoid iodine. DH is caused by gluten exposure, but iodine can worsen or trigger flares in a subset of people, especially when the rash is active or not yet controlled by a strict gluten-free diet. Some people react to iodized salt, seaweed, shellfish, or iodine supplements, while others tolerate normal dietary iodine without problems. In most cases, iodine restriction is individualized and often temporary, not a lifelong rule for everyone.
    • trents
      Worsening vision 🕵🏽‍♀️

      By trents · Posted

      Questions: How old are you now? How long ago were you diagnosed as having celiac disease? Do you practice a strict gluten-free diet? Are you taking vitamin and mineral supplements to offset the nutrient malabsorption issues typical of celiac disease and if so, can you elaborate on what you are taking?
    • Name
      Worsening vision 🕵🏽‍♀️

      By Name · Posted

      My vision was good as a teen and now has gotten worse in the last year. Could that be caused by my celiac disease?🤓😎🥸👓🕶️
×
×
  • Create New...