Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Blood Results In, Postive For Celiac. Yaay, Another Autoimmune Disease


srthomas21

Recommended Posts

srthomas21 Explorer

Well , just got back form the Dr. and 3 of the 4 blood tests for Celiac were positve so I have an official diagnoses of Celiac.

Now, for you experts out there how long did it take to start feeling better. I don't have any gastro symptoms. I have all the weird symtpoms:

1. Headaches

2. Fatigue

3. Mind Fog

4. Feel like I'm starving when I get hungry

5. Stiff Neck

6. Post Nasal Drip

7. Sensitive to Light especially at night.

8. Muscle aches especially in legs

and other various weird stuff.

I just ate my last doughnut today :( Oh well, I'd rather feel good than eat gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



OptimisticMom42 Apprentice

Most of the stuff will start to improve within a couple of days. The muscles aches take longer for me. I was using tart cherry juice to help reduce the inflammation and for the other mild aspirin effects. I ran out. Couldn't get more. Didn't need it anymore anyhow. Still taking magnesium for cramps in my feet at night. Skipped it last night. Mild cramping last night. But thats an absorbsion issue. I think I read that that can take a yr or longer to improve.

ravenwoodglass Mentor

Healing times can vary but you should notice some difference soon. The best way to heal the quickest is to eat as clean and unprocessed as you can. Fresh foods like fruits and veggies, freah meats with no broths added in processing, beans, rice, potatoes etc. Also you can have things like doughnuts and pizza etc. There are many brands but my own favorties are Kinnickinnick for doughnuts, italian bread and premade pizza shells. Foods by George makes really good brownies and of course there are other brands.

Welcome officially to the family and I hope you heal quickly.

srthomas21 Explorer

Thanks, I have a lot to learn. I just want this mind fog to go away and the overall feeling of blah. Looking forward to a gluten free life.

Foxfire62 Newbie
Well , just got back form the Dr. and 3 of the 4 blood tests for Celiac were positve so I have an official diagnoses of Celiac.

Now, for you experts out there how long did it take to start feeling better. I don't have any gastro symptoms. I have all the weird symtpoms:

1. Headaches

2. Fatigue

3. Mind Fog

4. Feel like I'm starving when I get hungry

5. Stiff Neck

6. Post Nasal Drip

7. Sensitive to Light especially at night.

8. Muscle aches especially in legs

and other various weird stuff.

I just ate my last doughnut today :( Oh well, I'd rather feel good than eat gluten.

Depends on your age. The younger, the better. For example, my blood results for ttg were 100+. I'm now down to 14. I started to feel great up through December. Then starting January/February, I started to feel full. My new GI doc thinks I got glutened again. I did begin experimenting with other supposedly gluten-free products (i.e., Kettle Chips and Kraft Oscar Meyer Weiner hot dogs). Ever since then, I've had constipation-related problems. I was so backed up, I didn't eat for a week, which put my whole body in a tail spin. It took over a week to get me unblocked. Then I put my female hormones out of whack, and I've been on progesterone, but now I wonder if I'm getting gluttened or if the constipation is just as a result of the product. Hard to say. Not yet recovered from my 2-month ordeal and am backed up again. I'm currently trying to get "un" backed up by taking Metamucil, since I was having problems digesting fiber.

Here's the problem when you are older and have been a celiac for quite a long time: your intestines become accustomed to not working properly. Then, they suddenly start working right, and you notice different problems occuring, like having difficulty digesting certain foods or slow digestion or dumping or (the list can go on and on). So, your body has to acclimate. Not to say everyone works this way, but recovery can sometimes be an ordeal for some people. Again, the younger you are, the better. Young adults can recover within weeks; older adults, it's anyone's guess. Depends on your body.

Foxfire62 Newbie

I totally agree with you...eat as clean as possible. That's what I've learned as well! Forget trying some of the products in the regular store that say "gluten-free." If you're extremely sensitive, it doesn't bode well. I've learned MY lesson!

srthomas21 Explorer

I'm 30 and I don't think I've had active celiac for more than a year. About 10 years ago I had my colon removed due to Ulcerative Colitis. So lucky (or unlucky) for me I don't have problems getting backed up :)

I had two last hurrah donuts today and I think I'm paying for them now.

I feel kind of clamy and my head feels weird. Almost flu like stuff.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    2. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    3. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    4. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    5. - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442

    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...