Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Wow... If I Wasn't Already Convinced...


boysmom

Recommended Posts

boysmom Explorer

I've been trying to eat gluten free for about 3 weeks now. About every 3-4 days I accidentally get a little something (found caramel coloring in Dr Pepper and in balsamic vinegar for example) that I didn't realize until after I was feeling bad again. I wondered whether there was a chance it was not gluten/wheat, but something else that I'm getting *with* the gluten, so I decided to try a challenge this morning (my previous accidents were generally late in the day and the symptoms hit around bedtime, so I also wanted to see if it were related to something else besides my diet that would trigger at bedtime). So around noon today I ate 2 girl scout cookies. OH MY... within half an hour I was short of breath, and when I stood up I felt like I'd taken some kind of meds... slightly dizzy and off balance, that 'where's the floor' kind of feeling.

Obviously I have no way to tell whether this means celiac, gluten sensitivity, or wheat allergy, but now I have NO doubt that I am reacting to wheat pretty strongly.

One issue that has arisen I'd like some input on. I tend toward constipation and in the past managed it very well by eating a lot of whole grains, usually whole wheat bread and oatmeal every day for breakfast :( Now that those foods are not available to me, I seem to fluctuate between some mildly loose stools when I've accidentally gotten gluten and very hard stools when I haven't. How can I avoid full-on constipation and stay gluten-free?? I have mostly been substituting brown rice for my oatmeal breakfasts and eat more fruits and vegetables in place of breads and pastas and so far that doesn't seem to be helping much.

Thanks for being here!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

fyi, most caramel coloring in the US is gluten free (made from corn, iirc). and the vast majority of balsamic vinegar is naturally gluten free (made from grapes) - only a few cheap brands add anything to it.

as for the constipation - reducing simple starches, increasing things like beans/lentils/veggies/flax meal, and making sure that you're getting enough magnesium (especially if you're taking a calcium supplement, as those tend to be binding)...

boysmom Explorer

The website I was using to check my foods said caramel coloring was suspect, so when I felt bad and found that ingredient listed I suspected it ;) However, like I said, I wanted to be sure it wasn't something else (such as acidic foods late in the day, because both pop and vinegar could irritate an already upset digestive system, right?) so I tried my challenge earlier in the day. Generally, when I've had some reaction it seems to hit me within 30 min - 1 hour after I've eaten.

Thanks for the reminder about beans and lentils DUH lol Our health food store stocks a number of varieties of wheat flour, but other grains are only available in whole grain form, and since my Nutrimill is now thoroughly contaminated with wheat I'm trying to find ways to use whole grains rather than invest in a new Nutrimill right away.

I haven't started taking any supplements yet, but I have noticed that when I eat a banana it actually seems to cause leg cramps, where before I ate them to stop or prevent charlie horses. weird...

MrsClaus Newbie

Chemicals can cause the big D. If I eat Strohs ice cream I get D. but Homemade brand and Bryers is ok. many Celiacs are lactose intolerant or Casin that is in dairy. Check other allergies and chemicals.

Corn works for me and drinking something hot in the morning gets the old system moving!

Bananas should not cause cramping and is recommended for cramping, unless you are allergic or some other reason, try organic maybe its the chemicals again.

I am free of most migrains now, the ones I get are chemical or food related like chocolate and cleaning supplies. Cheap and strong cologne.

ang1e0251 Contributor

I have read other posters report that the balsamic vinergar they were going to use had wheat as an ingedient added. Not all of them but some.

I second the advice on magnesium. It will help constipation and if you feel it is making you too loose, you can reduce the dose and try the magnesium oil that you spray on your skin.

hannahp57 Contributor

Bob's Red Mill has oats and oatmeal! i have the oats and i LOVE them!! there's one like a mighty tasty warm cereal or something like that. look it up and if it isnt in a store near you maybe you can order them. oats are pretty high in fiber i think and they are a whole grain. also i have heard of adding flax seed and rice bran into regular breads(if you bake your own) just for a little additional health benefit!

Darn210 Enthusiast
Bob's Red Mill has oats and oatmeal! i have the oats and i LOVE them!! there's one like a mighty tasty warm cereal or something like that. look it up and if it isnt in a store near you maybe you can order them. oats are pretty high in fiber i think and they are a whole grain. also i have heard of adding flax seed and rice bran into regular breads(if you bake your own) just for a little additional health benefit!

Bob's Red Mill has regular oats and gluten free oats. If you try them make sure you get the package labeled Gluten Free . . . it's big, you can't miss it. If you are looking all over a BRM oat package for a little label, then it's the wrong package. Also, some Celiacs react to oats, too. Just wanted to throw that out there. If you try them, try a small helping first to see if you react. My daughter's doc wanted us to be gluten free for 6 months before we even tried them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

    2. - glucel replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

    3. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

    4. - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,003
    • Most Online (within 30 mins)
      10,442

    michelinagiggles
    Newest Member
    michelinagiggles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @glucel,  There's a strong correlation between thiamine deficiency, hypoxia, and insomnia.  Thiamine is needed to help red blood cells carry oxygen.  In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular events.  Curiously, thiamine deficiency is correlated with excessive daytime sleepiness and oversleeping.   I found a combination of Tryptophan, Pyridoxine B 6, magnesium, and L-theanine works very well for inducing sleep.  Sometimes, I add Passion Flower Extract and/or Sweet Melissa.  There's no side effects the next morning with Passion Flower, it just induces sleepiness.  Sweet Melissa is groovy, and has anti-inflammatory effects on the digestive system.   I prefer to take 250 mg Benfotiamine and 100 mg Thiamine TTFD in the mornings and another dose of Benfotiamine at lunch.  I try not to take any thiamine after four p.m. because it keeps my brain so energized and wanting to think... Oh, I do take a combination of another form of thiamine (sulbutiamine), Pyridoxine and Cobalamine for a pain reliever sometimes, but I can sleep after taking that.  But thiamine does help regulate circadian rhythm.   Make sure you're getting Omega Three fats! They'll help you satisfy that late night carb craving with fewer carbs.  Flaxseed oil, olive oil, sunflower seed oil.  Nuts and nut butters, like walnuts and cashews, are good, too, if you can tolerate them.    Try taking the 100mg thiamine HCl before your aerobics and see if there's a difference.  Sweet dreams! References: Network Pharmacology Analysis of the Potential Pharmacological Mechanism of a Sleep Cocktail. ......(Skip to Section Four) https://pmc.ncbi.nlm.nih.gov/articles/PMC11201840/ Effects of Melissa officinalis Phytosome on Sleep Quality: Results of a Prospective, Double-Blind, Placebo-Controlled, and Cross-Over Study https://pubmed.ncbi.nlm.nih.gov/39683592/
    • glucel
      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
×
×
  • Create New...