Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Finally Going To The Doctor


JBaby

Recommended Posts

JBaby Enthusiast

Learned about gluten/celiac by accident late april. Researched it, did some food experiements, longest exp lasting 3 weeks and I felt phenominal. Like a new person. Been having difficult time staying on the diet. I saw doc for almost 2 years for all the symtoms that gluten and celiac give a person but these 2 possibilities never came up. I am finally going back with info and proof: what happens when i eat ceratin foods. Like tonight I had 2 slices of pizza hut supreme pizza. Was gluten free for last 3 days. well I felt it within a half hour. Still do and its been an hour and a half. Couldnt breathe. Felt like i was being squeezed. Had to take off my bra, there was that much pressure. Still feel that pressure in chest. brain fog and sooooo tired. I was bouncing like tigger when i cme home from work. I dont want to wste my time at docs on tuesday. I need to be clear with her. I dont have insurance so testing is out unless it is free. Not sure what I am sking you all. I just need to get on a plan and stay on it. This yo yo thing is not good for me. Thanks....Now I am itching!!!! Everywhere. Ugh!!!!!!

JBaby


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



runningcrazy Contributor
Learned about gluten/celiac by accident late april. Researched it, did some food experiements, longest exp lasting 3 weeks and I felt phenominal. Like a new person. Been having difficult time staying on the diet. I saw doc for almost 2 years for all the symtoms that gluten and celiac give a person but these 2 possibilities never came up. I am finally going back with info and proof: what happens when i eat ceratin foods. Like tonight I had 2 slices of pizza hut supreme pizza. Was gluten free for last 3 days. well I felt it within a half hour. Still do and its been an hour and a half. Couldnt breathe. Felt like i was being squeezed. Had to take off my bra, there was that much pressure. Still feel that pressure in chest. brain fog and sooooo tired. I was bouncing like tigger when i cme home from work. I dont want to wste my time at docs on tuesday. I need to be clear with her. I dont have insurance so testing is out unless it is free. Not sure what I am sking you all. I just need to get on a plan and stay on it. This yo yo thing is not good for me. Thanks....Now I am itching!!!! Everywhere. Ugh!!!!!!

JBaby

Diagnosed or not it sounds like the gluten free diet is the way to go for you. It is not worth the pain of waitin for a diagnosis when you have been proved thru the way to feel.

Hope that helps~

JBaby Enthusiast

I agree but for some reason I just need formality. It is apparent. I looked up the pizza dough i had tonight and it containd wheat and now I am having my own itch fest. My wonderful and amazing man left to get me some benadryl to stop the itching.

The Fluffy Assassin Enthusiast
... I dont have insurance so testing is out unless it is free. ...

JBaby

There are doctors who will diagnose you based on your response to the diet, but not many. Before you go, you need to call and find out if she's one of them. Because if she isn't and you can't pay for the testing (blood tests and endoscopy, and you have to keep eating gluten for weeks on end for both), I don't see any point in keeping the appointment. You can post on the Doctors forum on this board to try to find a doctor near you who will give you a diagnosis based on dietary response. But again, unless you know that the doctor you're seeing Tuesday will do so, you'd just be wasting time and money.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    2. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    3. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    4. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    5. - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,124
    • Most Online (within 30 mins)
      10,442

    HelloFlowersGoodbyeFlour
    Newest Member
    HelloFlowersGoodbyeFlour
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...