Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confusinggi Doc


renee28

Recommended Posts

renee28 Rookie

Alright...so we saw our GI doctor on Monday and he said that he was 98% sure that our son has Celaic as his ttg iga was 38, with anything above a 9 being positive. He wanted to do a biopsy - I asked if we could check just to make sure our son has the celaic gene before we go ahead with the biopsy.

So, our doctor ran a second celiac test in addition to the gene test. The gene test has not come back, although the second ttg test came back negative.

Now what? Our doctor sent an e-mail saying, it does not look like celiac anymore.

When we took the first ttg test our son was in the midst of diarrhea and vomit, the second test he took when feeling fine. Could this play into it? Arrgghhh. Any thoughts??

Much appreciated,

Renee


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

A high ttG-IGa is strongly suggestive of celiac disease, but is not considered conclusive in and of itself. It shows an autoimmune reaction, but in some rare cases celiac disease is not the cause.

The reaction is to gluten, and even if celiac disease is not the underlying cause, a sensitivity to gluten is indicated. If you want to pursue further diagnostic tests, then he should remain on a diet containing gluten until testing is completed. But once that is done, I would listen to that result and think that it is a reason to follow a gluten-free diet, whether or not celiac disease is established.

LDJofDenver Apprentice

Keep in mind, also, that there are often false negatives-especially with children.

If scientific diagnosis attempts prove non-conclusive, ultimately the diet itself may give you the answer.

kbtoyssni Contributor

Had you already gone gluten free before the second blood test? Once you go gluten free, antibodies start decreasing and you end up with negative test results.

renee28 Rookie

He went off for three weeks then back on for two before the second blood test..hmmm. I didn't think just three weeks off would matter.

Lisa Mentor
He went off for three weeks then back on for two before the second blood test..hmmm. I didn't think just three weeks off would matter.

It certainly could contribute to the inconsistencies. Children can heal quickly. How did your son do on the three week gluten free diet. A positive dietary response is part of the puzzle.

renee28 Rookie

His symptoms went away once on the gluten-free diet....although his symptoms have always come and gone. He was great for the three weeks - then went back on gluten and was very irritable for three days, but then has been just fine since (3 weeks).

He was extremely backed up with poop (they did an x-ray) and he is now cleared out...sometimes I just wonder if all his symptoms were due to constipation (diarrhea, vomit, stomach cramps, irritability) - i just get thrown b/c of the positve ttg iga.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
His symptoms went away once on the gluten-free diet....although his symptoms have always come and gone. He was great for the three weeks - then went back on gluten and was very irritable for three days, but then has been just fine since (3 weeks).

He was extremely backed up with poop (they did an x-ray) and he is now cleared out...sometimes I just wonder if all his symptoms were due to constipation (diarrhea, vomit, stomach cramps, irritability) - i just get thrown b/c of the positve ttg iga.

Do keep in mind that for many in the beginning of this disease constipation can be seen rather than D. I am not sure but suspect that the body tries to draw all the nutrients it can out of the food and overpulls the fluid in that attempt. As stated three weeks gluten free may have been long enough for his vilii to heal, I can't remember where I read it and lost the link a long time ago but from what I understand the vili 'turn over' at a very quick rate. The fact that he was quite cranky at first when gluten was introduced may be an indication that he is having neuro impact. The brain will try to release chemicals to counteract that. Those chemicals may be why he seemed to get better after a few days. If he does not have other autoimmune diseases the positive celiac test would be likely to be valid. I would get him back on the diet.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,963
    • Most Online (within 30 mins)
      7,748

    Cheryl minshew
    Newest Member
    Cheryl minshew
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jy11
      Well the conflicting results continue as the biopsy has come back negative. 😵‍💫 Waiting to discuss further but I really don’t know what to think now? Eight biopsy’s were taken from duodenum which surely should be sufficient if it was coeliac? 
    • Pasballard
      I have Celiacs and want you to be aware of the amount of weight you can potentially put on if you rely on gluten free snacks, bread etc.,they  are high in carbs.  I put on 25 lbs in a short amount of time.  Whole Foods are the best way to go but I struggle with this.  The cost of gluten free is also a problem.  I love black licorice but most have gluten.  My favorite chili seasoning as well.  The list is endless.  I take  Advil liquid gels and had no idea until I read this.  I hope you do better than I have done.  I feel I am destined to suffer daily no matter what.  My aunt didn’t take care of herself and died from complications.  I hope you can get on a good routine.
    • growlinhard1
      Thank you, I appreciate the response. I'm going to begin the gluten free diet and wait for the biopsy results. I feel fairly certain that it's the right thing for my well being. I will keep you posted.
    • Scott Adams
      The flu vaccine is indeed not 100% effective every year, as its effectiveness varies depending on how well the vaccine strains match the circulating flu viruses. However, even in years when the match is less than perfect, the flu vaccine still provides significant benefits. Studies consistently show that vaccinated individuals who contract the flu often experience milder symptoms, a lower risk of complications, and a reduced likelihood of hospitalization or death compared to those who are unvaccinated. For high-risk groups, such as the elderly, young children, and individuals with chronic health conditions, the flu vaccine remains a critical tool for reducing severe outcomes. Regarding the mention of risks associated with vaccines, it’s important to note that the flu vaccine is generally very safe for most people. Serious side effects are extremely rare, and the benefits of vaccination far outweigh the risks for the vast majority of individuals. If someone has specific concerns about vaccine safety due to medical conditions or allergies, they should consult their healthcare provider to discuss their options. As for alternative measures like a D Lamp (ultraviolet light disinfection), while these can be useful for reducing pathogens in the environment, they are not a substitute for vaccination. The flu virus spreads primarily through respiratory droplets, and personal protection measures like hand hygiene, masking, and improving indoor ventilation can complement vaccination but cannot replace its targeted immune protection.
    • trents
      Because you have already had the "gold standard" test done, and because you have some experiential evidence that removing gluten from your diet causes you to feel better, it would make sense to begin the gluten-free diet as you wait for biopsy results.
×
×
  • Create New...