Jump to content
  • Sign Up
0
ironspider33

I'm A New Celiac

Rate this topic

Recommended Posts

So, Saw my doctor almost three weeks ago. WEnt to him because I thought I had figure out i was lactose intolerant, which I am. I was drinking litres of milk a day, loved ice cream, let's not forget cheese.

Backstroy: I've done six ironmans, but have always looked puffy. The strange looks i would get runnign due to my stocky appearance were hilarious. I always raced around 200 lbs, but am now at 230 , and that's even down..so far

But i have been unable to successfully train since 2003. Chaulked it up to age, and drinking beer all the time (not helpful either)

So, finally i cut out dairy, fel a littel better, but still am gassy and bloated. I never wante d to think i had to give up my beloved beer. More importantly, i couldn't run very far without stopping. Felt like legs of lead, and getting out the dor to run was the hardest thing. and not opne poundfell off...ever.

So he orders the test and have another appointment in two weks. However, I went gluten free as soon as h said he was testing it. That day I had bloat and pain cause i had a few beer the night before, attempted to run 5k (stopped al ot felt miserable) and my blood pressure was through the roof! like 180 over 110 or some crazy number.

I tested it a week later after gluten free but at least the seocnd number was under 100. I have NEVER had blood pressure problems ever...in fact had my heart tested two years back on a treadmill etc, and everything was excellent. I have always had a low heart rate due to endurance training, and even at the docs officetwo weeks ago,the pressure was high but my resting heart rate is UNDER 60.

sigh.

ANyone else out there in my boat (bloat?)

So i's been 2.5 weeks since i went gluten free, and what a difference. I am wondering if its the power of suggestion, bt I am running fast again, and WELL...climbing hills, speed is up.

I drink the ol stronbows, but no bloat. in 2.5 weeks i lost almost 6 lbs . I had a spike on monday cause i think i dranks some fruit juice that kiiiiiled my stomach. was sickly and tired, and worst of all, on the crapper all day.

So, am i being impatient in thinkin i have to wait foreverfor weight to fall of? Not even three weeks, but i thought i t would go faster cause I am training better the lasttwo weeks, and feeling fantastic (cept for monday when i think i glutenned myself)

How long does anyone think it shoudl take for me to drop down to 200? weeks? months?

I also started reading eveything, and even think i am malnourished because of my fingernail ridges iam seeing.

I also want to know why i gained wait if malnourished instead of storing fat?

Im excited about the blood resutls, but already know I am gluten intolerant or allergic, it's rather opbvious cause and effect now.

Thank god i can still eat peanut butter.

Ialso don't crave things...like beer. is that weird? i craaaaaaved beer, may be my only source of nutriution?;)

If anyone else has a simlar story, i would love to hear it, and any comments on anythign i wrote.

Me

Share this post


Link to post
Share on other sites

I am a fellow athlete and found that my performance has improved since going gluten free. My dear, if you have celiac disease you do need to give up beer, even strongbow! They are coming out with better and better gluten-free beers, but giving it up for a bit while your body heals is probably the best thing. And not all peanut butter is gluten-free, so make sure you check the label :)

Everyone's improvement, healing and weight loss or gain (depending on the situation) will come at a different pace. You'll find best results if you cut out gluten 100% and stick to a very strict diet (especially if you do in fact have celiac disease). An important thing to note though is that if your bloodwork comes up positive then your DR should be referring you to a GI and ordering an endoscopy (scope down your throat -- with a sedative -- to look at your stomach & small bowel and to take biopsies to test). If you need to have a scope done then you will need to continue eating gluten so that you don't get a false negative.

Some people feel better on the gluten-free diet and don't need a firm diagnosis while others need to know for sure before making such a drastic change, it's a very personal choice.

Good luck!

Jillian

So, Saw my doctor almost three weeks ago. WEnt to him because I thought I had figure out i was lactose intolerant, which I am. I was drinking litres of milk a day, loved ice cream, let's not forget cheese.

Backstroy: I've done six ironmans, but have always looked puffy. The strange looks i would get runnign due to my stocky appearance were hilarious. I always raced around 200 lbs, but am now at 230 , and that's even down..so far

But i have been unable to successfully train since 2003. Chaulked it up to age, and drinking beer all the time (not helpful either)

So, finally i cut out dairy, fel a littel better, but still am gassy and bloated. I never wante d to think i had to give up my beloved beer. More importantly, i couldn't run very far without stopping. Felt like legs of lead, and getting out the dor to run was the hardest thing. and not opne poundfell off...ever.

So he orders the test and have another appointment in two weks. However, I went gluten free as soon as h said he was testing it. That day I had bloat and pain cause i had a few beer the night before, attempted to run 5k (stopped al ot felt miserable) and my blood pressure was through the roof! like 180 over 110 or some crazy number.

I tested it a week later after gluten free but at least the seocnd number was under 100. I have NEVER had blood pressure problems ever...in fact had my heart tested two years back on a treadmill etc, and everything was excellent. I have always had a low heart rate due to endurance training, and even at the docs officetwo weeks ago,the pressure was high but my resting heart rate is UNDER 60.

sigh.

ANyone else out there in my boat (bloat?)

So i's been 2.5 weeks since i went gluten free, and what a difference. I am wondering if its the power of suggestion, bt I am running fast again, and WELL...climbing hills, speed is up.

I drink the ol stronbows, but no bloat. in 2.5 weeks i lost almost 6 lbs . I had a spike on monday cause i think i dranks some fruit juice that kiiiiiled my stomach. was sickly and tired, and worst of all, on the crapper all day.

So, am i being impatient in thinkin i have to wait foreverfor weight to fall of? Not even three weeks, but i thought i t would go faster cause I am training better the lasttwo weeks, and feeling fantastic (cept for monday when i think i glutenned myself)

How long does anyone think it shoudl take for me to drop down to 200? weeks? months?

I also started reading eveything, and even think i am malnourished because of my fingernail ridges iam seeing.

I also want to know why i gained wait if malnourished instead of storing fat?

Im excited about the blood resutls, but already know I am gluten intolerant or allergic, it's rather opbvious cause and effect now.

Thank god i can still eat peanut butter.

Ialso don't crave things...like beer. is that weird? i craaaaaaved beer, may be my only source of nutriution?;)

If anyone else has a simlar story, i would love to hear it, and any comments on anythign i wrote.

Me

Share this post


Link to post
Share on other sites

Well, I had a longer post, but it was just deleted somehow when I went to edit it. So, to make a long story short I have been a life-long athlete and have had a lot of difficulty training the past 2 years. I ended up with a stress fracture training for a mini-marathon (how's that for malnutrition at 26yrs.?) I had blood test confirmation about two months ago and biopsy about a month after that. I went gluten-free after my blood test. My villi were still atrophied and had the lymphocytes and all that good stuff when I had my biopsy. The thing is it's a learning curve. So, unless you've emptied out your kitchen, replaced your cutting boards and headed to the health food store for a very expensive grocery run, you're going to be finding things that have secret gluten for awhile. Even if you're feeling better, you could still be getting some just a lot less than before. For me I can't afford to buy only food that's been tested for G so I've been doing a lot of research, label reading and contacting manufacturers. This is a little more risky, but like I said.

I'm curious about the BP and will be checking mine. I had never had BP issues until my pregnancies and have had borderline hypertension ever since.

Good luck I don't know if I could handle the lactose and gluten personally. I feel like I live off of cheese now!

Hopefully we'll both be competing in the spring!

Meagan

Share this post


Link to post
Share on other sites

I am not an athlete but I enjoy watching athletes. Does that count?

I also gained weight while on gluten and have had high blood pressure for about 7 years, on meds for it. But this winter, I got stricter with my diet and cut out all grains except some rice every week and occasional corn. I increased my magnesium also and my blood pressure is now very good on half the medication and no diuretics! A very big step for me! I don't understand the science of it all but my belief is that the overall body inflamation from foods has caused my problems and as I narrow down all the culprits in my diet, my health just continues to improve.

Share this post


Link to post
Share on other sites
So, Saw my doctor almost three weeks ago. WEnt to him because I thought I had figure out i was lactose intolerant, which I am. I was drinking litres of milk a day, loved ice cream, let's not forget cheese.

Backstroy: I've done six ironmans, but have always looked puffy. The strange looks i would get runnign due to my stocky appearance were hilarious. I always raced around 200 lbs, but am now at 230 , and that's even down..so far

But i have been unable to successfully train since 2003. Chaulked it up to age, and drinking beer all the time (not helpful either)

So, finally i cut out dairy, fel a littel better, but still am gassy and bloated. I never wante d to think i had to give up my beloved beer. More importantly, i couldn't run very far without stopping. Felt like legs of lead, and getting out the dor to run was the hardest thing. and not opne poundfell off...ever.

So he orders the test and have another appointment in two weks. However, I went gluten free as soon as h said he was testing it. That day I had bloat and pain cause i had a few beer the night before, attempted to run 5k (stopped al ot felt miserable) and my blood pressure was through the roof! like 180 over 110 or some crazy number.

I tested it a week later after gluten free but at least the seocnd number was under 100. I have NEVER had blood pressure problems ever...in fact had my heart tested two years back on a treadmill etc, and everything was excellent. I have always had a low heart rate due to endurance training, and even at the docs officetwo weeks ago,the pressure was high but my resting heart rate is UNDER 60.

sigh.

ANyone else out there in my boat (bloat?)

So i's been 2.5 weeks since i went gluten free, and what a difference. I am wondering if its the power of suggestion, bt I am running fast again, and WELL...climbing hills, speed is up.

I drink the ol stronbows, but no bloat. in 2.5 weeks i lost almost 6 lbs . I had a spike on monday cause i think i dranks some fruit juice that kiiiiiled my stomach. was sickly and tired, and worst of all, on the crapper all day.

So, am i being impatient in thinkin i have to wait foreverfor weight to fall of? Not even three weeks, but i thought i t would go faster cause I am training better the lasttwo weeks, and feeling fantastic (cept for monday when i think i glutenned myself)

How long does anyone think it shoudl take for me to drop down to 200? weeks? months?

I also started reading eveything, and even think i am malnourished because of my fingernail ridges iam seeing.

I also want to know why i gained wait if malnourished instead of storing fat?

Im excited about the blood resutls, but already know I am gluten intolerant or allergic, it's rather opbvious cause and effect now.

Thank god i can still eat peanut butter.

Ialso don't crave things...like beer. is that weird? i craaaaaaved beer, may be my only source of nutriution?;)

If anyone else has a simlar story, i would love to hear it, and any comments on anythign i wrote.

Me

Share this post


Link to post
Share on other sites

THANKS FOR ALL THE REPLIES...

i also forgot to mention the reflux! It dissapeared like day two of going gluten free and has never come back.

let's not forget to mention bathroom trips are now less than five min in the AM rather than frequently aaaaaaaall day for at least 20 min a pop

Joint pain and aches. GONE! took about a coupla weeks for that...

wt Frik! i've been living sick all this time thinking it was normal! My days are now 18 hours long fulll of activity and energy, rather than needing a nap. I used to come home for work and like pass out till 7 or so, thinking it was the run that did me in. we just ripped out basement out adn starteed remodelling. I feel like superman now!

Now if only the weight would come off faster. I know i have to be patient. 2lbs a week is prob best...so far a drop of about 7 lbs is the deal since aug 31. Not bad i guess considering i couldnt lose any at all before.

I also noticed my fingernails are ridged and indented. holy malnutrition batman?

I have one more question. what is the science, concering the weight. I am now losing, but i read that it celiac affects you in one of two ways. ultra malourished and dethly thin, or weigh gain to the point of never being able to lose.

It ain't about excercise, cause for about three months this spring i somehow got up to 9 hours a week training, and couldnt lose.

so what is the science..?

Share this post


Link to post
Share on other sites

I don't know the science. I am one of the weight gainers. I can only come back to my theory that overall inflamation is holding me back. The more I discover what foods bother me, the better I feel, and the more my weight creeps down as well as my blood pressure. I know it is also tied into insulin levels. I know I still need to cut down more sugar out of my diet. I've cut down a lot already and it's helping. Your weight loss is at a healthy level, just hang in there. Your progress is amazing!

Share this post


Link to post
Share on other sites

Hi, I was never an athlete until going gluten-free, I was always too tired and achy. Now gluten-free for 2 1/2 years I am really enjoying playing tennis and taking dance classes and long walks with the dog. I think as far as losing weight goes, if you replace the gluten in your former diet with lots of gluten-free bread products (muffins, cookies, bread, etc...) you are more likely to gain weight. The gluten-free breads have higher calorie counts that gluten ones. If you take the opportunity to really change and focus your diet on fruit/veggies and lean meats with less bread, you should really see a difference.

I am very careful about what I eat and that makes all the difference in the world. I do not miss at all my former way of eating because I feel so good and so full of energy.

Hang in there and know that you are on the right path to having a much healthier life, even if it takes a bit longer than you'd like. These are life-long changes you are making so the benefits will last forever!

Dee in NC

Share this post


Link to post
Share on other sites

update to my frustration with weight loss...

It's progressing! ran at lunch on a course that used to take me at least 50 min (with at least two or three minutre duration walk braks..watch stopped of course;) ) and today i rocked it. No stops...and 4 min faster over 9k!!!!!!!!!!!!woohooooo..

Then i stepped on the evil scale at the gym. you know, the lying one that is broken cause it doesnt tell ya what ya wanna hear....and I dropped another 2.5 lbs! suince like thursday...so my min expectation is approx 2lbs a week...which is like weight watchers rate of loss! i can live with that. Time to step up the workouts and get swimmiong and riding again!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

×