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Gluten-free For 8 Months And Current Numbers And Questions..

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I went to the University of Chicago celiac center 2 weeks ago. I have a local GI dr who diagnosed me, but wanted an expert on the subject. I have been gluten-free for just under 8 months now, and I have gone through my house with a fine tooth comb...and we are 100% gluten-free. I love cooking, so we don't eat out often, but when we do (maybe once a month), I ask a million questions before I order.

Anyway, initially at diagnosis my TTG was 120, and now it is down to 34. I only had a chance to speak to the nurse so far, who said it was excellent and going in the right direction, and that it can take up to a year to get under 20. But, I have to wonder...could I be getting gluten somewhere? Or should i not be stressing since it has dropped so much and then retest at 12 months? I am like the gluten-nazi, and check EVERYTHING. no lotion, soap, laundry detergent, shampoo, facial moisturizer, chapstick enters this house unless I check the web site or with the manufacturer by phone.

Second, my B12 at diagnosis was pretty low, and I did injections weekly for a month, and then did the under-the-tongue b12, 1000 mg/ day daily since. It is now up to 894. I have a feeling the doctor will tell me to stop now. Should i, or do people continue to keep taking it?? Or do I cut down to a couple of times a week?

Thanks!!

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anyone? =)

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I am no expert on test results but everything I have read agrees with what you were told. It seems to take about a year to get the numbers you are already showing. It seems like terrific progress to me.

As far as the B12, I can only tell you if I miss it, I drag my tail around all day. Two days without I'm back to brain fog, tingling toes, restless legs and lethargy. I think the magnesium also ties into those symptoms, but the B12 seems to be the key for me.

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