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What Symptoms Other Than Gi Did You Have.....


NE Mom

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NE Mom Apprentice

I was dx'd with Fibromyalgia two years ago but am now thinking that I might have a gluten intolerance. I've read a lot about the GI issues that go with Celiac but I'm wondering about other common symptoms. My main symptoms have been overwhelming fatigue, joint pain, overall soreness in all limbs, brain fog, cold intolerance, feel like I'm 40 years older than I am, GI issues which seem to arise with any dairy consumption, tingling in limbs, and RLS.

I'm curious what symptoms overs have experienced and how many have been dx'd with Fibro??

Thanks,

Sam


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GottaSki Mentor
I was dx'd with Fibromyalgia two years ago but am now thinking that I might have a gluten intolerance. I've read a lot about the GI issues that go with Celiac but I'm wondering about other common symptoms. My main symptoms have been overwhelming fatigue, joint pain, overall soreness in all limbs, brain fog, cold intolerance, feel like I'm 40 years older than I am, GI issues which seem to arise with any dairy consumption, tingling in limbs, and RLS.

I'm curious what symptoms overs have experienced and how many have been dx'd with Fibro??

Thanks,

Sam

I had all the same symptoms you listed. I was dx'd with Celiac Disease in March of this year and Fibromyalgia in October after over 20years of these symptoms worsening with no diagnosis. My first months of gluten-free brought improvement to my bloating and other digestive issues, but none of the Fibro symptoms improved until just recently - I'm 9 months gluten-free and am supplementing with vitamins B, D, Calcium, Fish Oil, Malic Acid and some Essential Aminos.

I believe that the Fibromyalgia was a result of long term malnutrition from Celiac Disease. I'm 44 and have likely been Celiac my entire life.

ciavyn Contributor
I was dx'd with Fibromyalgia two years ago but am now thinking that I might have a gluten intolerance. I've read a lot about the GI issues that go with Celiac but I'm wondering about other common symptoms. My main symptoms have been overwhelming fatigue, joint pain, overall soreness in all limbs, brain fog, cold intolerance, feel like I'm 40 years older than I am, GI issues which seem to arise with any dairy consumption, tingling in limbs, and RLS.

I'm curious what symptoms overs have experienced and how many have been dx'd with Fibro??

Thanks,

Sam

I've had ongoing fatigue, joint and muscle pain, and brain fog. All of which are improved after a little over a month gluten free.

Ahorsesoul Enthusiast
I believe that the Fibromyalgia was a result of long term malnutrition from Celiac Disease. I'm 44 and have likely been Celiac my entire life.

I agree!!!

jerseyangel Proficient

I have not been diagnosed with Fibro--although I still experience muscle pain that is more or less constant.

As for the Celiac, in addition to digestive symptoms I had tingling and numbness, feelings of "burning" from the inside on my feet and face, anxiety, depression, fatigue, severe dizziness (from the anemia), brain fog, general achiness, and something that I can only describe as clumsiness/unsteady on my feet.

lizard00 Enthusiast

Overwhelming fatigue and pounding headaches were my two longest symptoms. The best we can figure, my pregnancy triggered my celiac, and I went gluten-free when my son was 2 1/2... so, I figure I caught it very early on. However, toward the end of my gluten filled journey, I was starting to have a lot of muscle aches, and somedays I felt beat up from the inside out. I think I was probably headed down a bad path, and thankfully caught a lot of stuff before it happened.

I am 2 years gluten-free, and I rarely have headaches, my fatigue is 100% better, and the unknown muscle aches are a thing of the past. I have a 4 yr old and an almost 4 month old who has just recently decided to sleep in a bed, and on some of my worst days, I still feel better than I did two years ago before I kicked the gluten. Hang in there! :)

NE Mom Apprentice

Thank you everyone for your replies.

I also think my second pregnancy may have somehow triggered my Fibro (if that is really what it is). I was unable to eat multiple during this pregnancy because they made me sick, my daughter was born with a low birth weight and a anaphylactic allergy to dairy. See now has a total of 11 food allergies that we know of with the possiblity of more. My health has never been the same since giving birth to her.

The tTg results were all normal but I'm still waiting on the AGA IgG. A week of gluten free eating has me feeling better than I have in a couple of years until the last two days. Now I have to figure out if it is the roasted almonds from Walmart or the Honey Kix than may have contibuted to the debilitating fatigue the last two days.

Sam


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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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